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REALLY HATE WHEN PEOPLE SAY THEIR HEADACHES ARE WORSE THAN SOMEBODY'S ELSE'S. I ALSO HAVE HEADACHES FROM BOWL MOVEMENTS AND I ALSO HAVE BAD HEADACHES FROM CANCER BUT NOT ONCE WILL I TELL A PERSON MINES ARE WORSE JUST BECAUSE I HAVE A CANCEROUS BRAIN TUMOR WITH SWELLING BECAUSE THATS RIDICULOUS. MY HEADACHES AREN'T CONSISTENT AND THEY COME AND GO.
IT BREAKS MY HEART TO SEE YOU ALL SUFFER SO MUCH MY PAIN IS DEFINITELY NOTHING COMPARED TO U ALL. IM PRAYING FOR YOU ALL. PRAYING FOR YOUR HEALING AND THAT YOU GET ANSWERS..PLEASE EMAIL ME IF U EVER NEED TO TALK AT: ***this post is edited by moderator *** *** posting of private e-mails is not allowed*** *** all questions should be discussed on our website *** Please read our Terms of Use
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I also have a family history of Chiari Malformation, although I’ve never been checked for it. I also have a personal history of low back injury (herniated and bulging discs) and a history with migraines. The closest headaches I’ve had to compare to these headaches were:
1-a low pressure headache (low cerebral spinal fluid) due to a spinal fluid leak following accidental spinal cord puncture during sympathetic nerve blocks.
2-a cluster migraine that accompanied congestive heart failure caused by pre-eclampsia.
In each of those instances I had sudden onset pounding headache that felt like someone was hitting me in the head with an ax. The pain, just as with these new episodes, was so severe you just know you’re going to die because there is no way anyone could possibly survive that amount of pain in their head/brain. The difference is, with both of those, there was a known cause and treatment. The frustrating part of these is no known cause, no treatment or sure relief let alone cure. I’ve been on multiple sites in numerous groups each with the same symptoms and none with a clear diagnosis.
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I have had Crohns over 30 years. I'm 48.
the past month my bowels have been soft and I get an immediate headache right after. I had my stools tested with my gastroenterologist at the clinic and was positive for c-diff which is a virus and they also said the looser the stools the more dehydrated you are even if you think your not.
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Also look int psuedoaneurysms, chiari malformation, and subarachnoid Hemmorages
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