It's a really long story that I'm going to try and shorten without leaving out important info. 21, college student, female. 5'8" 273 pounds. About three years ago I was diagnosed with H Pylori after a long episode of issues.... between then and now I still had bouts of diahrea, etc. But thought it was Panic attacks. Fast forward to about a few months later, everything started getting MUCH WORSE I slept all through classes and was always tired no matter how much sleep I got. I left school, came home. Put my foot down and finally said something's wrong. I'm going to pause here and say, that, during my stay at my dorm, before I left, I had my first experiance with this horrible pain that's come into my life way too regularly. I had to be taken out of my dorm for EXTREME ABDOMINAL PAIN. I had bad diahrea and then it hit like a ton of bricks. I went white, broke out in a cold sweat, and ended up in the ER where the pain very slowly faded. It happened a second time at school, though not as intensely (Still enough to make me alarmed and break out in tears) But I forced myself to go to class that day. Again, it slowly faded away. Eventually, as I said, I left school and I came home. I went through a series of tests which I will list all to you now:
Upper Endo: (Celiac scraping: Negative. H Pylori: FOUND)
Colonoscopy: (Poylp FOUND AND REMOVED. Nothing else out of norm)
Abdominal Ultrasound: (Small Galstone found but no sign of Galbladder disease)
Blood tests: (Lyme; Negative. Mono; Negative, Organ functions; Normal, Cholestorol and blood levels: Normal, I believe I also had a blood test for celiac, also negative.)
So we found H Pylori and I was SO RELIEVED. Finally, the pieces seemed to come together. Because three years ago one of the two antibiotics in the kit hurt my stomach, I was told to stop them. Me and my mother came to the conclusion that it never went away at all. A few days before we learned the results and started the kit for H Pylori, I came down with Strep Throat. Started anti-biotics for that. Then I went off those about a week and a half later to start the med kit for H Pylori. I wasn't messing around. I took every damn pill. eight a day for fifteen days.
The diahrea stopped. But something else replaced it. Two days before I was finished with my kit, I got these pains. They weren't as bad, so I assumed they were gass and let it go. It slowly faded. Finished my meds. A few days later, the pain attacked ruthlessly. I thought I was having a heart attack, but also that I would throw up. No throw up. No more diahrea. (If anything, I've been a bit on the constipated side for the last month, but I think it's because I've cut out 995 of my gluten intake, more on that later.)
Burping, lack of apetite, literally nasuase at the thought of food, this strange sensation I can't even describe, and this is even without the pain...
I went to my local emergency room.
More blood tests, a lower abdominal ultra sound and a cat scan.
Cat scan revealed swollen nodes. Again. Relief. My doc was amazing, listened to the whole story. She was determined. Nodes were non-cancerous, and should clear up in a few weeks. I think that was about a month ago.
The pains are not constant, they come in a spirt and then fade slowly. It's been maybe two weeks since my last pain attack or more and just the day before last I was bent over in pain again, and tonight again, I sit in the dark, at 2AM crying in frustration in pain.
Taking ibuprofin USED to work, but doesn't really anymore. As I said, not really any diahrea, more constipation. Burping. Lack of apetite. My mom really thinks it's celiac or gluten related (Or rather, she just doesn't have any other solutions and is just as scared and sad as I am) So I cut most of my gluten. Here's some of the outcomes of being gluten free for me:
Eat no gluten to my knowledge for a day or two: Feel better but not normal, but still a lot better, happy!
Eat a little gluten: Nothing really happens to my knowledge...
Eat like three cookies: Nothing happens
Eat no gluten: nasuea, pain, or just still not right
Eat gluten: Nasuea, pain, still not right.
Basically, I'm not getting the results I want. I'm sad, and frustrated and I'm crying because I got a medical withdrawal for school and I'm supposed to hand in my slip to return in the spring, but how can I when I'm in intense, lightening-like pain, all over my back, chest and stomach every other day/week?
I'm having a hard time seeing a GI. I have not been to a Dr since the ER visit. I'm trying my best to get in with SOMEONE. ANYONE. But I'm so upset. I feel like this is ruining my life. Please. If anyone can help me. I don't know what to do anymore....
Thank you.
My friend has problems with delayed gastric emptying (gastro paresis). She had been diagnosed with everything under the sun, including celiac disease, redundant colon, and other types of conditions. She had been on medication for many years to help stimulate her stomach and intestines to move food out on a more persistent basis, without causing the dumping syndrome. You may ask the doctor about the possibility of your problems to be due to gastro paresis. I hope this helps lead the doctor to a plausible diagnosis for you and get you the treatment you need. Let me know how it goes and what you will be treated for.
Thank you very much. I'll keep it in mind as something to bring up!! Thank you!!!
I was diagnosed with gastroparesis in 2012 after having similar pain, bloating etc for 11 years. I had gastric bypass with the paralyzed section of my stomach also taken out. I feel SO MUCH better..also lost almost 190lb..but I found this forum because 2 months ago I was diagnosed with mesenteric adenitis...and after my 10 day course of antibiotics, and feeling slightly better over the month, I am now feeling the pain under my ribs again :( this is awful. Waking up at night to sit up but bent over a pillow seems to be the only comfortable way to sleep. But I would have docs see if you're having gastroparesis symptoms (paralyzed stomach is all that means). Its DREADFUL!!! When I was at my worst I vomited most of my food out, burped a sulfur smell, was extremely bloated and tired and sore...just awful. Since my surgery..I experience none of that. But now I have the m.e. to deal with!! Ouch! Good luck to you! I know this post is older so hopefully someone has helped you!