my mom has SCD and she had to stop driving because she was having too many accidents (at least one per year)
Watch one liter of tears and you may know what is it.. It is a japanese movie.
I actually don't know this disease because I didn't have disease like this but I watch some of the best movie in Japan Chartered by ERIKA SAWAJIRI it is really realistic movie I ever saw.
hi, i am doje and i have spinocerebellar degeneration. oct.27 2014 when i heard it in my parents and i ask my classmate ken to search and he wont tell me because he just want me to read. so i borrowed the phone of my classmate and i read it. i cried i dont know what to do... now i am doing the same thing i didnt tell to them that i know.. about it... my hands is shaking and its so hard i cant explain...
i did not do some theraphy because i am afraid if they knew they wont treat me the same... only ken jaq. know... i need help...
please i really need your help...
I have the same thing and I am 1 year older then you.I was originally from Pa.as well. I am on long term disability and I will aim high and achieve as much as possible. Thank you for sharing your story. Our families are almost aligned the same as well. No wheel chair yet and I'm going to hold out for as long as possible. I may need the use of one for special occasions like next week end we are taking the almost three year old princess to Disney for Mickey's Merry Merry Christmas. I don't want to miss out on seeing her enjoy these times so I will sit in the chair for that. Good luck to you and your family. Jeannie Hoots from New Port Richey, Fl
I also Live in NC and soon be 23 yrs old. I got the same problem, but doctors hasn't say anything. (bad luck w/ doctors) that i started doing my on research of why i walk (like a penguin), and fall, and etc. And i'm try to see a doctor who would listen to me, and not say see a headache specialist.
I two Love this Show, and read the diary.
Actually, i've been watching 1 litre of tears again and again. I don't know why but its like you attached yourself in the story since it's a very emotional story. To you Julie and to other teenagers who's been diagnosed with spinocerebellar disease, don't give up! Stay strong and have faith in the Lord and to the doctors who will be finding cure for the disease. I know its hard but always have faith, you can be cured. It's already the 21st century and someday there'll be a cure for you!