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My mom had similar symptoms and it turned out to be from seasonal allergies. Have you tried allergy medication (slow-release antihistamines and that kind of thing)? I'm no doctor - but it might be something to ask the Dr. about.
i'm going through the same thing too right now... it all started in April... i got a rash around my mouth... when i first got it the dermatologist told me i had Perioral dermatitis... but soon after it spread to me eyes and forehead... at first it did look like perioral dermatitis... but then it changed a lot... i had a bunch of little bumps all over my eyes mouth and forehead... then it got really bad... then it turned into a rash that appears and dissapears... i took prednisone and it helped at first... the rash that was on my nose and forehead started to flake off and i thought i was getting better, but then... the next day i woke up and my eyes and lips were so swollen... it looks like i got beat up or attacked by bees...or like willsmith in that movie hitched when he had to take benadryl... i also got an allergy on my neck that looks like hickeys...the swelling started yesterday when i woke up...it hasn't gone down and i don't know what to do....also my ears get swollen and red and burn...and even my 2 index fingers have these bumps that itch like crazy...has anyone found anything that helps? thnx for reading
I am a 51 year old woman who is also battling the eyelid thing. It started about 7 years ago. I will wake up with swollen eyelids almost swollen shut. Then they will begin to itch and have a cracked look once the swollen blistery part goes down. Then they will peel and scale for weeks. I kinda think it may be due to certain eye shadows. Seems when I try something new it happens. I hope at least I have narrowed it down to that. Could also be perfumes settling on face after being sprayed. I tried a new face wash once that also caused it. My advice is to not change anything you normally do as far as face washes, makeup etc. Having a very hard time with it today. The allergy eye drops do help some. Took benadryl yesterday and it didn't help at all.
Thanks for your post, and yup I sure did try the regular "allergy" type pill just in case, as you mentioned, the problem might be originating from seasonal allergy issues--- I tried Benadryl, Claritin & Zyrtec...and none of those seem to have any effect...but I do thank you for passing on the thought!
I just know one of these days something has GOT to work-
I finished the Pred prescription yesterday & the rash had actually started to return a few days before that..OY!..and oh yes (you'll love this one..)
I also tested out my theory at work ..with my safety glasses & plastic gloves (trying to protect myself)..LOL..You may have guessed..Ha! ha!..all I did was give a few co-workers a reason to do a double take..LOL!
Still waiting for my appointment with the specialist, I called my regular MD who ordered a bunch of bloodwork to be done & offered me additonal Prednisone if I need it to tide me over--I'm going to try & deal without it if possible--Last night I finally caved in & just put a teensy amount of cortisone ointment which has helped a bit---
Just taking things day by day now---perhaps the Blood tests will show something??....Can't believe just how much I miss my mascara...WAH!...

Good Luck to all--hope everyone is making some progress & I 'll continue to check in--Peace!
UPDATE: The allergist sort of gave up. He told me I'd just have to deal with it and when my eyelids swelled and turned red, I was to call him for more Prednisone. So, I talked to my regular doctor again. He was not thrilled with how the allergist wasn't going to try anything else. My regular doctor decided to treat the symptoms not the cause (since we don't know the cause). He then prescribed me Singulair that I'm to take once a day. I also have to take one Pepcid AC twice a day. Apparently Pepcid AC can help with allergic reactions. Look it up!! I already have, and it's true!! Thus far (I'm going on a week and a half), I haven't flared up again. Coincidence? I don't know. Time will tell!
Guest wrote:

BamaEskie wrote:

I'm a 36 year old female, and I'm having the same problem. I've been dealing with this for months. My eyelids and under my eyes get so red. My whole face swells too. I've kept a journal of possible triggers, I've changed products, and I've been to my regular doctor. Then I went to an allergist who did all sorts of tests with no explanation. He gave me a prescription to Prednisone and that worked great until the pills ran out. He gave me a second Prednisone pack which did the trick, but now I'm out and back to being red and puffy. I've tried all the major allergy (prescription and nonprescription) medicines with no luck. I don't know what else to do. There are too many of us having the same problem; a solution has to be found.



