Hi i am 15 years old and also have chronic pancreatits. Im sorry to say this but it has been almost one year and i still have problems eating i have had to go into the hospital every month for the past year and in totlal have spent about 5 months in hospital. im not sure when YOU will be able to eat normal all peopel i have talked to are diffrent. One thing that is possible to get if your pain dost go away is a shunt in your pancrease tube thats what i might be getting. I hope i helped a little. Im sorry about your luck and i hope you get better, if you have any advice for me please reply
Hi i just got back from the hospital cause my stomach was in sever pain so the doc ran some test and said it was acute pacreatitis and they put me on an IV for an hour and i started feeling better and he asked me if i wanted to stay the night at the hospital and i said no cause my stomach was feeling better so he told me to eat bland foods and drink water so i went home and then i ate some little pieces of chicken and i dont remember what els i ate but i was fine then the next day i ate a pot pie and some fish with greenbeans and i was fine but my stomach started to hurt a little again so the next day i ate some chicken with greenbeans and rice and that kind of messed my stomach up again but not to bad but anyways iv got to eat something that i can gain weight with but not hurt my stomach soo bad!!! cause i cant lose anymore weight! i only weigh 110 pounds now and im a 23 male i used to weigh 125 pounds so it is scaring me bad cause i cant lose anymore weight so does anyone know of things i can eat that will make me gain weight but not hurt my stomach soo bad???? also iv got reflux so i cant eat spicy stuff ether or hardly anything that high in fat so pleas!! it would be nice if someone could tell me something?? :-(
Hi, my husband was in the hospital for 11 months due to necrotizing pancreatitis. I would like to email with other survivors. Please write geetaATgotsky.com. Thanks.
Just to add my two centsworth. I have just started recovering from an attack of acute pancreatitis - the first in 60 years - and was in hospital for 19 days. During my stay I was on intraveinous only for the 1st three days, water only for the next 7 days, then juice and water, followed by broth and jello. finally some runny 'solids' entered my stomach after two weeks.
One week out of hospital and I'm 22 lbs lighter, eating small very lean portions and no longer feeling discomfort. It appeared that the best treatment for my pancreas was to not feed me at all until the inflammation subsided, then gradually build up my diet to normal over the next couple of months. My diet was never outrageous and thankfully I was in excellent shape prior to the attack.
In short for the next month I cannot take any fat, spices or heavy meat laden meals. No bacon, ground meat, cheese, milk fat, margarine, booze. I am not going through that again so I will very cautiuosly reintroduce lean meats, bread, esp. flat breads like tortillas, zero fat milk, yoghurt etc. To start the diet the best meals for me were tinned vegetable soups like chicken veg and beef broth. Also it seems necessary to take Pantaloc every day to reduce acid production in the gut. And drink lot's of water.
The above and lot's of patience and self disciple is my recommendation.
One week out of hospital and I'm 22 lbs lighter, eating small very lean portions and no longer feeling discomfort. It appeared that the best treatment for my pancreas was to not feed me at all until the inflammation subsided, then gradually build up my diet to normal over the next couple of months. My diet was never outrageous and thankfully I was in excellent shape prior to the attack.
In short for the next month I cannot take any fat, spices or heavy meat laden meals. No bacon, ground meat, cheese, milk fat, margarine, booze. I am not going through that again so I will very cautiuosly reintroduce lean meats, bread, esp. flat breads like tortillas, zero fat milk, yoghurt etc. To start the diet the best meals for me were tinned vegetable soups like chicken veg and beef broth. Also it seems necessary to take Pantaloc every day to reduce acid production in the gut. And drink lot's of water.
The above and lot's of patience and self disciple is my recommendation.
Unfortunately, I don't think we can ever eat like "normal" people again. I just had my first attact last week and have been frantically searching for information. I also was told NO fat and NO alcohol. I didn't have to be hospitalized because I wasn't vomiting and was able to keep down small amounts of food. I have since been eating a little plain pasta, toast with jam (no butter or margarine), and cereal. I'm feeling better but realize that this is going to be life changing. I had a salad with fat free ranch yesterday and it wasn't too painful. I purchased fat free I can't believe it's not butter spray. I was told, too, that the diet should be high in carbohydrates and low in fat. I am wondering how low in fat is too low? I know too little fat can also cause health problems.
