I know this thread is a bit old, but I just thought I’d share my experience. I have been diagnosed with Idiopathic Intracranial Hypertension aka Pseudotumor Cerebri. Basically, for some unknown reason my body is producing too much cerebrospinal fluid. I’m currently waiting to have a Ventriculoperitoneal Shunt placed in my brain to drain the excess fluid in my head. There’s no cure for IIH, just treatment. Other than horrible symptoms such as debilitating worse than a migraine headaches, dizziness, pulsatile Tinnitus, nausea, tingling, burning, numbness, etc, the biggest concern is the possibility of blindness. All the pressure in my head from the excess fluid is causing my optic nerves to swell. The condition is called papilledema. I failed all the meds that are used to attempt to reduce fluid so I absolutely have to have the shunt punt in or I will lose 100% of my eye sight. Please...if you feel like any of these symptoms relate to you, get yours eyes checked and ask to see a neurologist. Diagnosis is made by both eye exam and lumbar puncture. Lumbar punctures are scary, but worth it in order to save your eye sight. Please check to see if you have a CSF leak if your feeling this burning sensation in your head and back to your neck as you described. You can google ways to check at home or pleeeeease go to your doctor. I wish I would’ve discovered my condition sooner. I’m only 35. Originally they thought I just had bad migraines. I fought for years and still have to continue fighting. This is rare and barely any doctor knows what it is or how to treat it. Good luck!
Loading...
Loading...
Loading...
Loading...
Loading...
Loading...
Loading...
Loading...
Loading...
Loading...
Loading...
Loading...
In addition, I feel extra tired and not quite dizzy, but weird. Can’t describe it. Almost like a semi out of body experience. Told you I was loosing my mind lol.
Loading...