oh, my bad, I thought this was a forum for useful information and for individuals to share. Not for hateful snots who know nothing about what one is going through to post their snide remarks. IF YOU DON'T HAVE SOMETHING OF VALUE TO ADD, DON'T ADD ANYTHING!
Hi, I am new here and wanted to share and seek advice. I have and will alwasy feel that networking and sharing your story may help others or yourself.
I am a 40 YO F, single mother, two children, one in college and one in High school. The HS child has had many issues with his health and has Sjogrens, Raynauds, Pectoriasis, vaso-depressive syncope, and arthritic changes. He also has a bone tumor that is diagnosed as several possibilities (Aneurysmal Bone Cyst, Osteoblastoma, Giant Cell Tumor). It is currently inopeable and shrinking. It is on T-2 and close to the spinal cord. Seen several docs on this one. I am a researcher and seek out the best of the best for my children and myself if i can.
I work full time in a financial firm and full time school for nursing, while raising my sons alone with no financial assistance and going into bankruptcy with my medical bills. So i have to work, and i have to go to school to have a better job for my family.
I have MCTD, Sjogrens and recently DX with Fibro. I have extreme fatigue, IBS, neuropathies, sleep issues, get sick easily, possible vascular issues, cognative impairment, dizziness, fog, balance issues and migraines. THe main issue is people do not believe oyu are sick because we often do not look sick. So work and school have been hard on me, considerate but i know they are not to happy about the issue. I was dx with Sjogrens about 4yrs ago, MCTD 6 mos ago, and Fibro 3 days ago.
I am on Imuron, Medrol Packs often, Gabapentin, Paxil, Celebrex, Lortabs, Valium, Immetrex, voltaren.
I am often scared and alone in this world of autoimmune disease. WOuld love to continue to chat with everyone.
I was diagnosed 18 years ago with mixed connective tissue disease. What sent me to the Dr. was raynauds in my fingers. According to my Dr., you can stay exactly the same as when you are first diagnosed, or different symptons can manifest themselves at any time. You can also have a normal life expectancy. I have stayed almost exactly the same as the day I was diagnosed!
Jazzy, my son was just diagnosed with mctd and I was looking for information in this site since I never heard of mctd. Just want to commend you! im a single mother of two children as well. Never give up and have faith in God
Hi I been dignosed with MCTD for 6years now . So far I'm hanging in there
Hi my name is Martha
I have been battling with MCTD for 6 years now. If you want to talk or hear my store email me. Thanks
My mom has been battling with MCTD for almost 15yrs and thank fully things are in control now or apparently kept in control by her sheer determination and will.
Keep visting the docs and have faith in GOD ! Be positive and accept it instead of getting bogged down. Life is a long journey and there are bumbs to give us a jerk in the otherwise smooth ride
Hello, my name is Cathy and I was diagnosed last month with MCTD. What symptoms did you experience when you were first diagnosed? What medications do you take?
Thanks so much for your up lifting article. I was diagnosed last month with mixed connective tissue disease. Do you take medication? I take Hydroxychloroquine 200MG twice a day. How do you feel and what symptons do you experience?
Thanks
Cathy
i just got diagnosed 1 week ago after 4yrs of searching and one surgery to remove two bad disc in my neck ,it has taken four years of chronic pain for my body to begin telling its secrets my doc has out me on Hydroxychloroquine .