UPDATE: The allergist sort of gave up. He told me I'd just have to deal with it and when my eyelids swelled and turned red, I was to call him for more Prednisone. So, I talked to my regular doctor again. He was not thrilled with how the allergist wasn't going to try anything else. My regular doctor decided to treat the symptoms not the cause (since we don't know the cause). He then prescribed me Singulair that I'm to take once a day. I also have to take one Pepcid AC twice a day. Apparently Pepcid AC can help with allergic reactions. Look it up!! I already have, and it's true!! Thus far (I'm going on a week and a half), I haven't flared up again. Coincidence? I don't know. Time will tell!


I couldn't log in for awhile, but I wrote both of the above posts.
Hi BamaEskie & thanks for sharing!
Who knew good ole PepcidAC & some Singulair could help out with a skin issue?.....I REALLY hope it continues to help you & please keep us posted on how you are doing. I can't believe your allergist basically giving up on the situation!! That really gets me #$%^!!! ....I mean SERIOUSLY... as a doctor he knows full well that living from one Prednisone prescription to another is NOT the answer that you need & he/she should be ashamed of themselves. I'm so glad your doctor decided to try this alternate approach (treating the symptoms)& lets hope it continues to work!! I may end up trying it myself at some point if I can't pinpoint the cause of my situation as well.
I just got my blood test results back & everything is normal..ha! ha!...(thats a good one..wish my eye & my neck actually looked a bit more "normal"...LOL)..Been alternating using my Vitamin E cream one day & Cetaphil lotion the next & things have sort of stayed the same...not getting worse, but far from "normal"...Just trying to hang in until next week when I have that appointment coming up...
Sending all of you out there good thoughts knowing that together we will make some sense of this problem.
Peace!
Do any of you know any kids with this? My daughter 9yrs woke up one morning May 08 with red and puffed up left eye (looked like blusher on her eye). Bottom eyelid then turned blue and spread to right eye. Looked like someone had punched her in both eyes.As the puffiness went down, the skin around the eyes started to flake or peel off. A few days later she got rash on her left cheek, over a few days it spread down her face and to the other side.

It was exactly as explained by mammmia - almost like sunburn or windburn. It became dry and wrinkled and then her entire face peeled back. As I thought it was clearing, so the back of her neck went red and then peeled to. Se is not an allergy child. This happened over 6-8 week period.

Just as I thought it was over, tonight her keft eye is puffy, blue again and she complained it was hurting. Her cheeks look like they're stating up again wit hthe red rash.

I have seen a GP, two dematologists and a homeapath. She has had all blood tests and everything was clear (lupus, strep, food allergies). She never had any fever with this but has had a cold, blocked sinus. All the answers after paying $$$ was that it is "bizarre". I too was given 1% cortizone to apply - which helps reduce the swelling (someties burns) but not the cause. I too changed shampoos and bought organic ones - hasn't helped either.

