Certainly I have, yes. I've written quite a few posts in this discussion, over the past few years, and I'm still amazed that a definitive diagnosis has emerged. I'm a 61-year-old male, and first experienced this in '86 at 32. Unfortunately, with all of us having to call ourselves guest, it's touch to keep track of who's who. Going forward, I think I'll call myself cr61.
As I've mentioned in previous posts, I'm afraid one of the reasons why this syndrome is such a mystery is that many people do not survive these attacks, which means that the medical profession has not had a chance to study them properly. Those who've died as a result of these attacks are mis-diagnosed as the victims of heart attack, probably.
Somewhere in this huge thread, someone wrote a rather detailed hypothesis involving a surge in blood pressure, as the heart pumps madly, and the arteries are being directly impacted well beyond their specifications for those brief moments. This is why this syndrome is so dangerous, and why survivors like us are so few and far between.
Getting back to your question, I can say that I've now put myself in the situation where I would normally be subject to these attacks several times over the course of the last year (public speaking, getting into an argument, etc. etc.), and every time I feel as if I might be on the verge of getting one, I immediately stand up, and remain standing for about two minutes. It seems to have done the trick every time. As I understand it, adrenaline surges when it wants you to DO something, either fight or flight. If you refuse to do anything, i.e. if you just sit there and take it, the adrenaline doesn't get the command to stand down, so it just keeps firing.
As I've mentioned in previous posts, I'm afraid one of the reasons why this syndrome is such a mystery is that many people do not survive these attacks, which means that the medical profession has not had a chance to study them properly. Those who've died as a result of these attacks are mis-diagnosed as the victims of heart attack, probably.
Somewhere in this huge thread, someone wrote a rather detailed hypothesis involving a surge in blood pressure, as the heart pumps madly, and the arteries are being directly impacted well beyond their specifications for those brief moments. This is why this syndrome is so dangerous, and why survivors like us are so few and far between.
Getting back to your question, I can say that I've now put myself in the situation where I would normally be subject to these attacks several times over the course of the last year (public speaking, getting into an argument, etc. etc.), and every time I feel as if I might be on the verge of getting one, I immediately stand up, and remain standing for about two minutes. It seems to have done the trick every time. As I understand it, adrenaline surges when it wants you to DO something, either fight or flight. If you refuse to do anything, i.e. if you just sit there and take it, the adrenaline doesn't get the command to stand down, so it just keeps firing.
"it only happens when I'm driving. So only when I'm sitting."
While a small minority of posters in this thread report otherwise, the vast majority of folks, including me, seem to also have it only when sitting. In my case, it frequently hits seconds after I sit down, particularly after public speaking. cr61
While a small minority of posters in this thread report otherwise, the vast majority of folks, including me, seem to also have it only when sitting. In my case, it frequently hits seconds after I sit down, particularly after public speaking. cr61
Hmmm. Too many people here, including me, are experiencing this problem with no history of back problems like yours. I'm not saying that your history may not have aggravated the likelihood of getting these attacks, or may not be a contributing factor to being vulnerable to them. But, in general, according to the preponderance of material in this thread, I'd say back injury is not necessarily a pre-condition for this problem. cr61
I am relieved to hear that others experience the same type of throbbing pain in the kidney area that I do after an intense adrenaline rush usually brought on my an emotional experience, most often anger. I don't get intensely angry very often, but on those rare occasions when I do, when I let loose this emotion, the kidney pain ensues and subsides after several minutes of the strangest kind of throbbing. It feels hormonal to me and related to the adrenal glands. I first noticed it a few years ago but have nevet pursued to learn what is causing it. I think I did mention it to my doctor once, but it was never addressed. I think I'll go and see a naturopath about it - maybe get an adrenal test done.
I am 23 female and I had this for a long time. I experience this after giving public speechs not during my speech, but emmediately after I finish and sit down. The pain is on my lower back and I can not do any thibg untill it is over which usually takes 30 sec. I am other wise healthy and I do not take any medication.
I first had these symptoms when I was pregnant in 1995 .. adrenaline rushed in and I couldn't move .. it has got steadily worse and recently when its a bad surge I lose the ability to talk. I've spent years trying to explain this to medics even more so now I have a heart condition. I was recently diagnosed with a tumour in my kidney so will mention these symptoms to my urologist at my next appointment. I am so glad I found this site and realised I am not the only suffering from these bizarre symptoms.
Can you tell me if there is a name for this condition please?
This is PRECISELY my experience, primarily when do some public speaking. And I'm a 62-year-old male who's been having these things since 1986, when I was 32. I get them about once every two to three years. It continues to amaze me that no doctor, no expert, has appeared in this discussion to offer a clinical diagnosis. This thread has been around for YEARS, and yet, apparently, this remains a persistent mystery, made all the more mysterious by the very evident fact that we are most definitely NOT alone. cr61
Yes it's the direct confrontation. Seems to begin after you walk away.nlike someone else said its a fight or flight situation. The first time I experienced this it was 20 yrs ago when my car slid on ice. It was small spasms. Over the years it's happened a few times but just little spasms like the first time. Now just today it was bad, it started after I walked away. I wonder if it would of happened if the fight continued on...
