I do not have an answer for anyone on what it is. As a matter of fact I do not think anyone has come up with a name for it. I find after I "exercise" with it, after I am done, I have a very calm peace about me. A little wore out, but calm none the less....
Does anyone remember it starting with a high fever (but recurring ever after when you're perfectly well adn fever-free)? The high fever thing seems to be a common thread (AIWS can be 'triggered' by Epstein-Barr virus, but symptoms very rarely last more than six months in that case).
im sitting here reading and going out of my mind,I need help and l can't seem to find it.
My daughter who is 5 has been having what l thought where nightmares/terrors for the past 2 years (give or take), she'd wake up screaming and crying... unable to walk properly, not able to recognise me or the things around her. This happens up to 3-4 times a week.
Aboout 12 months ago, she would get fizzy (later l found she meant dizzy), things fster and faster, falling over, scared. This lasted about 2 weeks (maybe 4 times total) and then stopped so l didn't think anymore about it. I thought maybe it was because she was just starting kinder and she was scared and didn't want to go, and those feelings caused her to panic. I did have her eyes and ears tested and everything was ok.
6 days ago it all started again, during the day. Things going faster. Things bigger and smaller all at the same time. Not able to walk properly, scared, frightened, normal everyday noises like the car starting and the doors closing would make her scream amd scream. I took her to GP and say ears and everything is fine. Maybe it's stress of starting school. She had an episode whilst in the waiting room (sent her out to watch TV so l could "talk" properly to doc). He checked her over and found her eyes were distorted and told mr that maybe it was a migraine and bigger smaller meant her head was throbbing. Referred me to paeds which i have to wair another 2 weeks for.
It's happened everyday for the past 6 days and getting more frequent. Nights are pure hell. Bigger, smaller, faster faster. Today has been the worst. 7 times thru the day, although when it does happen in daylight hours now, she seems to shrug it off. and even laugh. Like tonight we were sitting down at the table eating and she just started to laugh. Hubby, brother and l all just looked at her and asked what she was laughing at. "jack is eating faster and faster.. it's so funny" after a while we worked out she was seeing him eat in fast forward.
Tonight we're on our third episode.. Screaming, crying, faster and faster.. bigger and smaller. I am literaly going out of mind because l can't help her, l can only imagine how she ( and everyone on here) are feeling.
How can l help her?? Is there anything l can do. She just seems to want to cover her eyes and hold me.. and lf course turn the telly on.. She's finally drifted to sleep now but for how long i don't know.
Any help will be greatly appreciated.
Cheers, ajandj (jane)
This is amazing. When I was younger, I used to have a similar feeling. Everything would be moving 100x faster than they should have. My movements, thoughts. Even in the simplist actions like cleaning or doing my homework. I'd become so aware of myself and feel so small compared to my surroundings. I knew that it wasn't normal. I became scared and closed my eyes until the feeling had passed.
I'm 16 now and I still get these "episodes" but not as often. I suffer from terrible migrains a lot and faint quite often too. I wonder if there is a connection. I'm curious to find out if there's a medical condition or a reason to what everyone here has experienced.
I'm so glad to find out I'm not the only one. Thanks!
As you can see on this thread, virtually everyone had the symptoms diminish or disappear in adulthood, so hopefully that will be the case for her. Because this seems to run in my family (my mother had identical episodes) I fear that my future children will have it, in which case I'll only be able to do what I listed above. Good luck.
seriously, l can't see ahead 20 minutes let alone days weeks or months for this "thing" to stop. This episode has been going now for 12 1/2 hours constant. It's not so bad in the day, l can console her by just sitting with her but in the night she just screams and screams. There is no noise in her room we don't actually have a tick tock clock in the house. We do have a ceiling fan in the loung but it is silent. I can't send her to school like this and l think that is making it worse because she just wants to be there. I have another GP appoint in about an hour and l'm going to tell him if he can't get me into the paeds within 24 hours, then l will go to Childrens hospital and "camo out" til they help my baby.. i feal as l am failing as a mother.. my job is to protect and make things better and l can't even do that. "Mummy, just make it stop.. make it go away.. why aren't you helping me"..
Oh man, it's cutting me to the bone.....