Hi. I'm 23 years old and suffer from sever endometrious. I have tried birth control pill after birth control pill, but my body adjusts to them after 6 months and then no longer works. I had a gnyno that told me the only thing I could do was try a more extreme treatment, Lupron, and stressed this was my only "real" option. It was horrible to say the very least. It didn't help my pain, I retained a lot fluid, had hot flashes that would make a volcano look cool, and uncontrollable mood swings. I was no longer myself, I was miserable all the time and I made everyone around me miserable. I told my doctor that I could not continue this course of treatment and that. I had just gotten married and the doctor then told me that I should have a baby, it would help my symptoms and this may be my only chance. It wasn't an option, it was more like an order. I did not try to get pregnant and since I moved I was able to go to a new doctor. This doctor put me on less aggressive treatment, but now the pill isn't working as well and I'm running out of birth controls to try. Depo does not work for me because of my von willie brands bleeding disorder, I've tried the patch as well. I do not want Mirana because it is like depo and can cause more problems then it solves and things like the nueva ring don't deliver the steady dose I need. I'm going to the doctor on Wednesday and all my researching still hasn't given me all the information I need.
I was hoping someone who has been on Lupron and/ or Synarel could share their experiences with me. It would be helpful to know if anyone who has had problems with lupron has switched to another similar treatment like synarel and have had a better experience or if the experience was the same or worse. All the information on the medications fail to compare the different gnRH to each other. This is very important to me because if these treatments do not work I have to decide whether to start trying to have a family now or having a complete hysterectomy. It's a decision my husband and I have been trying to put off for a while, but can no longer ignore. Thanks for an information anyone can give me.
I was hoping someone who has been on Lupron and/ or Synarel could share their experiences with me. It would be helpful to know if anyone who has had problems with lupron has switched to another similar treatment like synarel and have had a better experience or if the experience was the same or worse. All the information on the medications fail to compare the different gnRH to each other. This is very important to me because if these treatments do not work I have to decide whether to start trying to have a family now or having a complete hysterectomy. It's a decision my husband and I have been trying to put off for a while, but can no longer ignore. Thanks for an information anyone can give me.
HI there, my sister is on that and I didn't know that there were issues with it that you are talking about, so I would also like to see what other people posted. Can you tell me more about your symptoms? I would like to hear as much as I can. Thanks!
Hi. The symptoms that I had were dizziness, extreme hot flashes, swelling in ankles and wrists, sore breasts, drowsiness, and moodiness like you could not believe. For me the side effects were so sever I couldn't continue, but I tired for a few months. I couldn't do much because my ankles were so swollen that standing for any length of time became painful. I also was always either angry or crying. I personally couldn't take it. I was very lucky that my husband is a very understanding man, I can't imagine getting through it without him. You're sister is lucky to have you :-) Having someone to talk to really helps if the side effects are a problem because I felt like I was going crazy. I wasn't me anymore and I had no control over my emotions or how I was feeling health wise. Lots of women take this medication and tolerate the side effects well. The most important thing is how your sister is feeling. If the side effects become a problem then switching to another medication isn't such a bad idea. It can be emotional, I know I felt like I had failed somehow, and the doctor I had at the time did not help matters, but I had a good support system and they told me to do what was best for me. I hope that your sister has a better experience than I did. Good luck :-)
Hi Viperbunny,
How is your condition now? I know that there is no cure for Endometriosis, but it is manageable. There is a surgical way but that will leave you infertile. Did your doctor suggest surgery for you?
How is your condition now? I know that there is no cure for Endometriosis, but it is manageable. There is a surgical way but that will leave you infertile. Did your doctor suggest surgery for you?
Hi. Unfortunately surgery was not an option for me because also have von willie brands, a clotting disorder. The worse areas affected are mucus membranes, which the uterus is. The only real surgery option for me is a hysterectomy, but since I haven't had children yet I'm holding off. I will have a hysterectomy after I have kids (or if I an unable to). Right now I'm on orthotrycline and it's not bad, but the only symptom it really helps is the bleeding. I'm grateful for that, but I still pass clots that are quarter size or bigger. I can live with some of the uncomfortable symptoms, but I am in sever pain all the time. I have been on a pain regiment for about 2 years, but I don't want to be on it the rest of my life and have started weening off it. I have a few medical conditions and things have gotten so much better since I was diagnosed with hypothyroidism and put medication. I know that sounds horrible, but finding out I have this problem has helped my health tremendously. I was talking medications for fibromyalgia (sorry I can't spell), and now I am getting off those medications as well. My plan and my husbands is to get off all the meds except for my thyroid and acid reflux, wait until they're completely out of my system and then try to get pregnant. The endometrious has caused so many problems that I may not be able to be pregnant. I don't want to wait to long because the damage is only going to get worse. It would be a whole lot easier for me if I didn't want kids, but I can't give up on that hope. I will definitely have surgery as soon as I have no more use of it, lol.
Hi - I've had endo for years but refused to try Lupron because of the side effects. I had my uterus out 3 years ago which cured my symptoms for 2 years but then the cyclical pain started to come back (felt just like menstrual cramps - with no uterus!). Now on Synarel. At first it was great, I was totally pain-free and no side effects. After a couple of months now though I have some pain again and really bad night sweats and insomnia (hence this 1:30AM post!). The doctor told me I have to go off the Synarel in a couple more months (I think due to bone density issues?) so I'm trying to hang in there. Thinking about increasing my dose a bit since I seem to be still having cycles, which makes me wonder if it isn't quite suppressing my estrogen. Despite the night sweats (and I have to say, they are really bad, I rarely sleep through the night anymore) it has helped my pain a lot so I would definitely give it a try. You might also try a laprascopy (sp?) - from my experience and what I've read of others it is a temporary relief but could give you a few months pain-free in which to desperately try to get pregnant! :-D It doesn't hurt anything (except your belly button!), they just "clean things up".
Hi,
I am 19years old and have endometriosis. I have been through similar to you, from the pill, to Provera, you name it I've had it. My endometriosis is quite server, and I'm running out of options myself. I have it in my bladder, riddled through my ovaries, and some under my ribs. I have just gotten married and I am faced with a similar option of having children now or later. I am on synarel at the moment, like you I think I'm getting better but after a month or to, My body rejects the treatment. In my experience, Synarel still gives you hot flushes, still makes me moody happy one day angry the next. But after being on it 6months my bone density has decreased and I am having to wear a support around my wrists. I already have small bones, so its just made them worse. But it was the decision I was willing to make to get better.
I hope this helps you, in making your decision.
And if anyone can tell me what I should do next that would he good thanks.
God Bless,
J
I was diagnosed in 2009 so right away I tried to get pregnant. Succeeded after 6 months trying. Had baby in 2011 and the pain came back after 9/10 months of delivery. I was put right away on 3 months cycle of lupron. After that on Lovette pil. Every 2/3 years the pain will become excruciating again and my gyno gave me the lupron cycle. I have had no symptoms or side effects whatsoever with lupron. But I know not everyone is the same. My last lupron cycle was 2 yrs ago and I'm blessed the lovette has been working. Mild pain nothing aleve can't handle. For me in 2009 when I got diagnosed I didn't think twice to try for baby. It wasn't easy though cuz u have to bare all the pain all those months while trying to get pregnant and in my case I need extra hormones to get pregnant since I have ovulating problems.