Me too, I have the same problem!!!
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I have had the same exact symptoms, in fact, I lost my voice for 3 months. The doctors have been of NO help, and yes, they seem to be on the bandwagon about silent reflux. I finally did Google "pain in the left side of neck" when another round of useless tests and unbelieving doctors kept calling it a "sore throat". It's NOT that at all. My pain is deep in the left side of my neck close to the thyroid and larnyx. What I found on Google was that it was called Thyrohyoid Muscle Syndrome. From one website. . . . "The thyrohyoid muscle is involved in swallowing and speaking by elevating the thyroid and pulling down the hyoid bone." In happenstance, I mentioned the pain and possible diagnosis to my new massage therapist and she knew what it was. She is now doing deep tissue massaging my neck, face, forehead, shoulders, sternum, and scapula areas. Within 15 min of the initial massage, I had my voice back. The muscles and tendons were so tight that it was strangling my vocal cords. The thyrohyoid muscle/ligament is so deep that it takes some loosening of the surrounding muscles before she can massage the thyrohyoid muscle. The pain upon swallowing is only on the "up swallow", not the down swallow. The hyoid bone clicks (as does my larnyx), but the hyoid shouldn't do that. The thyrohyoid muscle is what is used when up-swallowing. It is better in the morning, but after a day of swallowing and talking and using it as normal, it becomes painful at night. When I lay down, I find that after an hour or so, it has relaxed enough to lessen the pain and deep ache. By the way, the doctors thought I had Grave's disease, as mentioned by another reply here, because a CAT scan showed my eyes bulging. That was not the cause, my thyroid is fine. The massage therapist said that when her face is stressed her eyes 'bulge' too. She massaged my face and eye area and within 2 days of the initial massage, the bulging had disappeared. I was so depressed before I found a good massage therapist who could help. It is now 3 weeks and I've been able to talk the whole time. I've spoken to a physical therapist today, and she couldn't find anything that she could do to relieve the pain, but she knew what the muscle did and understood and recommended I stay with the massage therapist. Another thought, some of the nerves have been strangled too. Before the massages, the left side of my tongue "tingled" and pained at the root of my tongue. Now it doesn't. I hope some of this helps anyone on this thread that is still fighting the doctors with their shortsightedness and lack of information. I don't have the complete "cure" yet, but I'm well on my way, I'm not taking massive amounts of Aleve to stop the on-going daily pain, I do take it towards the evening for the lingering pain. I'm hoping that with further sessions with massage and a visit to a laryngologist who can make a definite diagnosis, I'll be on the way to complete, painfree life. Good Luck and talk to your doctor. This has been known about in a white paper by a doctor since 1954. Make your doctor aware of the syndrome.
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Hi, I have been reading this thread for quite some time. And I have the exact same pain as mentioned here. It started last year July / August 2015, with a pain in the left side of my throat. It's located near the throat or next to it (I think) it's a spot where I have to poke around then I can feel it. The pain. The ache. Some days it hurts and aches so badly. It has happened twice so far. Right now it's the third time. The only difference is when I'm looking straight and swallowing saliva or food I feel no discomfort but the moment i turn my head to the right and swallow it hurts so badly. Right now it's really aching badly. There's pain in my throat, my jaw, my teeth, my cheeks, my ears. But only on the left side. Previously the doctor tested me for thyroid but I didn't have it. And they just asked me to monitor. I've been taking panadols to ease the pain but I can't take much as I'm on warfarin. It's just driving me crazy I'm going to see the GP tmr. Anyone have any idea what it actually is?
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Then about 10 months ago something weird happened. I was feeling... I don't know how to describe it. 'Light headed' I guess. My vision and balance was fine, but it was like I was gonna pass out. I could feel my pulse in my ears and thought I was gonna tip over any instant. I went to the doctor- at first I thought it was worse after I ate, which I now believe to be a coincidence, but at the time I thought I might have diabetes since there is a little in my family. They ran a bunch of other tests too, and everything was fine, and it slowly got better over a month or so on it's own, and I convinced myself that it was nothing and it's over now. What makes me think it might be related or might have been some kind of ear thing is that my ear/nose... tube or whatever the hell it is was draining a lot on that side. I don't know if it was related or not, but thankfully once it receded completely I haven't had that again. I may have sorta freaked out about the whole thing... I wonder if that didn't make it worse. My dentist at the time I had the initial tooth problems I think thought I was a head case because I about came out of the chair when the spit sucker got too close to my infected tooth stump- I say stump because it had been root canaled and crowned, and then got infected anyway so the crown was removed, which is not fun at all. That thing was so insanely sensitive though; the air rushing through the spit sucker cooled it enough so that it felt like a full on bolt of lightning struck me right in my mouth. Anyway, he gave me... I don't remember what it was, some kind of anti anxiety medicine. Xanax maybe... I'm not sure. I know this isn't being 'sensitive' but I referred to them as 'crazy pills' and they sat for years until the second of the worst two days of this ordeal where I thought I was gonna pass out... and probably die. I took one and it seemed to help a lot. This is so embarrassing, but I think I got overly worked up about the whole thing.
Now the last few days I have a sore- well throat isn't quite the right way to describe it. It's in my neck, but it hurts when I swallow. Not at all like having a sore throat from a cold or strep throat. Again, not debilitating pain, but concerning. If I swallow a few times it goes away for a little while, but if I lie down with that side of my face down it hurts to swallow every time. It's also a little sore if I poke at my neck. All this is new, but I'm also once again experiencing my classic symptoms of it hurting where that tooth used to be and down my neck as well.
What the heck is going on with all of this... When I see other people saying they had an infected tooth removed, that really astonished me. That's what I've always attributed all this stuff too. It feels like it's still there and infected- minus the horrible sensitivity of the tooth itself, but my jaw and neck feel the same as when it was still in me. Every time I've been to the dentist I mention it and they take yet another x-ray, but they never see anything interesting.
One encouraging thing I've seen anyway is that a lot of people have had this for many years- many even longer than I have, and nobody seems to have had any serious complications. If it just hurts a little now and then I can put up with that. I've always just been worried it's a sign of something more serious. Particularly some kind of latent infection that will one day rupture or otherwise spread somewhere more important. I knew a few people who died or almost died form weird internal infections, so I know stuff like that can happen. Neither of them had any jaw or neck trouble, but it often concerned me. To see so many people with the same or similar long term symptoms really helps to worry about it less. Thanks everyone for sharing your experiences. Perhaps this is one of those cases where the only thing to fear is fear itself.
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