I have been suffering with chronic pancreatitis since last December when I tried to do a gallbladder/liver flush myself. The result was pancreatitis, which has kept recurring since then, and now seems to be a permanent part of my life. The funny thing is my 28 year old son has also had it for the past two months, and my mother had it when she was pregnant with me. Can this be hereditary? Anyhow the only things I can seem to eat without too much negative reaction is baby cookies, oatmeal, apple sauce, white rice, fat free yogourt, fruit snacks, cranberry juice, no alchohol of any kind. NO fat from meat products, even fish. Don't dare try any real meats. So sick of feeling sick and so tired of having no choice of food. Does anyone have any suggestions. I live on a small island in the Caribbean without medical care really. I would appreciate any advice.
Should I be totally off protein as I am, or should I be trying some.
I am also anemic.
Should I be totally off protein as I am, or should I be trying some.
I am also anemic.
I was experiencing horrible stomach pains for about a week this was back in May 06 I went to the hospital on May 24th 2006 and they told me I had "Bad Gas" well I didn't feel any better at all by the next day so I went back on the 25th. I didn't have bad gas at all.. I had pancreatitis.. I was admitted right away, I had 3 endoscopies 2 ERCP's and no reason for my pancreatitis. Hyda Scans of the Gallbladder came back normal every time. I couldn't eat or drink for 3 months. I wasn't discharged until the end of August. Basically the doctors told me there's nothing they could do.... It's now been over a year since I've been diagnosed and still suffer from it. January 2007 I had Ultra Sound of my gallbladder which they found stones and sludge. I had my gallbladder removed in May 18 2007 a few days short of a year later, it hasn't changed anything. I'm on Enzymes to help digest my food and I feel as if I'll never have my life back. I'm only 22 and feel as if my life is ending.. I lost my father when I was 18 and my mother a few days short of a month after I was discharged from the hospital in 06. I eat what I can but it's so hard to eat without getting pain.. Chronic Pancreatitis is something I wouldn't even wish on my worst enemy.. Has anyone ever had this go away???? :'(
I went to the hospital sunday with severe pain right below my chest,
they did xrays and admitted me, they then put me on a liquid diet and did a cat scan and found he pancreatitis I have no idea what to eat i am 31 years old and i do like to drink alcohol occasionally but i dont een want to smell it at this point thinking about the pain i am hungry but dont know what to eat with out pain coming again all I have been drinking is water..
any advise out there for me..
they did xrays and admitted me, they then put me on a liquid diet and did a cat scan and found he pancreatitis I have no idea what to eat i am 31 years old and i do like to drink alcohol occasionally but i dont een want to smell it at this point thinking about the pain i am hungry but dont know what to eat with out pain coming again all I have been drinking is water..
any advise out there for me..
I'm recovering from my 5th attack. The last one prior to this was when I was 20. I'm 29 now. I was very careful with my diet through my early 20's, but lately I have been slacking, drinking and eating large fatty meals.
I had my gull bladder removed when I was 17, I had a gazillion tests and still they found no reason.
I'm going back on the low to no fat diet, with no alcohol. It's going to be hard, but there are things to eat, it's hard to eat out. But eating at home is pretty simple, just buy low fat or fat free foods. I would give some good examples, but its been so long. I'm going to have to re learn it all.
Small portions are a very big priority, and hard to do for someone like me who loves a big meal.
I had my gull bladder removed when I was 17, I had a gazillion tests and still they found no reason.
I'm going back on the low to no fat diet, with no alcohol. It's going to be hard, but there are things to eat, it's hard to eat out. But eating at home is pretty simple, just buy low fat or fat free foods. I would give some good examples, but its been so long. I'm going to have to re learn it all.
Small portions are a very big priority, and hard to do for someone like me who loves a big meal.
