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Histamine, so Zyertec keeps it in check most of the time. Hope this is of help to those of you that suffer from Angioedema . If you have swelling in your throat area you may want to carry an epi-pen with you at all times, just in case.
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***this post is edited by moderator *** *** web addresses not allowed***
I invite you and your daughter to join my group. At the moment, most of the members of the group do not have MRS, and they are just friends and family of mine that joined in support of the cause, however there is another girl besides me that has MRS and joined the group. I am seeking new members so that we can connect with one another and find out what we have in common, and what has worked for us and what hasn't. I feel that this is something that I need to be proactive about and I hope I can help others in the process of my discovery. I will share with you that I have found a great improvement in the reduction of my symptoms through eliminating gluten and dairy foods from my diet. I also find that cinnamon and the food additive sodium benzoate aggravates my symptoms. I know that doctors classify this disease as a neurological disease, but I think it originates from the digestive tract and has symptoms that are neurological in nature. I think that the symptom that most people focus on is the swelling in the lips and face, but there are other symptoms that we cannot see outwardly, such as digestive problems and pain in joints and back for no reason. I have also learned that no two cases of MRS are alike and some people have varying symptoms and not everyone has all of the textbook symptoms, but some do.
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okay so on sunday i took aleve due to having painful menstrual cramps.. 1 hr later i took midol. Later that evening, i felt my lips different and noticed they were gettin swollen. I assumed it would go away the next morning, but it didnt. I woke up w blisters inside the upper lip and cut/crust on the side of my mouth. A while back (idk how long), but i took aleve & my lip got swollen too but it went away the next day. I went to the dr on monday & i was told i am allergic to Aleve (the ingredient that is inside N.??) Dr advised me to take benadryl.. I have not noticed any change.
What do I do??
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