Hi S,
I am so very sorry to hear your culture came back at heavy growth. It’s so heartbreaking and I don’t understand it. I am still baffled as to why mine did as well after this last round. I also wonder about the resistance piece. How are your symptoms right now? Do you feel any better on the boric acid? Other than the ampho b, what other medicines have you taken? Also, did you know when you took boric acid before that it went to light growth because you had a culture done shortly after or you just felt better?
I am in the United States and yes, the ampho b and flucytosine has to be specially compounded at a compounding pharmacy. The medicine is expensive and I have to make sure I am not on my period when I take it. It’s a little daunting actually. I am a little worried about possible side effects and I of course have that little voice in my head saying what if it doesn’t work. I am trying to stay positive.
I did a sensitivity culture when I first figured out what type of Candida I had almost a year ago. Mine sounds like it was somewhat similar to D’s in that I was resistant to most things and the things I wasn’t resistant to are given by IV which I am not willing to try.
Another thing I have started to look into is specialty clinics that treat Candida. Again, expensive but another possible thing to try. I was one of those that tried the gentian violet vaginally which also may have helped some when I think back. I have also read that Candida can penetrate into your body tissue and wonder if the amount of time you are on medicine is a factor.
Anyway, keep me updated on your status and I will do the same. I have to believe we will both get rid of this eventually!!!!!
D - do you ever see a doctor that specialized in this type of Candida? Any other thoughts/ideas?
Thanks to you both!
Karen
I am so very sorry to hear your culture came back at heavy growth. It’s so heartbreaking and I don’t understand it. I am still baffled as to why mine did as well after this last round. I also wonder about the resistance piece. How are your symptoms right now? Do you feel any better on the boric acid? Other than the ampho b, what other medicines have you taken? Also, did you know when you took boric acid before that it went to light growth because you had a culture done shortly after or you just felt better?
I am in the United States and yes, the ampho b and flucytosine has to be specially compounded at a compounding pharmacy. The medicine is expensive and I have to make sure I am not on my period when I take it. It’s a little daunting actually. I am a little worried about possible side effects and I of course have that little voice in my head saying what if it doesn’t work. I am trying to stay positive.
I did a sensitivity culture when I first figured out what type of Candida I had almost a year ago. Mine sounds like it was somewhat similar to D’s in that I was resistant to most things and the things I wasn’t resistant to are given by IV which I am not willing to try.
Another thing I have started to look into is specialty clinics that treat Candida. Again, expensive but another possible thing to try. I was one of those that tried the gentian violet vaginally which also may have helped some when I think back. I have also read that Candida can penetrate into your body tissue and wonder if the amount of time you are on medicine is a factor.
Anyway, keep me updated on your status and I will do the same. I have to believe we will both get rid of this eventually!!!!!
D - do you ever see a doctor that specialized in this type of Candida? Any other thoughts/ideas?
Thanks to you both!
Karen
Oh girls, im so devastated and disappointed for you both..I don't know what to say..I cant understand why it worked for me when all else failed, and I had taken it previously too..just can't get my head around S that it made no impact whatsoever..
I saw infectious disease specialists Karen but here they were out of options other than to send me to the states or uk for a further opinion..but really only other option at that point that was left was to get the ampho b / flucy gel combined abroad as they cant do it here..
As regards resistance I was told no it doesn't..but to be fair has there been studies on it?? Do doctors know enough ?? Probably not..
S apart from taking two a day for five days this time was there anything different in comparison to the last time you used it when it did bring your growth down??
Please stay in touch you two and let me know how things progress, I am so sorry it hasnt worked and im so disappointed as I had been in touch with another two girls that had successful outcomes over the past few months with the boric acid and I was really,really hoping it would work for you both..
Fed up for you both xxx
(D...)
I saw infectious disease specialists Karen but here they were out of options other than to send me to the states or uk for a further opinion..but really only other option at that point that was left was to get the ampho b / flucy gel combined abroad as they cant do it here..
As regards resistance I was told no it doesn't..but to be fair has there been studies on it?? Do doctors know enough ?? Probably not..
S apart from taking two a day for five days this time was there anything different in comparison to the last time you used it when it did bring your growth down??
Please stay in touch you two and let me know how things progress, I am so sorry it hasnt worked and im so disappointed as I had been in touch with another two girls that had successful outcomes over the past few months with the boric acid and I was really,really hoping it would work for you both..
Fed up for you both xxx
(D...)
