Survival Rates of Bone Cancer

HI, my name is Claire and My boyfriend was diagnosed at the end of August with Oseosarcoma he is 25 and i am 23. Its a very hard thing to come to terms with and he is being so strong, he s just at the end of the first cycle of Chemo and we are waiting for him to have an operation to replace his femur with titanium, doctors think his best chance would be amputation to stop it ever coming back but hes an absolute fighter and i know what ever his decision he with come through this.



Keep Praying

Love Claire

xxx

My son was diagnosed with osteogenic sarcoma on Mother's Day 1994. I don't remember what stage it was, but the tumor had taken over 1/3 of his femur at the knee. We went through what a lot of you have gone through. During his first chem treatment, the tumor visibly grew and yes, it scared us all to death, even his oncologists. They gave him less than a 50% chance of surviving. Over the next year, he underwent numerous chemo treatments for his protocol (we were in the hospital 3 weeks out of 5 every round) except for the break they gave him prior to his surgery.

We were lucky enough for the doctors to recommend the placement of a titanium prosthesis, done by an amazing doctor at UCLA. Dr. Eckhart and his team were absolute angels. The surgery was long and arduous, but it allowed my son to keep his leg and walk on it again. Prior to his surgery, we learned that the chemo killed 99% of his tumor. So between the amazing care we got, the horrible chemo that was pumped into his body, and the surgery, we finished treatment May 1995.

He has now been in remission for 15 years. He works as a restaurant manager and sous chef and is on his feet most of the day. He also works out almost daily, snowboards (we don't share this with his surgeon) and plays golf. He has had his prosthesis lengthened once to make his hips even and make it easier for him to walk.

I truly believe the key to his getting better, along with the excellent medical care we received, was that he always believed he would get better. Yes, he had bouts of depression. He would sleep the entire 5-7 days we were in the hospital, and usually vomitted in the parking lot prior to receiving chemo (he just knew it was coming). The smell of food made him ill, he dropped 60 lbs in 8 weeks, and yes he was bald. But we got through it, and are grateful every day.

After 15 years, I still cry about it from time to time. I feel very blessed that he came out of it. He lives across the country and I miss him every day, but he's now a grown man and doing well in his career.

Have faith, be there, learn to adapt, and you can get through it. He was sick at the same time as 7 other kids (only 1 of which also had bone cancer - we lost her). The moms all became very close, in fact, they had never had that happen before. We lost 4 out of the 8 kids -- it was a very tough year.

A lot can depend on the protocol they put the patient on. I don't know if they still do it as a lottery system, but we were told we got the good one and it seemed to be true.

Cancer sucks. Chemo sucks. The entire thing sucks. But attitude does amazing things for going through the process.

cancer i hate the word i have lost so many people to that horriable deceace . my mum had cancer 4 times. and beaten it. then5th time of cancer. she took a brain tumour 09 . and had the op and radiotherphy. but it didnt shirnk it. as the tumour took her life, and she died september last year at the age of 70 years old. i feel her age was against her . from the start. i have got a older sister who has battled breast cancer twice. and its came back the third time and this time she has terminal bone cancer. she s only 44 years old i cant beileve this. she has only a matter of moths to live. there is no cure for her . iam the only one left out my family.

My father has been diagnosied with Metastatic bone carcinoma in the lower lumbar. He started with a begin tumor in his belly, but it had already spreaded to his back by the time they remove it. (I don't understand how it spread, because I read that benign tumors don't spread)And we didn't find out until afterwards. He had the option for surgery to remove his tail bone, but he declined. He has had radiation and it made it worse. It has spread to his lungs. He can not stand, walk or do anything for himself unless it involves hand movement. He is doing chemo as of now, but I am really worried about his survival rate. Cannot find any info. on carcinoma in the lower lumbar region. If it has spreaded to his lungs does it mean he does not have much time left with us? Can you help me find more info. on this topic. Please.

Sincerley,

Desperate :'(

My Grandfather was diagnosed with bone cancer today. They believe it's in his left shoulder, lungs, and spine. They didn't do a full body scan just waist up. I'm terrified. I've been crying all day. I have no idea what to expect. Each cancer seems to but a little different. He says he's not going to do chemo because it made him sick when he took chemo for prostate cancer. However he will do radiation. I don't know much about either or if one is better than the other. I just really needed some support I guess. Don't know if anyone is going to read this or respond but at least I feel like I'm talking to someone that can relate and is trying to stay in high hopes and praying for their loved one. My heart goes out to all the cancer patients and their family and loved ones. I believe that my Grandpa is too strong mentally to let his cancer defeat right now and I know I need to stay positive and try to keep him positive as well. So keep your head up and stand strong. No one is in their battle alone. ~Autumn, Ohio

I have a 11 year old nephew who has osteosarcoma. He had his leg amputated just above his knee. He was in remission for 6 months and now his cancer came back in full force he has been going to cemo and all that other stuff any body know any one I can talk with who has osteosarcoma was in remission and then got it back who is still alive?