Hello everyone..My heart grieves with you all...I feel so badly and my prayer is that you are all healed. I write today because I have been going through something for about two weeks or more and am in the process of testing...I am frusterated as I see many symptoms on here that mimic mine. Mine started out early in the morning upon awakening and it was severe pain in my abdomen...right in the middle where your navel is...The pain was intense and radiated around my entire stomache...It was a different pain...like my muscles were being pulled...It then traveled to my back...I went to the doctor and He ran blood tests, urine cultures, exrays. Then said my gall bladder looked fine, and my appendix also. He said all my blood levels were fine and that I should take this antibiotic to be sure of an unseen infection. I got no better and the pain radiated up my back to mid section. The pain subsided in my stomache but left me with extreme belching and bloating...THe new doctor told me that it looked like I may have a gall bladder issue and that if this new med he was going to give me didn't work then I should come in for an ultrasound of my gall bladder. The new medacine was for acid reflux and ulcers. I took it and to my surprise the symptoms seemed to alleviate but the back pain stayed a little...I had one good day and then my stomache started acting up again and I started getting nausiated...I never vomited but nausea is severe. Then I started becoming very weak....tired all the time...Then I started getting diarhea and its been green in color. Along with that is a severe headache and I am wearing out the tylenol. I called the doc and moved up the ultrasound date and am now waiting...Did anyone of you guys get any of these symptoms?? The color of the stool is really confusing me...
Thanks so much.
Firebride
Thanks so much.
Firebride
I'm 39 yrs old and had my first attack in August. I spent 2.5 weeks in the hospital watching the summer go by through my sealed windows.
The Attack:
I had symptoms similar to all who have posted. Tummy pain that built, did not recede. Vomiting. I thought it was food poisoning at first. Then I got cold sweats and clammy skin. I was in intense pain that made it hard to talk or walk. No position was comfortable. My wife drove me to the ER after we called a Nurseline. The car ride was short but jarring. Once in the ER, I sat uncomfortably, sweating, freezing, shaking and pale. Less than two hours after the attack began, I was already totally dependant on my wife's care (she's my rock, by the way).
The ER docs recognized it as pancreatitus at once. They were very cocerned with my pain level and, within minutes of being seen, I was getting an IV, anti-biotics, a PCA (morphine drip) and was reading an info sheet they gave me about it. Blood tests confirmed it. My lypase level was 8900. They pumped fluids into me at 250ml, nearly double the normal drip rate. They kept this up for a week. Oddly, I didn't go to the bathroom for a week and a half. Nothing, despite all the fluids. They would listen daily for bowel sounds. Nothing.
The pain subsided gradually. While they "rested" the pancreas, I felt occassional sharp jabs near the naval and the bottom of the rib cage. These later became more of a persistant ache that I still have today, nearly 3 months later. I had CT scans, X-Rays, ultrasounds galore but they couldn't find a cause.
I don't drink, have no family history of pancreatitus, am healthy and have always eaten lowfat. They called it an idiosymatic case and told me that a fair percentage of these are never explained. Bummer.
The Hospital:
I was NGO for over a week, being fed by an nasal tube and later with TPN when I complianed that the tube feeding left me feeling leaden. I had endured inserting the tube (the radiologist looked like a villain from Austin Powers in his nehru-collared lead-sheilded outfit. All he needed was a cat and a scar to complete the look), but taking it out made me gag. I had a PICC line installed so they could take blood and give IVs more easily. After a few days, I was moved up to a clear-liquid diet (tea and broth), later a low-fat regular meal. That first sip of broth was a banquet in a little plastic cup!
I was there long enough to become friends with every nurse and aide on every shift. I knew their schedules and their quirks. I saw an army of GI and other MDs. Every four hours they would come in to take vitals. The only good news was that my blood pressure was much lower than my normal hypertensive self. I learned to take sleep on a 24 hour schedule as I was awoken several times during the night and early morning. I still wonder how people get the rest they need to heal under such scrutiny. Every eight hours or so the first week they took blood. The last week I was there, they checked my blood sugar so often my fingers had as many poke bruises as a strawberry has seeds. I had two or three insulin shots (barely felt them).
Staying Sane:
A sanitation engineer told me he didn't want me to loose touch with the world (this floor of the hospital had no Wi-Fi) so he brought me a newspaper every day when he cleaned my room that he had bought. I had my laptop so I could watch DVDs. I read everything. I had a stack of magazines. A doctor snuck me a movie from the on-call lounge. I tried to write that great American novel I have in me somewhere but was distracted by, well, everything. I was bored...
I slept often at first, dozing off during family visits in the middle of conversations. I don't think I was awake more than 20 mintues at a time.