To the lady from New Zealand who tried the topical ampho b and flucytosine, did this work for you??? Did you have any side effects? If you are still checking this forum please respond!
Thanks in advance!
Karen
Thanks in advance!
Karen
Hey! I know it went to light growth cz i had a culture done while halfway through a boric acid round and it came back as light growth. This time i waited three days after round 1 for a culture and then started round two. I have now again given a culture yesterday in between my round two and requested a sensitivity test too. Lets see what tht comes out now. Will let u know.
D, i cant think of anything else tht i did different except inserting twice a day. Im baffled and disappointed to b honest. Was relying so much on this and i just had a positive feeling thts just gone down the drain yesterday.
I saw another ID yesterday who prescribed a sensitivity test on my culture. She said she will look into ampho plus flucytosine for me and its availability in australia. In the meanwhile she wanted me to continue boric acid. She doesnt know yet tht the boric acid has not made any difference. Got my result later in the day. I will call and let her know.
D, those other 2 girls u r in touch with did they use the compounded boric acid or did they make it themselves at home.
Keep in touch girls
S.
D, i cant think of anything else tht i did different except inserting twice a day. Im baffled and disappointed to b honest. Was relying so much on this and i just had a positive feeling thts just gone down the drain yesterday.
I saw another ID yesterday who prescribed a sensitivity test on my culture. She said she will look into ampho plus flucytosine for me and its availability in australia. In the meanwhile she wanted me to continue boric acid. She doesnt know yet tht the boric acid has not made any difference. Got my result later in the day. I will call and let her know.
D, those other 2 girls u r in touch with did they use the compounded boric acid or did they make it themselves at home.
Keep in touch girls
S.
Hi S, im glad your having a sensitivity test done, it may help with where to go next.. the two other ladies made the capsules themselves, one was also in Ireland like myself and the other in France...
Where you feeling any improvement while using or no difference?
(D...)
Where you feeling any improvement while using or no difference?
(D...)
Hey S,
Just wanted to check in. Have you received any more of your results yet?
I am a few days into the ampho b and flucytosine gel. I definitely have some side effects but they are not terrible.
Let us know how your doing!
Karen
Just wanted to check in. Have you received any more of your results yet?
I am a few days into the ampho b and flucytosine gel. I definitely have some side effects but they are not terrible.
Let us know how your doing!
Karen
D,
Question: I am 5 days into the ampho b/flucy gel and it’s weird, I keep thinking the infection is getting better, that it has to be getting better except for the last 2 or 3 days I have a lot of the clear discharge that I always think is from the infection. Do you have any thoughts on that? I know you said the amount of discharge you had didn’t seem to match up with the growth level, but did you ever have clear discharge and if so, did that go away with the infection?
Thanks!
Karen
Question: I am 5 days into the ampho b/flucy gel and it’s weird, I keep thinking the infection is getting better, that it has to be getting better except for the last 2 or 3 days I have a lot of the clear discharge that I always think is from the infection. Do you have any thoughts on that? I know you said the amount of discharge you had didn’t seem to match up with the growth level, but did you ever have clear discharge and if so, did that go away with the infection?
Thanks!
Karen
Hey karen!
So sorry i cudnt get back to u sooner. I actually had a low vaginal swab done on which sensitivity was also requested but it came back negative. No traces of candida glabrata. I was surprised tht it came back as heavy growth just 10 days back. So i walked in to the GP again and gave another vaginal swab. This time as high vaginal swab. It came back as light growth. Means theres still candida glabrata present. Its been 6 weeks now tht i have used boric acid. Going tomorrow again for more swabs. I will continue the boric acid. Im just disheatened again after having hopes tht its gone and then getting it on the swab again. Killing me inside.
How r u doing? Any luck with ur medication?
S.
So sorry i cudnt get back to u sooner. I actually had a low vaginal swab done on which sensitivity was also requested but it came back negative. No traces of candida glabrata. I was surprised tht it came back as heavy growth just 10 days back. So i walked in to the GP again and gave another vaginal swab. This time as high vaginal swab. It came back as light growth. Means theres still candida glabrata present. Its been 6 weeks now tht i have used boric acid. Going tomorrow again for more swabs. I will continue the boric acid. Im just disheatened again after having hopes tht its gone and then getting it on the swab again. Killing me inside.
How r u doing? Any luck with ur medication?
S.
Karen and D, one more thing can u tell me do u guys always get a high vaginal swab done or a low vaginal swab?
S.
S.