I also have the temporary paralyzingly pain in lower back during an anxiety attack or stressful moment . Why doesn't anyone know what causes this? Even the doctors won't answer what this could be
I couldn't believe it when I came across this site.
I started experiencing severe back pain during stressful situations about 20years ago.
It took a while for me to connect it to Adrenalin release. At times I have been totally incapacitated by the severe pulsating pain that reaches a crescendo before easing, I have been left with tenderness to my kidney areas for a few days following the more severe episodes.
I have mentioned it to my doctor some years ago, had scans for kidney stones which showed nothing.
I can go for long periods and not have anything, recently I had an episode which even caused pain in my jaw.
My incidents seemed to start around the time I was found to have an under active thyroid, and I don't know if there's a connection but recently my thyroid blood results showed I was low again and my medication increased.
One of you asked if it was a male problem, I can say no it's not.
I have recently registered with a new doctor, and I will try again.
One thing that seems to be common on here is that nobody has had a diagnosis.
This is cr61 again, now cr62, as in 62 years old.
After over a year with no attacks, which I attribute to the fact that I've very carefully remained standing during all situations where I've had attacks in the past, I had a mild one just now.
I had just finished running in place for about forty minutes. I normally run for eighty minutes in place every day, but I have an early appointment today.
I did my usual drill when I'm done running, went to the bathroom, took off my sneakers, pulled out the scale, weighed myself, and I figured that was that for the day.
I then sat down to check out my email.
At which point I felt it again, that familiar throbbing sensation in my lower back. I find it interesting that it occurred when I sat down, which certainly matches my previous experience, and that it occurred after a period of time when I was challenging myself physically, i.e. running. The odd thing is that I run every day and I normally don't experience this problem when I sit down afterward. I'm theorizing that, perhaps, I simply sat down sooner than normal. Or it could be that unbeknownst to me, the problem is starting to get slightly worse for me again.
Anyway, I just figured I'd throw another data-point on the fire. Still can't believe no one has yet come up with a definitive diagnosis of this thing, when so many of us suffer from it regularly. Truly remarkable.
After over a year with no attacks, which I attribute to the fact that I've very carefully remained standing during all situations where I've had attacks in the past, I had a mild one just now.
I had just finished running in place for about forty minutes. I normally run for eighty minutes in place every day, but I have an early appointment today.
I did my usual drill when I'm done running, went to the bathroom, took off my sneakers, pulled out the scale, weighed myself, and I figured that was that for the day.
I then sat down to check out my email.
At which point I felt it again, that familiar throbbing sensation in my lower back. I find it interesting that it occurred when I sat down, which certainly matches my previous experience, and that it occurred after a period of time when I was challenging myself physically, i.e. running. The odd thing is that I run every day and I normally don't experience this problem when I sit down afterward. I'm theorizing that, perhaps, I simply sat down sooner than normal. Or it could be that unbeknownst to me, the problem is starting to get slightly worse for me again.
Anyway, I just figured I'd throw another data-point on the fire. Still can't believe no one has yet come up with a definitive diagnosis of this thing, when so many of us suffer from it regularly. Truly remarkable.
cr62 again. I forgot to say that as soon as I felt it today I immediately stood up and walked around for about a minute and it very quickly started to subside. By the end of that minute, it was gone. Immediately afterward I sat down again and it did not come back. So, there it is, whatever it is.
Hi. I am sitting at the doc right now to ask about this same topic. I am 53 and female
I have severe Scoliosis and klippel fielSyndrome. I have experienced the same thing you all are talking about. In fact I had one last week while.I was on my way to see a doc in chicago. I am from Canada but I have to seek help across the border also. I got no answers there so I am back in Canada and trying this new doc. Will fill you in if I get any answers.
I have severe Scoliosis and klippel fielSyndrome. I have experienced the same thing you all are talking about. In fact I had one last week while.I was on my way to see a doc in chicago. I am from Canada but I have to seek help across the border also. I got no answers there so I am back in Canada and trying this new doc. Will fill you in if I get any answers.
Holy c**p. It's not just me! So I read a lot of people here mentioning the kidney, and I don't get that.
I've noticed this during 3 encounters in the past years. Every time is a moment of high-intensity road rage/reacting to road rage. So I could tell the pattern here is adrenaline. A huge surge. And after every time, I almost have to pull over to the side of the road because it's so bad. Sudden, jerky spasms all over my mid-to-lower back. Agonizing. And then after 30 seconds it's 100% gone. Bizarre.
I've noticed this during 3 encounters in the past years. Every time is a moment of high-intensity road rage/reacting to road rage. So I could tell the pattern here is adrenaline. A huge surge. And after every time, I almost have to pull over to the side of the road because it's so bad. Sudden, jerky spasms all over my mid-to-lower back. Agonizing. And then after 30 seconds it's 100% gone. Bizarre.