I have had cluster migraines on and off all my life. I went to the best of the best headach Dr. in NY. I actually found out the usual trigger which was sugar. However, my Dr. said sugar isn't a known trigger. It is now & I have proved it over & over. Too much sweets or sweet drinks (not diet) real sugar does cuse headaches. Now for the cure. I am now 71 & have had headaches since I was a kid. I found aspirin is the only thing that helps me. However, I am now forced to use 4 to 5 500MG (Max. Strength) at 71 I think it is becoming dangerous & certainly now great for kidneys. So now where do I go. Over the years I tried many painkillers all of which I tried either didn't help or gave me rebound headaches. I am real worried about taking 2,000 to 2,500 MG aspirin and at night at my age bleeding out in my sleep. They say the older you get the more you have to be careful on aspirins. I have Dilaudid but am reluctent to try it not so much because of a feared addiction, I just really hate to make the headaches worse which has happened in the past with some painkillers. I have had a headache for 2 days and after reading here it helped some I wiil take the plunge to a 2 MG Dilaudid & see if it cures or not.
DHE gives me an even worse migraine that I was treated for and then I need to go back to ER for the migraine cocktail that ultimately works. this consists of dilaudid, Benadryl, reglan, valium, toradol and sometimes a steroid-and at least 3-4 hours rest in the ER after receiving meds. sometime another dose of dilaudid and more rest. I get these migraines at least 7 times a month and have been acused of being a "drug seeker" but anyone who suffers from them knows that you need whatever works to get rid of them. I have been suffering with these migraines since I'm 10 years old - 39 years of migraines is no fun.
~stuck in pain~
I'm so very sorry about your brother. I would be heartbroken too, if that happened to my brother. You're absolutely right about being under strict observation from your doctor.
I'm 55, and have had horrible migraines since my mid-twenties. I would get them every few months, and what I got was a lot of pats on the head from the doctors I saw, and told to go lie down in a dark room, and lower my stress level. I have panic disorder, so lowering anxiety was not really an option. I finally found a WONDERFUL Dr who, in the past 10 years, has really worked with me. We've tried EVERYTHING, including Fentanyl patches. By this time, the migraines were almost daily, and would last for 2 weeks at a time. Finally, we found a magical combination of Neurontin (200mg 3x daily), Demerol injections (100ml...2x on really bad days), and Dilauded (started with 2mg, now use 4mg prn) by mouth. Of course, I did not take all this at once!! I pretty much know by now which ones I need at what time of day. The kicker was, of all things, chiropractic and massage therapy. I was very much a skeptic, but my headaches now are almost always menstrual. It's nothing short of a miracle for me. So that's my story. Sorry it was so long.
I have to add that I don't get the addiction problem that a lot of people do with opioids. No high, no euphoria, no craving for any of the meds, etc. My Dr said that that's because I am actually in pain, so the meds hit those receptors to stop the pain, but they hit different receptors in people who use them recreationally.
I hope this looking post helps someone. These migraines are horrible to live with, so I'm always interested in how others treat theirs.
Be well,
Karen