Hello everyone, In the year 1999 ,I was diagnosed with T4 Laryngeal cancer , I am 52 now , I live with in PAIN, and now on 4/10/18 ,I am going to see if they are ABLE to remove my voice box (ASPIRATION) due to to much radiation 9400 rads 6 advance chemo's ,surgery may not be possible , Back then treatment was not as refined as today , my last chemo I went into cardiac arrest , my 1st HART ATTACK, chemo left me with ARTERY DISEASE ,due to PAIN and blockage 2009 for birthday 2nd hart attack, carotid arteries one occluded the other 60% again due to the amount of radiation they tell me surgery not possible ,.( DOES THAT MAKE ME TERMINAL ???)
I have the unbearable pain in ears ,jaw and throat and much much worst when swallowing ,aspiration is now to much to deal with, my teeth turned to choc within a few months of radiation, 3 stomach surgeries due to 2 stomach pegs, (THEY WILL NEVER PUT ANOTHER PEG IN ME) I still have acid refux (GRED) (cause of cancer) born with hiatal hernia . IN SHORT , I AM SUFFERING AND CAN GET NOTHING DONE (no pain management on medicaid SSI) ***this post is edited by moderator *** *** posting of private information such as name, phone number or email address is not allowed in order to protect your privacy*** Please read our Terms of Use
I am 3 years out of radiation and chemo for esophageal cancer close to my epiglottis. Doing okay but just lately real pain at swallowing and in my ear. Your experience at least gives me hope that I may last 11 years. I am 63. It is my understanding that a return of cancer would mean swollen lymph nodes, and I do not have that so . . . . I have hope.
I was inclined to write you when I read about your neck pain. I would not have pursued this if my sister who is a nurse strongly reccomended a lymphedma therapist. She helped me greatly. Not all therapist are certified in this and you have to seek them out. Hope this helps.
Steve
I was diagnosed with stage 3 HPV induced throat cancer I had my 35 and last radiation on dec 31 2020 and 9th and last chemo on the 28th of dec I was advised to have feeding tube installed but since I was 258 lbs I was convinced a bit of weight loss would be ok I have lost exactly 50 lbs As many of you have said , even water was hard to swallow Now 3 months later I still have pain when I swallow and anything edible with spices or pepper feels like I swallowed a wasp nest , gums hurt, tongue hurts, and lips hurt. Docs won’t give me anymore pain meds, supposed to be referring me to pain management doc. Getting a pet scan next Monday. I feel as though my docs have just shoved me out the door and could care less about my problems. As they have offered me very little advice or real concern. (Fla Cancer specialists) one doc told me today I should not have pain. But still will not do anything for me. Says his hands are tied. I can’t imagine living like this for many more months , I can’t blame anyone for my cancer , but if I had it to do again I would have gotten another opinion. Fla cancer specialists claim on their marketing that they are a patient friendly environment and have down home caring. I say BS. Many times in there I felt like I was working for them rather than them helping me.
Oh well , I just wanted to get this off my chest I wish everyone the best of luck. Including myself.
Larry Wsll