I posted on this thread 4 years ago about my son having the steatocystoma. since that time, my son has had 4 surgeries for surgical excision at the site. The first 3 times the surgeon removed the whole cyst, but it kept growing back. The final time, the surgeon removed the whole cyst and everything the cyst touched (including some bone). After that, my son's steatocystoma did not grow back- it has been almost 2 years. Good Luck to you all. My son's surgeon is named Jesse Taylor and is based at University of Pennsylvania Hospital in Philadelphia.
Hi,
Ive had SM for roughly 10 years, I am now 28 and although it does not bother me too much I have started (I think) to notice an increase.
My chest is covered and they are always flaring up, It is quite rare for me not to have a couple at a time inflamed. And like most other people I have read about, I try to pop them often leaving it looking worse than what it was. I've heard people talking about boosting your omega 3. Does anyone know if this actually works? I would love to be able to get them under control so they didn't keep on spreading.
Ive also heard of hook vein surgery and laser treatment, also I would like to know if this is a viable option remembering I have 100s spread out on my chest.
I would like to know also if anyone out there has tried acupuncture?
I live in Melbourne Australia so If anyone knows of anyone good to see about it, please let me know
Thanks everyone, I know i've asked a lot of questions but I would really appreciate any feedback you can provide.
Heath
this entire post gave me so much hope. thank you guys so much for posting such great stuff.
Hello Everyone,
I am a 21 year old Asian male living in San Diego. I was diagnosed with SM when I was about 18 or 19. I always noticed little tiny black bumps on my chest and upper stomach area as a little kid but they were never too noticeable. In high school, SM was never really too bad for me because I was on the wrestling team and had to keep my weight and body fat very low. It wasn't until I was done wrestling and not as on of strict of a diet that I began realizing I had a skin condition.
Upon entering college, I began noticing little bumps and blackhead like pimples on my upper stomach area. This really made me feel insecure. I went from being a good looking guy with a great body and a 6 pack to an insecure, bitter person suffering with SM. After I was diagnosed I felt like I died that day. I tried accutane and other acne meds but nothing worked. Hearing that there was no cure was so crushing and depressing. I then attempted to get them surgically removed. My doctor did not really know what he was doing and injected some sort of medicine directly into the cyst and then used a small knife to make an incision before squeezing out the cyst. This process left crater like scars on my stomach. Great, more scars and things to feel insecure about right? I really couldn't handle the fact that I had this condition at some points. There were times where I had to make up excuses to tell my friends about why I couldn't go to the beach or the day party that day. I would sit in my room alone and stare at myself in the mirror in anger and resentment.
Throughout college, I have developed anxiety and depression because of SM. There are times I have had thoughts of taking my own life. It was difficult to not have the same confidence I once had with women because of my condition. I have struggled with keeping relationships because of my insecurities. I see everyone else living their lives and having fun while I have this deep dark secret I try to hide everyday. It kills me that I can't take off my shirt anymore. For awhile I felt like working out and going to the gym was pointless because I couldn't show off my body. What really pains me is not being able to do everyday things. Even hanging around the house with my shirt off isn't an option because I'm so insecure about my SM.
I'm now in my 4th year and approaching graduation. These last 4 years have been fun but there has definitely been some dark times with SM. I am trying to stay positive now and trying new things to combat SM and gain back the confidence I once had. I am hitting the gym 6 times a week and eating clean. I also have started using tanning beds and this really helps to hide the unsightliness of my scars and cysts. I take a multi vitamin and fish oil everyday as well. What I'm doing seems to be working and I'm almost ready to finally reveal myself to the world. This is my first time ever really venting about the condition because only my immediate family knows.
I hope some of you can relate to this story and find some hope. I try to remember there are worse things I could be dealing with.
-Another lucky person with SM
you know i used to think i am the only one with this condition. i discovered mine some 8yrs back and have been to several clinics around my locality. its fostrating as i can not expose my body in public, always wearing a long sleeved shirt and so on. i jst wish every day this condition culd jst go. i really need help cos its killing me
Hi Perroloco how are you,
I just saw your post and have a couple of questions. I have them all over my chest and back, 100's of them. First of all like everyone else any Derm that I have spoken to tell me the same useless stuff. After they have been removed have you noticed them reappearing, also is there any scarring at all, also do you have to keep going back to your doctor every so often to get new ones removed?
If you could let me know the details of your doctor so I could maybe contact him to find out exactly how he performs the procedure. I would love to be able to take this information to a Derm or doctor of some sort and hopefully find onew which will do the same for me.
Thanks very much for your post, It has given me hope
is it possible to remove SM ?
is it possible to return all the cyst after the surgery ??
is it possible to return the cyst after the surgery ???
is it possible to return the cyst after the surgery ?
is it possible to return the cyst after the surgery ?
i have it in my arms :( since 13 years old .... i am now 17 and im so anxious about it :( . i am always depressed and hoping to remove it as soon as possible ..
I Have Steatocystoma Multiplex
Teatments
Hi all, I have had SM for roughly 15 years now and I am now ready to do something about it.
I have been in talks with a company in Seoul, Korea who say they have treated over 500 cases. I have sent them photo's of my condition and they have ran through time frames, costings and some knowledge of previous patience.
They said from the photo's that i have roughly 500 cysts on my chest, they can do around 100-150 per sitting. It costs $20US which is a lot of money but I am willing to do it.
It is a big decision and im not going to jump straight in without doing a little research.
I would like to know if anyone has had this procedure or knows of anyone that has? at the end of the day the decision will come down to how it looks with the scarring as opposed to just being left alone and have nothing done at all.
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If any of you have information on this I would love to hear it.
I think its good if we all share our information, hopefully between us we can come up with something that works, as it seems most of the derms are not willing to try anything.
Thanks, look forward to hearing from you soon :)