Eventually, I finally found a Urologist who within 2 minutes of looking at me and listening to my symptoms diagnosed me as having bell-clapper deformity and he performed the surgery on me 2 weeks ago. I am still in recovery and unfortunately, I have an infection there at the moment (nothing to do with the condition) in the wound. But I'm confident that once this has all healed my troubles will finally be behind me.
I absolutely 100% recommend that you find a Urologist who will check for bell-clapper deformity. State exactly this to them, say that you would like at least exploratory surgery to find the real answer. If you're anything like me, and it seems we were in the same boat, then you will most likely have that. In all circumstances, this will require surgery at some point in the future if this is the actual condition (in which I am 90% sure it will be).
My name is Sam and you can see my previous posts above. Read them and see if your condition matches my own.
Best of luck to you and if you need any further information or help then please don't hesitate to contact me. If you'd like to email me then let me know and I'll give you my email address. Eventually, you WILL get this sorted out. I am in the UK and I can give you the urologist's details too if you are also in the UK.
I'm healed now and I'm pretty much at 90% with my testicles and movement. Let me know how you get on and if you need any more help then get in touch. Good luck!
If it isn't that then it could be fluid inside your scrotum maybe from an infection or anything. Either way go to the doctor's and see what they say... Best of luck!
thanks for answering man ... im much better now .. discomfort and scrotal tingling and weird pulled strings like feeling on the sides of testicles used to bother me .. i was on cipro for 10 days then everything went away i was happy then 3 days later i masturbated twice then sudden pain when i went to sleep .. went to the doc said i have bilateral varicocele and epididmitis also hydrocele .. gave me levofloxasin for 5 days then ciprofloxasin 5 days then tavanac 5 days .. at the end i was still in discomfort the doc said i had to stop taking no more antibiotics .. did urine test and blood test nothing came positive for bacteria .. then went to dozen of docs did 5 of ultrasounds 1 mri for pelvis area .. 2 = first one and fourth have shown nothing .. 3 = shown varicocele .. 2 =shown hydrocele and spermocele .. mri= have shown no sign of hydrocele and wverything is fine ..
btw the mri was the day after ultrasound imaging which showed varicocle ,hydrocele and spermocele .. i asked the doc if hydrocele go away he said never .. next day mri shows no sign of hydrocele ?!!!
long story short i was to fed up with docs and diagnosis half of them says i have varicocele which cannot be felt in physical examination by all of them but by ultrasounds the other half says even with ultrasounds that its nothing and cause nothing and its just a job ethics to writes these in ultrasounds report..
i asked my old mom which has lot of experince she said i have to go for an old lady famous in herbal medicine i went there told her and she prescribed herbal treatment .. ive been using it now for a week and i could tell that most of discomfort and pain went away .. she told me i have to take it for a month .. i can say the the only thing im feeling now is scrotum burns and dryness .. im going to check it in hospital .. another thing is the look of a testicle hanging up and the other hanging way down .. im thinking now that its a skin related problem maybe .. i will find a way for the skin to cure then see ..
if anyone needs that herbal medicine just tell me .. its an arab old herbal medicine for uro problems .. i will be glad to help .. i will update u later
Would you be willing to share specifics of your symptoms? I was diagnosed with epididymitis about two weeks ago and I tested negative for std and infections. My right testicle is sitting abnormally high and feels very awkward and out of place. There is pain that comes and goes especially with physical activity and strain. I even took a couple of days off from work to try to rest like I was told to and as soon as I returned to work the pain and discomfort returned. The position of my testicle has never returned to normal since this started and I’m really confused and it’s taken over my life. I’m beginning to think I was misdiagnosed and there may be something else wrong. I plan on making an appointment with a specialist this week, but any information you could provide in the meantime would really help.
Hi there,
Sam here! Yes no problem, all the above response posts are actually myself responding to others.
My symptoms were basically what you have. I was misdiagnosed for epididymitis and orchitis for about 11 months until the Urologist (the 4th one I had seen) correctly diagnosed it as torsion. I had the surgery back in August 2017 now to correct it. Basically, my right testicle was up way too high and was "sitting" wrong. I had a lot of pain in both and my left wasn't sitting correctly too.
When I spoke to the surgeon after he had opened me up he said that my left one was moved around a little (not my right surprisingly! The left was pushing on the right maybe? Who knows!?) but the surgeon confirmed that I did indeed have bell clapper deformity (which means you have no "connections" between the testicle and scrotum wall, so they move freely inside, which is not what you want as this is why they "twist") and he stitched them back into place. The surgery is really straightforward and lasts only about 45 minutes or less.
The issue I had was getting a doctor to actually diagnose it correctly. Also, my testicles would often change position, length and pain etc. It was constantly different. The only continuous problem was the wrong positions, pain and length (meaning if it was too high or at a normal height). It did seem that often my left would move but the right would just stay still. It was a while ago now so you're better reading above to see my exact symptoms because I'm probably not going into enough detail, however when I wrote above I was literally experiencing it at that exact moment so it'll be accurate.