Went to my chiro who gave me the most resonable answer yet . He reckons it could be a blocked sinus resulting in sinus infection. Do any of you suffer from sinus issues? Was surfing the net re sinisitis when I came across this page. Was also thinking of taking her to optometrist, thinking maybe it's a blocked tear duct??Am at my wits end watching my daughter suffer!
Oh my goodness Aussie Mum,
I felt soo bad reading your post! Your poor little girl must be so frightened having to go through this and as a mother myself I can only imagine how heart breaking this is for you!!
I wish I could offer up some words of advice but in my searching I have not come across any other young children with this issue( although I have no doubt that your daughter is certainly not the only little one with this problem)
The only thing I do remember from many years ago was that my God daughter when she was having issues with her teeth (either cutting a new tooth, or having any tooth problems at all), would get very dark circles under her eyes (very much as you described, looked like someone might have punched her in the eyes) I was thinking due to your daughters age, is there any chance she could be getting her wisdom teeth early & perhaps ot os triggering some other response ???...although I know it really does'nt explain the rash at all.....
The chiro's advice does seem to make some sense too and perhaps is worth exploring since you did say your daughter does have some cold symptoms right? Do you have an eye , ear nose & throat specialist that you might be able to have her seen by??...(I think they're called Otolaryncologists?? (spelling might be off) but perhaps that might be a good place to turn for some answers??
I hope your daughter is feeling better as I write this and I certainly will come back & share anything I might hear that I think could be of any help to you! I wish you the best, and to all .....hang in there ..together we WILL find an answer........(I'm just a few days away from my appointment at the dermatology clinic & am going to think positive...no matter how red & RASHY I might look...ha! ha!.....PEACE!
Thanx for your support MammaMia.
Just got back from the Paed (who'd been away for the last 5 weeks).
Thanks goodness, as my daughter is getting othe symptoms - heavy head, weak legs every now and again and tired. I just didn't know what was related to what- didn't know whether to give her anthistimaines or painkillers....
Anyway all diseases have been ruled out :-)
Two days prior to the beginning of all this happening, my daughter was bitten on the butt and on the back of her upper arm by something. (I assumed it was a mozzie bite.) My paed thinks this was the cause and is still cause of what's happening. He doesn't think it was a mozzie (as they don't usually bite on butt and can't bite through clothes. So he thinks its from a tick or a spider. He is going to contact an immunoligist (need a spell check on this programme) to discuss. Paed thinks that whatever has bitten her caused skin rash and has left something in her system causing the heavy head etc. I asked him about sinus but he doesn't reckon it is, as she hasn't had temp or been sick etc.
Oh as it so happens going to see dentist tomorrow mornig as now her teeth ache too - been pushed together (and She doesn't know about this site!)
She's been really brave - in Jan she broke both her wrists coming off her bike and now this! She's a gymnast and recovered well from that - fortunately!

Good luck at the Dermatologist - Look forward to hearing his/her diagnosis.
I too am suffering from eyelid issues. Swollen, sometimes red, sometimes itchy, sometimes inflamed, sometimes crusty, my eyelids have become a constant problem.

I have had blepharitis, a crustiness around the eyelashes, but it went away with dietary changes.

My world-renowned dermatologist immediately identified a redness to my inner, lower eyelids as an allergy. Perhaps the result of moving to an area with more pollen. Perhaps the result of an occupation that now has me more exposed to people's pets (I spend a lot of time in people's homes).

I find it interesting that Traditional Chinese Medicine and the art of face-reading relates the health of the eyelids to the kidneys and adrenal glands, suggesting that what we drink and what we secrete might be factors. Perhaps drinking more water might not be such a bad idea after all.

There is no question that our eyelids are sensitive tissues, perhaps the most sensitive skin on our bodies...well, maybe second most sensitive. But I would suggest that we take more care to manage what our eyelids are exposed to, both environmentally and from within.

Strangely, on a recent vacation to Club Med in the Dominican Republic where both my environment and diet were altered dramatically, I had no problems whatsoever. Maybe we should all just move to Club Med?

Either way, best of luck, and remain diligent. A healthy life is a longer life, and maybe our eyelids are telling us that we are a little off course.
I too am suffering from eyelid issues. Swollen, sometimes red, sometimes itchy, sometimes inflamed, sometimes crusty, my eyelids have become a constant problem.

I have had blepharitis, a crustiness around the eyelashes, but it went away with dietary changes.

My world-renowned dermatologist immediately identified a redness to my inner, lower eyelids as an allergy. Perhaps the result of moving to an area with more pollen. Perhaps the result of an occupation that now has me more exposed to people's pets (I spend a lot of time in people's homes).

I find it interesting that Traditional Chinese Medicine (TCM) and the art of face-reading relates the health of the eyelids to the kidneys and adrenal glands, suggesting that what we drink and what we secrete might be factors. Perhaps drinking more water might not be such a bad idea after all.

Here is an interesting quote from a TCM website: “If you’ve been overworking, worrying, not sleeping, drinking too much coffee and trying to juggle too many commitments, look at your kidney/liver area which is the half moon-shaped area under the eye. If the area is puffy and blue, you are working too hard, depleting your adrenals, eating too much rich food and causing an imbalance in the fluid balance of the body.” (dhyansanjivani.org/chin_face_read.asp)

There is no question that our eyelids are sensitive tissues, perhaps the most sensitive skin on our bodies...well, maybe second most sensitive. But I would suggest that we take more care to manage what our eyelids are exposed to, both environmentally and from within.