I didn't feel up to visitors for the first week and asked folks to hold off on visiting, but I got some surprise visitors anyway. My daughter was a bit scared of the machines and tubes surroundng me--she'd hug my knees gingerly, but get no closer than she had to. In addition to holding our home life together, my wife helped me shower every few days--not easy to do trailing a giant IV stand with a three-screen monitor, bags, bottles, pumps trailing along. She did an amazing job as this was just as hard on her as it was on me.
I gave myself quick sponge baths when I was bored. A nurse was nice enough to fill a plastic vomit tub with hot, soapy water so I could soak my feet. Ahhh...the spa treatment. I went through a bushel of those little hospital bootie-sock things. I tried to strike gallant poses in my hospital gown. Again, boredom.
I did fine on the morphine, even after nearly 3 weeks of it, but my wife said I was a bit curt and irritable. After a few weeks, the morphine was giving me such vivid, cartoon-like, intense dreams that I began to fear going to sleep. At my request, they reduced my dosage.
Finally, as my diet improved, body functions came back online and pain dwindled to a dull pulse, I was discharged just after Memorial Day.
Home Again:
Now I'm home, back to work and on Pangestyme 3@3/day, Protonix (pH reducer) 1@ 1/day, and Percocet (rarely use it).
I went from 212 lbs to 174lbs at my lowest. Now I'm hovering about 180. For perspective, I haven't weighed under 180 since I was 15 years old.
I sometimes had to pace myself doing daily chores as I tired quickly. A trip to the grocery store tuckered me out. My strength has returned in large part, but I'm not 100%. Weeks of laying about can do that to you, eventhough I tried to stay active in the hospital by taking lots of walks (unless the naseau was too bad).
I've only had one incident that put me on the phone to the on-call doctor late one night--jabbing pain that was the worst I've felt since the attack. It went away within the hour. Probably a pseudocyst, he said.
I've since had an EUS done that found a narrowing in the ductwork leading from the pancreas. No gallstones, no sludge, no micro-stones or crystals. Just some odd shapes in the tubing I was born with, apparently. That means this is probably chronic. I still don't know why it happened now--at age 39. I read someone else had their first attack at 60, so I suppose it happens.
I am meeting with the GI docs in a few weeks to talk about next steps.
Eating Out:
Restaurants can be evil places for pancreatitus sufferers, I found. I had a hard time finding ultra-low fat fare for awhile, but I've managed to find some places that offer decent food that's under 8g fat, although I only consider under 3g as actually ultralow fat. So I eat part of the meal. So far, no issues.
The large family-eating chains (Applebee's, Chili's, etc) have low-fat options. In the Midwest, Green Mill has a great Mediterranean Chicken Sandwhich that is 6g fat and I'd order it even if I didn't have to. I found that some "healthy" restaurants do not necessarily offer low fat.
The trick is not in the ingredients, but in how they prepare them. I ask that they don't use butter or oil in their food prep. I also check nutrition info for restaurants online--holy cow, most dishes were super-high in fat! Don't think that just because it is grilled it is OK--I found grilled chicken dishes and salads with 80+ g fat! Appetizers with 230g fat. That's before you start on the entree. Some restaurants didn't have single entree with under 50g fat. Eat out 3 or 4 times per week and you too can have pancreatitus!
Eating In:
It is easiest to control your fat intake at home. There are lots of fat-free cookbooks. My favorite is Steve Racihlen's "High-Flavor Low Fat Cooking." Lean Cuisine's Teriyaki Rice Bowl only has 2g fat and is pretty filling.
There are also many prepared foods I've tried: breakfast cereals, frozen waffles and oatmeals. Be careful of fish--some are very high in fat. Sandwiches can be made with fat-free mayo, mustard and other sandwich spreads. We got creative and found I have more options than I thought, even fat-free: stir-frys, chicken cooked in fat-free salad dressing or marinade, rice, noodles, superlean beef, top sirloin kabobs, spaghetti with red sauces...
As I write, I'm making some "No Pudge" Fat-Free brownies. I also have low-fat frozen yogurt and light ice cream (which can have even less fat than frozen yogurt if you're careful with portion size). I get Eddy's blended chocolate/vanilla ice cream/yogurt and pour on the Hershey's sauce when I have a sweet craving (about 4 g fat). Angelfood cake is fat free.