I was really scared of getting surgery and I just didn't want any of this to be true. Honestly, I was petrified and had an absolutely terrible 2017 because of it. To put it in perspective I was teaching English and living in Vietnam, I'd only been living there with my Girlfriend for 5 months. Because of this, I had to fly back home to get the surgery (I hate flying too haha!). The entire ordeal was very very stressful for me. I couldn't exercise or move much. I had a constant fear of dying in surgery, having surgery in Vietnam (rather than the safe UK health standards) or flying home. Having to pack all our belongings, travel for 20 hours, find a new place to live again in the UK. Even then it took me another 10 months until the surgery.
But, that's all beside the point. The testicle wasn't right. I knew from the get-go that the position had changed. I tried to tell doctor after doctor. I had several ultrasounds, courses of antibiotics, doctors feeling my balls etc etc. You know in yourself when something isn't right. Don't panic though, honestly, it wasn't that bad in the end and you'll be fine. At least it's not something majorly serious like a heart attack lol! Just stay positive and focused and make sure that you keep going to different Urologists. Mention torsion to them, say partial torsion particularly and bell clapper deformity to them.
Doctors tend to have this belief that EVERY single case of torsion results in utter agony, swelling of the testicles and emergency surgery. This isn't true and unfortunately for me I know from experience. Most cases (probably like 95%) it is true and the guy will have a quick diagnosis and treatment. The unlucky 5%, like me, have to go through misdiagnosis, wrong drugs etc until we are treated. Not to mention if you're above the age of 25 they will say it is very rare. Again, I'm 30 so I, unfortunately, fell into this category and as you can see just from this website alone many other men are above that age that get this. The oldest from my research was 67! So it really can happen at any age.
I hope that you don't have torsion, but it seems from your symptoms that you do have that. It's basically the same as me. Best of luck getting it fixed. If you need any advice just reply here and I'll do my best to get back to you as quickly as I can. I'm in the UK so if you need any doctor recommendations then I can also help there too.
Sorry for the long essay haha! Take it easy and get well soon... :)
P.S. Wear tight-fitting briefs. No boxer shorts anymore. Also if possible buy some compression shorts for like cycling/sports and wear them too. I literally wore this for 10 months nearly at all times except when washing in the shower! Haha! It will ease pain though and allow you more movement. Even though now I've had surgery I still wear briefs (no compression shorts anymore) and probably always will for the rest of my life now as it is more comfortable for my balls! Anyway, it worked for me and definitely helped a lot whilst I was going through all the misdiagnosis.
Best of luck again! Peace mate
guys i did an ultrasound .. it showed varicocele on the left side and it is 5.05 mm wtf ?!! 3 weeks ago it was 2.9 now its freaking 5.05 ?? the report says that i have non significant reflux also no sign and evidence of varicocele on the right testicle while on the ultrasound 3 weeks ago it showed 2.7 varicocele ?!!! guys im so confused what the hell is going on ?? .. im the one who wrote the reply above .. 2 weeks left for herbal medicine to finish and im thinking of going to a doc to figure out what happening .. i feel discomfort from time to time its like chills in scrotum and strings like in the area between my thighs .. also im feeling like my left testicle is smaller than before .. also i feel like my libido isnt as before too .. maybe im wrong .. im ok now .. going to doc this saturday .. any idea guys ?
update : there was an ultra sound mistake .. it was not 5.05 it was 2.05 .. so i think the herbal medecine is working .. i feel great now .. also i feel like there are getting back abit to normal .. no discomfort or pain .. just alittle bit of chil in the base of scrotum .. i think its going away .. my doctor kind of interested in what im eating .. most medecine and antibiotics didnt work .. there is still 10 days left to stop .. if it went away that old arabian lady saved my life .. i will send an email to my doctor with ultrasound report .. also he asked about the herbal medicine ingridents and i answered it was bunch of desert plant have been known in old times of treating most urine tract .. im arabian from arab country im not trying to sell anything .. im willing to pay for the medicine if some of you needs it .. i swear to god is working not BS .. i never been a believer of herbal treatment but guess what its freaking working .. my doc is american /canadian board certified and have no clue why im feeling pain and discomfort .. guys i will be glad to help u if u want the medecine .. i will do ultrasound again after two weeks hopefully everything is ok .
What is the treatment to fix ?
update : a week ago i did and ultra sound it showed no sign of varicocele .. left hydrocele and spermatocele .. right is clear .. its so confusing i dont know why its shifting once its the right then suddenly left .. ive been on herbal medicine over a month now .. two days ago i was so happy i thought im back to normal again .. testicles just like before all the time sex drive good and no pain at all just slight numb maybe 5 days ago .. i was on hold from masturbation .. once i masturbated in the evening after aprox 5 hours started to feel heat on scrotum .. it got loose for about an hour or more then seeing a lump on right testicle again .. right hanged a bit lower than left (not like before ) kind of improvement .. this morning felt a bit pain on right and left sometimes .. not kind of pain i was experincing before .. i think like if the testicles are active producing testestorone .. im continuing my herbal medicine for another month .. did some test kidneys functions and lever functions are ok .. i hope get better soon and back to normal .. im confused why whn i masturbate get that heat and loosen scrotum but when i had a wet dream non the things happened ?!!! hope i find answers and get better soon .. i will get back at u later