My mom just got diagnosed with it a few days ago...Merry Christmas right? :-( Well anyways she is being pessimistic and saying she will only live 2 more years...She is only 56. Is this true, or will she live longer?

In 97 when I was 32 I was diagnose with bone cancer in my left femur. An allograph presevered the limb. In 06 I had breast mets. Did chemo and radiation theraphy.

Now in Dec-10 I have a hot spot on my rib and a leision on my left breast that "appears begign" after tests. It's hard for me to believe it's begign and they want to repeat tests in 6 months. I have central pain throughout my body they are contributing to hypothyriodism and fibromeyalgia. Both of which I blame chemo for.

I am 45 years old. I live healthy and get my annual check ups. Early detection is the key to survival with cancer. If you feel something is wrong go get checked.

I was told that I have osteoscarcoma of the right jaw. I was so scare did not what I was going to do. I didnot know what it was U had never nheard of it before. But after I listened to the doctors and all they had to say and what was open for me to do. Well I went through 19 hours of surgery they took my jaw out and took my fibula from my left leg and put it in my right jaw as a replacement. I do not think they did the beast job they could but then when I look around and I see like one day a very young girl with her face gone I know then how blessed I am to look even lioke I do to day. But I have often wonder what my life leagth would be I hasve already gone through two lung surgeries and know they say it is back in my lungs it is pass the3 five year matk the3y always tqlk aBOUT. CAN SOMEONE PLEASE HELP ME WITH SOME ANSWERS IF THERE ARE ANY OUT THERE. IF YOU WISH TO TALK YOU CAN REAXH ME AT ***this post is edited by moderator *** *** private e-mails not allowed **
Please read our Terms of Use
PLEASE FEEL FREE IF YOU KNOW ANTTHING AT ALL TO TALK WITH ME.replace

my mom has been diagnosed with breast and bone cancer. she is in the last stages of her life she is 47. & they gave her 2 months to live in october of 2010. she is still alive 7 months. there isnt a set time and doctors cant tell you when you are going to die. only God knows. you just have to believe in him and have faith. my mom has shrunk 4 inches she is now 4'6, because of the bone cancer. her blood count was 45,000 when she first went to the doctor. they said if she wouldnt have came that night she would have passed away in her sleep that night. her blood count is now a lil over 140,000 which is starting to get back to normal. I am 15 and a sophomore, and the doctors told me last week they do not think there is a chance of her making it to my graduation. and she doesnt either..

Hi, I'm not from USA, so my english is not really well, I'm sorry for my mistakes. I was trying to find something about bone cancer in my country but the truth is that we have so small knowledge. My boyfrend told me that he has bone cancer, he would like to be alone with that. I'm really scary because he doesen't want any help. If someone could send me any x-ray photos or MRI, CT. I would like to comepere something, I'm studing medicine and in my humble opinion it's not a tumor but many small cystis. I need to talk to someone about that. Please help me !!
Bunny

i really hope that you take dr gerson therapy. go for it right away. don't waste your time pl. i beg!!!!!! i had gone thru. chemo is not an alternative.

ONE MORE IMPOTANT THING TO KNOW IS `DON'T EVER DO BIOPSY' IF IT STILL WASN'T LATE. IT ONLY WILL MAKE THE MATTER DEADLY WORSE. EVERY MEDICAL PERSON KNOW THAT.

I have a friend who is 14 turning 15 he has had bone cancer for years now. He had it when he was younger but it went away. a couple of years later it reappeared. The doctors said he was going to be okay after a couple of chemo and radiation treatments. Sadly they were wrong. He hasn't gotten any better or worse. If there's anything i can do to help him please tell me. I don't want to lose my best friend to cancer! Also the cancer has traveled to his lungs but there almost gone. Please help me i would love answers especially because we have been friends since birth!!

wow my nephew had limb slavage surgery four years ago. He had a recurrence in the lungs and the two malignant cancers were removed. After his surgery on his lungs he had a bone scan which revealed that it was in his neck pelvic bone liver and both legs OMG is he going to live? The tumor on his liver is the soze of an apricot. HELP