I used to drink nothing but Diet Coke but haven't had one since the attack--they taste different to me now and I don't know if they interfere with the Protonix. I live on water, coffee in the AM and iced tea.
Well, that was cathartic. I should stop. I hope you all find your way and keep your spirits (and your pants) up.
Roy
The Attack:
I had symptoms similar to all who have posted. Tummy pain that built, did not recede. Vomiting. I thought it was food poisoning at first. Then I got cold sweats and clammy skin. I was in intense pain that made it hard to talk or walk. No position was comfortable. My wife drove me to the ER after we called a Nurseline. The car ride was short but jarring. Once in the ER, I sat uncomfortably, sweating, freezing, shaking and pale. Less than two hours after the attack began, I was already totally dependant on my wife's care (she's my rock, by the way).
The ER docs recognized it as pancreatitus at once. They were very cocerned with my pain level and, within minutes of being seen, I was getting an IV, anti-biotics, a PCA (morphine drip) and was reading an info sheet they gave me about it. Blood tests confirmed it. My lypase level was 8900. They pumped fluids into me at 250ml, nearly double the normal drip rate. They kept this up for a week. Oddly, I didn't go to the bathroom for a week and a half. Nothing, despite all the fluids. They would listen daily for bowel sounds. Nothing.
The pain subsided gradually. While they "rested" the pancreas, I felt occassional sharp jabs near the naval and the bottom of the rib cage. These later became more of a persistant ache that I still have today, nearly 3 months later. I had CT scans, X-Rays, ultrasounds galore but they couldn't find a cause.
I don't drink, have no family history of pancreatitus, am healthy and have always eaten lowfat. They called it an idiosymatic case and told me that a fair percentage of these are never explained. Bummer.
The Hospital:
I was NGO for over a week, being fed by an nasal tube and later with TPN when I complianed that the tube feeding left me feeling leaden. I had endured inserting the tube (the radiologist looked like a villain from Austin Powers in his nehru-collared lead-sheilded outfit. All he needed was a cat and a scar to complete the look), but taking it out made me gag. I had a PICC line installed so they could take blood and give IVs more easily. After a few days, I was moved up to a clear-liquid diet (tea and broth), later a low-fat regular meal. That first sip of broth was a banquet in a little plastic cup!
I was there long enough to become friends with every nurse and aide on every shift. I knew their schedules and their quirks. I saw an army of GI and other MDs. Every four hours they would come in to take vitals. The only good news was that my blood pressure was much lower than my normal hypertensive self. I learned to take sleep on a 24 hour schedule as I was awoken several times during the night and early morning. I still wonder how people get the rest they need to heal under such scrutiny. Every eight hours or so the first week they took blood. The last week I was there, they checked my blood sugar so often my fingers had as many poke bruises as a strawberry has seeds. I had two or three insulin shots (barely felt them).
Staying Sane:
A sanitation engineer told me he didn't want me to loose touch with the world (this floor of the hospital had no Wi-Fi) so he brought me a newspaper every day when he cleaned my room that he had bought. I had my laptop so I could watch DVDs. I read everything. I had a stack of magazines. A doctor snuck me a movie from the on-call lounge. I tried to write that great American novel I have in me somewhere but was distracted by, well, everything. I was bored...
I slept often at first, dozing off during family visits in the middle of conversations. I don't think I was awake more than 20 mintues at a time.
I didn't feel up to visitors for the first week and asked folks to hold off on visiting, but I got some surprise visitors anyway. My daughter was a bit scared of the machines and tubes surroundng me--she'd hug my knees gingerly, but get no closer than she had to. In addition to holding our home life together, my wife helped me shower every few days--not easy to do trailing a giant IV stand with a three-screen monitor, bags, bottles, pumps trailing along. She did an amazing job as this was just as hard on her as it was on me.
I gave myself quick sponge baths when I was bored. A nurse was nice enough to fill a plastic vomit tub with hot, soapy water so I could soak my feet. Ahhh...the spa treatment. I went through a bushel of those little hospital bootie-sock things. I tried to strike gallant poses in my hospital gown. Again, boredom.
