Are seizures common for the patients diagnosed with pituitary tumor?

Oops. Posted too soon. I wanted to say that sadly, I still have not received help nor did they acknowledge their fault, despite making grave errors. I've found ways to live with it, but these seizures which I'm awake for, are proving difficult to hold a job.

I am experiencing the same stonewalling from my GP. Former RN too. I ask questions and she pulls up a website that she reads so she can answer me. Often it is the same website I have read before my appointment. She is insisting on MRI with contrast after a regular MRI and CT and various bloodwork. I had ONE gran mal seizure and NO other symptoms. Still no.other symptoms. She says tiny abnormality at pituitary gland. She seems much more interested in putting me in the insurance referral merry go round than responding to any more questions. She is very dismissive and clearly much more interested in pleasing the specialist to whom I'm being referred. Transferring to new Doc in January. ..........

Joette calabrese homeopathics

"Basic rule is that all brain tumors might lead to seizures, but this is not something common for pituitary tumors." 

Keep in mind, anything that puts pressure on/in the structures of the brain is prone to cause seizures. My husband and I are suffering with this even now. He had his Macroadenoma removed Transsphenoidally August 3rd. He'd started having seizures suddenly about a year before his diagnosis. They were very occasional. After the surgery we, naively, thought everything would just return to NORMAL functioning-- with the support of several medications. [So did the Doctor]Ha. Not quite. 6 months later the seizures are more frequent and severe than before. 

My Hubby WAS someone who was always busy, working himself to death I thought! He was considerate, even tempered and funny! He was loving and attentive. My best friend-- a sweet and spiritual person. SINCE THE SURGERY- my Dearest Love takes 1500mg Depakote daily, testosterone IM, Cortisol replacement. Now he is heavily sedated, has gained 100 lbs in 6 months, is very angry, rude, crude and obnoxious JUST BEFORE A SEIZURE STARTS...and so apologetic when it ends. 

Things CAN get better. They also can get worse. Ask your Doctor specifically what outcome s/he expects for you. Good luck! 

 

And as a 6 year brain tumor malignant (gbm) who has a benign pituitary tumor and just had my first seizure presumably to it and I'm now faced with what to do. One year of trying to tweak and tune drugs and the roller coaster of that to only now realize it might be the benign tumor, do I deal with the drugs and try to find a happy medium or try surgery? I've made it 6 years with no recurrence or major deficit, so I may just medicate. Good luck to you all. This is so frustrating.

Trumpet Man, that's crazy. Have you seen a cardiologist? Sounds weird but I'm a cancer, adenoma and cardiology patient. I had some weird episodes. It was caused by an electical signal from my heart. It sounds as if you have nothing to lose by trying.
I send you all the best
wildorchid

I was diagnosed Nov '16 with 2mm microadenoma. It's nearly a yr and had I not sent the report to my neurologist and optometrist I would have had no care up to now. My two oncologists were notified and ignored it. Neurologist referral to Endocrinologist is the only specialist care I have had. My Itty bitty (by comparison ) tumor has caused weight loss, headaches that are on top of the antiseizure and migraine meds I already take for migraines, tremors, galactorrea and loss of vision already. Size doesn't seem to matter. Don't let your dr BS you and tell you it's "..not worrisome, we'll keep an eye on it." She figures that because lab work showed no significant change in hormone levels its nothing. As of about 4 month ago I also noticed if I have done anything strenuous, such as lifting laundry several times, then stand I have a clear stream that's like a faucet poring from my nose. Continuous for up to 40 min at times. I'm being treated as a hot potato no one wants to handle due to the tumor being on the pituitary gland. I'm having a lot of vision change, blurred vision, I can be walking and fall to the right (always right), I've had head pressure that feels like my skull is being pumped with fluid and it's either going to rupture or the fluid will start gushing from my eyes, nose and ears.
I wish all of you well. Don't take no for an answer. We are our own best advocate.
wildorchid

Go see an optometrist. I hope you have insurance that covers it. I don't but I have saved to see mine 3 times in a year. They have been excellent in observing the pituitary tumor, documenting vision changes and making statements of any loss of vision and their concerns to my PCP.
Good luck, don't hesitate to be a pain in the rear if need be when it comes to drs. It's our health. You can contact your insurance to see who they are contracted with before you change. Also, ALWAYS keep copies of all testing: imaging, labs... they seem to conveniently get misplaced when you change drs. Get copies before you jump ship.