Wow! I felt like I was reading my own account of symptoms, except you described them much better than I've been able to. ( With your permission, I'd like to print your posting to take to my next dr. appt. :) I'm wondering if you've learned anything more about your condition (s) since you last posted. I've been struggling about the last 1 1.5 years. I don't have pain like you described, but everything else is the same, from gurgling in my stomach (sounds and feels like water pipes..ha) to bowels to joints to trouble sleeping. The distention is almost constant now and VERY uncomfortable. It has greatly affected my breathing, as my lungs don't have room to expand the way they need to anymore because the bloating is so severe. I have to use a walker most of the time whenever I leave the house and usually use an office chair on wheels around the house. I look 20-30 lbs heavier than I probably am (345), and feel about 3x's bigger than that. I'm also a "really want to quit" smoker, which doesn't help. About a week ago I developed this pain in the middle/right of my back. Thought it was like a cold or muscle spasm like I get sometimes, but I can't get rid of this. I'm beginning to wonder if the distention and back pain are related. I think the hardest part about this for me is not knowing what to tell people anymore. Saying I'm really bloated just doesn't seem an adequate reason for my level of debility. I've been treated very badly by the dr's I've gone to over the past year and a-half, having all decided the problem was when they saw me was that I was just fat. Anyway, I just wanted to say hello and check on you. My sincere hope is that you've found some relief. Hugs, joan
Goodness, I have all the exact symptoms as you. I have been under an immunologist for over three years as my blood tells them there is something wrong but they can't find out what. I have had CT and MRI, X-rays and ultrasound still with no result. It's so debilitating some days especially the dizziness and chest pain. I've found cider vinegar helps a little with the stomach distension I don't know if it's because it neutralises acid it just helps and right now I'll take all the help I can get. I hope you all get answers soon. You are not alone. Get well soon.
Have you found out anything yet? I have almost the exact same symptoms.