I did fine on the morphine, even after nearly 3 weeks of it, but my wife said I was a bit curt and irritable. After a few weeks, the morphine was giving me such vivid, cartoon-like, intense dreams that I began to fear going to sleep. At my request, they reduced my dosage.
Finally, as my diet improved, body functions came back online and pain dwindled to a dull pulse, I was discharged just after Memorial Day.
Home Again:
Now I'm home, back to work and on Pangestyme 3@3/day, Protonix (pH reducer) 1@ 1/day, and Percocet (rarely use it).
I went from 212 lbs to 174lbs at my lowest. Now I'm hovering about 180. For perspective, I haven't weighed under 180 since I was 15 years old.
I sometimes had to pace myself doing daily chores as I tired quickly. A trip to the grocery store tuckered me out. My strength has returned in large part, but I'm not 100%. Weeks of laying about can do that to you, eventhough I tried to stay active in the hospital by taking lots of walks (unless the naseau was too bad).
I've only had one incident that put me on the phone to the on-call doctor late one night--jabbing pain that was the worst I've felt since the attack. It went away within the hour. Probably a pseudocyst, he said.
I've since had an EUS done that found a narrowing in the ductwork leading from the pancreas. No gallstones, no sludge, no micro-stones or crystals. Just some odd shapes in the tubing I was born with, apparently. That means this is probably chronic. I still don't know why it happened now--at age 39. I read someone else had their first attack at 60, so I suppose it happens.
I am meeting with the GI docs in a few weeks to talk about next steps.
Eating Out:
Restaurants can be evil places for pancreatitus sufferers, I found. I had a hard time finding ultra-low fat fare for awhile, but I've managed to find some places that offer decent food that's under 8g fat, although I only consider under 3g as actually ultralow fat. So I eat part of the meal. So far, no issues.
The large family-eating chains (Applebee's, Chili's, etc) have low-fat options. In the Midwest, Green Mill has a great Mediterranean Chicken Sandwhich that is 6g fat and I'd order it even if I didn't have to. I found that some "healthy" restaurants do not necessarily offer low fat.
The trick is not in the ingredients, but in how they prepare them. I ask that they don't use butter or oil in their food prep. I also check nutrition info for restaurants online--holy cow, most dishes were super-high in fat! Don't think that just because it is grilled it is OK--I found grilled chicken dishes and salads with 80+ g fat! Appetizers with 230g fat. That's before you start on the entree. Some restaurants didn't have single entree with under 50g fat. Eat out 3 or 4 times per week and you too can have pancreatitus!
Eating In:
It is easiest to control your fat intake at home. There are lots of fat-free cookbooks. My favorite is Steve Racihlen's "High-Flavor Low Fat Cooking." Lean Cuisine's Teriyaki Rice Bowl only has 2g fat and is pretty filling.
There are also many prepared foods I've tried: breakfast cereals, frozen waffles and oatmeals. Be careful of fish--some are very high in fat. Sandwiches can be made with fat-free mayo, mustard and other sandwich spreads. We got creative and found I have more options than I thought, even fat-free: stir-frys, chicken cooked in fat-free salad dressing or marinade, rice, noodles, superlean beef, top sirloin kabobs, spaghetti with red sauces...
As I write, I'm making some "No Pudge" Fat-Free brownies. I also have low-fat frozen yogurt and light ice cream (which can have even less fat than frozen yogurt if you're careful with portion size). I get Eddy's blended chocolate/vanilla ice cream/yogurt and pour on the Hershey's sauce when I have a sweet craving (about 4 g fat). Angelfood cake is fat free.
I used to drink nothing but Diet Coke but haven't had one since the attack--they taste different to me now and I don't know if they interfere with the Protonix. I live on water, coffee in the AM and iced tea.
Well, that was cathartic. I should stop. I hope you all find your way and keep your spirits (and your pants) up.