Strangely, on a recent vacation to Club Med in the Dominican Republic where both my environment and diet were altered dramatically, I had no problems whatsoever. Maybe we should all just move to Club Med?

Either way, best of luck, and remain diligent. A healthy life is a longer life, and maybe our eyelids are telling us that we are a little off course.
I am having the almost same symthoms as all these post.Red swollen itchy eyelids,rash on my arms and back of hands,by my ears and forehead,on my legs,around my waist and on my gents.Today was the worst it ever been.I think what may have caused it was exposure to polyurthane product clear coat or paint thinner and epoxy paints.The first time I was spray painting on a offshore drillship.Few years later it happen again I working on another ship in the paint locker.This time I was cleaning with thinner and using some clear coat.The physician put me on oral steroids for a week.So hope it helps.Think it is an alergetic reaction to those paints,thinners,solvents merchant seaman are always exposed to.
I had thought it may been laundry detergent with only itchy rash on my legs and waist but think I found the real reason now.Hope this helps someone.I'll have to limit my exposure to those chemicals.
I HAVE FOUND A CURE ! Maybe it will help you too,
I have had it all. The red puffy face, swollen eyes and lips, sore red
skin behind the ears, peeling sore facial skin etc.
I looked like a monster.
After 18 months of visiting a homeopathic practitioner, dermatologist,
doctor etc, nobody could tell me what was causing the awful sore face
that was ruining my life.
I threw out my carpets, matress, pillows and everything else that
could be causing the problem, but nothing worked.
I have finally solved my case, and really hope that it will help
others.
I was eating a lot of crisps (potato chips if you are American) and
have discovered that I am severely allergic to the SUNFLOWER OIL that
they are now cooked in. Since I stopped eating the crisps, my skin is
normal again, and I have got my life back. I HOPE THIS WILL HELP
OTHERS TOO, as I can't be the only person affected. Good luck to you
all.
Janet.
It helps so much to know that there are other people dealing with these symptoms. Nobody truly understands how it feels or what affect it has on our lives, not even my doctor I believe.

A year ago I was dealing with scaly, puffy, red, burning eyes/eyelids. The doctor I saw said that it was blepharitis and prescribed me eye drops and cortisone creme (too high of a % might I add) I've had mild cases of Exzema on my hands before so I've dealt with cortizone creme and I'm very reluctant to apply it to my face as it thins out your skin! Non of it seemed to help and my skin was sooo dry but face lotions only burned my skin, even non perfume base lotions. Make up was a no no which at my age was devastating and caused stress stress and more stress. It finally cleared up but because of what actions I have no idea.

Now a year later I've been dealing with a worse case of skin irritation. for 3 weeks I've had the red scaly patches below my eyebrows, the exzema looking dryness on my eyelids and below my eyes, and NOW a new symptom.. bumpy rash feeling skin on my forhead and mainly my chin and above my lip. My lips also look as though there is exzema on them and it is all SOOOOO very ITCHY!!! I've switched all my cleansing and lotion products and I've tried everything from lotioning to not lotioning the areas and applying and not appling cortizone creme. The kicker of it all is that different things work for different areas. The cortizone creme and moisturizers work for the area around my eyes but they aggravate the bumpy rash like areas. So i'm almost wondering if I am dealing with two different skin conditions.

The only thing that I HAVE figured out is that when my body over heats or I sweat alot,from working out or being in the hot weather, my skin gets worse and very itchy. So tempurature is definatly a factor.
But I also believe sun exposure has helped me. I spent a long weekend at the lake and my skin cleared up. As soon as i returned to work the symptoms returned.

I have no answers but am going to see my doctor next week. I have little faith that she will have any answers for me, but I will request to see a dermatologist again. I would suggest to any of you that when you go see a doctor make sure you stress how much this is affecting you because until people have this themselves they just do not understand what a toll it really takes!

Here's hoping someone finds something helpful!!

Mama Mia I am looking forward to hearing about your visit to the new dermatologist!