Hey can we share email or contact no. here to stay in touch better? Do u think if i write the digits in alphabets it will let me post the no?
Hi S,
Sorry to hear about the conflicting results. I don’t think I have ever had a low vaginal swab, they have always swabbed high up by my cervix. I do think it’s encouraging that it went to low growth again though, i remember after the first round it was still at high right?
I finished my treatment and am now waiting for results. I am still burny though. Trying to stay positive.
I also ended up with two fissures at the entry to the vagina that they are going to biopsy because they are apparently not going away. I can definitely let you know when I get my result from this last swab. Are you doing another round of boric acid then?
Karen
Sorry to hear about the conflicting results. I don’t think I have ever had a low vaginal swab, they have always swabbed high up by my cervix. I do think it’s encouraging that it went to low growth again though, i remember after the first round it was still at high right?
I finished my treatment and am now waiting for results. I am still burny though. Trying to stay positive.
I also ended up with two fissures at the entry to the vagina that they are going to biopsy because they are apparently not going away. I can definitely let you know when I get my result from this last swab. Are you doing another round of boric acid then?
Karen
Hi girls, sorry about the late response..
The clear discharge, yes ive had it at times.. could it be the gel dissolving? I kinda put it down to boric acid running back out a bit... and at certain times of the month it would be normal for me to have a heavier discharge...
I really hope the gel has worked for you karen..how long till you know?
S..ive always had a high vaginal swab too never a low one, sorry to hear that you have been put through that.. thinking it was gone but not but I suppose on the positive side..the growth is light..do you plan to do another round?
Karen have you previously suffered with fissures or is this a new thing for you since youve had this?
(D...)
The clear discharge, yes ive had it at times.. could it be the gel dissolving? I kinda put it down to boric acid running back out a bit... and at certain times of the month it would be normal for me to have a heavier discharge...
I really hope the gel has worked for you karen..how long till you know?
S..ive always had a high vaginal swab too never a low one, sorry to hear that you have been put through that.. thinking it was gone but not but I suppose on the positive side..the growth is light..do you plan to do another round?
Karen have you previously suffered with fissures or is this a new thing for you since youve had this?
(D...)
Oh yes..another thing I meant to mention before is acupuncture, I have never tried alternative medicine before this but I did try acupuncture, I figured what I had to lose... its hard to know 100% if it did actually help as I had started it and had about five sessions before I was given the all clear..coincidence? Or if it helped with the boric ..ill never know but I did find it very relaxing..
Second thing I want to throw out there is vulvodynia this was mentioned to me by my consultant .. I dont know if it was ever discussed or mentioned to you... but it can happen after or during infection..and you can be very sensitive to what is causing infection..or some ladies have no cause..but he recommended antihistamines to me as he believed in addition to the glabrata infection that I was also allergic to the yeast and I must say..in my case antihistamines really helped me...
Just throwing it out there to see what you think
(D...)
Second thing I want to throw out there is vulvodynia this was mentioned to me by my consultant .. I dont know if it was ever discussed or mentioned to you... but it can happen after or during infection..and you can be very sensitive to what is causing infection..or some ladies have no cause..but he recommended antihistamines to me as he believed in addition to the glabrata infection that I was also allergic to the yeast and I must say..in my case antihistamines really helped me...
Just throwing it out there to see what you think
(D...)
Hi D,
I should get my results by Monday or Tuesday. I have never had fissures or any issues with the tissue in the past, it’s definitely a new development.
That’s interesting about the acupuncture and the antihistamines. Where on your body did they do the acupuncture?
Will keep you ladies updated:)
Karen
I should get my results by Monday or Tuesday. I have never had fissures or any issues with the tissue in the past, it’s definitely a new development.
That’s interesting about the acupuncture and the antihistamines. Where on your body did they do the acupuncture?
Will keep you ladies updated:)
Karen
Ladies, yes i am going to do another round. Hoping pretty badly tht this round manages to knock it off for good. Plz keep me in ur prayers tht it does!
I will definitely look into acupuncture. Hv never had it before so dont know the procedure.
Will definately start the antihistamine. Do u remember what dose did u take?
Karen i really really hope tht ur biopsy comes clear and ur glabrata is gone for good. Hope monday or tuesday brings good news to u.
S.
I will definitely look into acupuncture. Hv never had it before so dont know the procedure.
Will definately start the antihistamine. Do u remember what dose did u take?
Karen i really really hope tht ur biopsy comes clear and ur glabrata is gone for good. Hope monday or tuesday brings good news to u.
S.