Roy
I suffered with pancreatitis for almost 11 years. Last year 9-22-06 I had my pancreas removed. A surgery term total pancreatectomy with islet cell transplant. My pancreas, duodenum, and spleen were removed and the cells that make insulin were harvested and placed on my liver. At the time of surgery I could no longer eat and had a feeding tube inserted into my small bowel, without surgery there was NO HOPE that I would ever eat again. I will list some links here to help others find the help you so desperately need. In 11 years of messing with this nasty disease I never saw anyone get better from procedures, only worse. The pain meds would only work for an hour or so, and then I was right back where I started. No one wants to have their pancreas removed, but it is the ONLY answer. The only people who EVER have some type of normal life are the ones who opt for this surgery, a partial pancreatectomy won't get it, within a few months the rest of the organ will be diseased and the person needs another surgery.
mypancreatitisjourney.blogspot.com This is my blog
health.groups.yahoo.com/group/PancreatectomySurvivors
health.groups.yahoo.com/group/ThePancreatitisPlace
health.groups.yahoo.com/group/TotalPancreatectomy/
If you can't click on these then type it in.. or go to yahoo home page, these groups helped me alot, I consider these people my friends.
Here is a link to the hospital where I had surgery, not all places are prepared to deal with this.
diabetesinstitute.org/diabinst/learnpancreatitis.html
diabetesinstitute.org/diabinst/learnpancreatitis.html
Dr. Sutherland at the University of Minnesota is the surgeon who has pioneered this procedure and done most of them in the world. Good luck I hope someone gets this information, and it changes your life like it did mine.
Mrs. Lisa Atwell LPN
mypancreatitisjourney.blogspot.com This is my blog
health.groups.yahoo.com/group/PancreatectomySurvivors
health.groups.yahoo.com/group/ThePancreatitisPlace
health.groups.yahoo.com/group/TotalPancreatectomy/
If you can't click on these then type it in.. or go to yahoo home page, these groups helped me alot, I consider these people my friends.
Here is a link to the hospital where I had surgery, not all places are prepared to deal with this.
diabetesinstitute.org/diabinst/learnpancreatitis.html
diabetesinstitute.org/diabinst/learnpancreatitis.html
Dr. Sutherland at the University of Minnesota is the surgeon who has pioneered this procedure and done most of them in the world. Good luck I hope someone gets this information, and it changes your life like it did mine.
Mrs. Lisa Atwell LPN
Hi guys,
Interesting to read your experiences about eating after acute pancreatitis. I came out of hospital two weeks ago after a three week stay with severe acute necrosing pancreatitis. I think I must be pretty lucky lucky because I havn't found eating that painful. My digestion is still a bit out of wack but I now experience no pain after eating. The only advice I was given by the doctor was to avoid fat and eat little and often. I have cut out virtually all fat (except for a little skimmed milk and a few low fat cookies). I have stopped eating red meat and just eat lots of fish and a small amount of chicken. Lots of carbs (rice, potatoes). I've had had a bad reaction to raw spinach and salads so stopped eating those. Amazingly through the whole experience I have lost only a little weight. It seems to be very important to eat small portions frequently rather than big meals. My meals are approx half the size of what they were before I became ill. Good luck everyone
Interesting to read your experiences about eating after acute pancreatitis. I came out of hospital two weeks ago after a three week stay with severe acute necrosing pancreatitis. I think I must be pretty lucky lucky because I havn't found eating that painful. My digestion is still a bit out of wack but I now experience no pain after eating. The only advice I was given by the doctor was to avoid fat and eat little and often. I have cut out virtually all fat (except for a little skimmed milk and a few low fat cookies). I have stopped eating red meat and just eat lots of fish and a small amount of chicken. Lots of carbs (rice, potatoes). I've had had a bad reaction to raw spinach and salads so stopped eating those. Amazingly through the whole experience I have lost only a little weight. It seems to be very important to eat small portions frequently rather than big meals. My meals are approx half the size of what they were before I became ill. Good luck everyone
I am living with much of what you all are describing-chronic pancreatitis, unable to eat much, severe pain, etc. Have had ERCP which made things worse, same with having gallbladder out. Am trying a high carb, low fat diet and pancreatic enzymes at this point. Getting very frustrated as this has been going on for over a year. I saw a specialist (supposedly one of the best in the US) and even he doesn't know what else to do. If anyone has any new suggestions, please let me know!! All I can say is lean on your family and friends as much as possible-you need them.]
Your aern't kidding. All they could tell me is have a nother dirnk and die! It was an obvious wake up call for me and would like to make a life change including diet. The web sites don'e even seem to help???