25 year old Never had a menstrual cycle - what's wrong with

U guys r sooooo lucky

hey everyone.... I`m 18 and at age 16 I found out I had mrkh syndrome. ( I Will never have a period) it affects 1 out of 4500 to 5000 women. I found out from an MRI.  Your ovaries still function so you can do surrogacy or adoption... Hope this helps maybe you can ask your doctor about it.

I am 32 and I have never had my period.  My mother wanted to see a doctor when I was in my teens, but I avoided the situation.  I was embarrassed and I still am; I am most embarrassed when I go to the doctor and they question me about when I had my last period- mostly I lie and tell them a fake date because I am sick of explaining the situation.  At this point in my life, I do want to get this checked out, but I have to wait until I have insurance again.  After reading this thread, though, I am second guessing if I want to know..It's so difficult for me, though, to see people with kids and realize I will never have biological children :(

i am 18 i had my first period 14 months ago and then one for months later but none since then. im really scared and dont want to talk to anyone about it face to face because im scared ill be told i can never have children and that would destroy me. i am tall and thin though so does anyone think i may be fine? 

Hi im 35 and i have never gotten my period. I also was too told i would be a late blommer. It still never happend. I all want children I have been married for 8 years. I went to a doctor. they told me my brain doesnt send the signals to my ovaries. I dont get a period because my hormons. I had tons of test. Im know seeing a new doctor. He said you dont have to have a period to get pregnant you just have to ovulate. I just started taking 100 mg of clomid. Im not shure what is gonna happen. I pray it all works out. has anyone herd of taking clomid when you have never had your period. Does it work. Will it make me ovulate? good i hope so. I want children so bad. Its the worst feeling in the world. I know you all understand cause you dont understand unless your going through this your self... Itss heart breaking and its like why me? what the hell did i do to deseverve this.

I am 30, I have the same problem. My mother took me to a gynecologist when I was 17, because I never had my period. The Doctor examined me, I went through blood tests, Ultrasound and Radiology. the results were: Ultrasound results= I dint have a uterus. then the sent me for CT scan. CT scan results= My uterus is not there, or may be it is too small. it dint show up in the scan. Now my blood test showed that there is nothing wrong with my hormones, and I am healthy woman. It is just that I wont be able to produce a baby as it doesn't have any place to grow for 9 months. yeah, but if ever me and my husband plan to have our own baby (who looks like us with the same DNA), we will have to arrange for some other woman, who can carry our baby for 9 months in her uterus. so it goes like, they will take my eggs, and my husband's sperms, and 1st grow it a little in a test tube and then transfer it to another woman's uterus. however this procedure is expensive. Adopting a child would be another option. There are a lot of children who are living without parents.

I am so very much happy that I am not the only one who is suffering this.... I have been fighting this emotionally and it is not bearable.

I hope it helped.

I am 30, I have the same problem. My mother took me to a gynecologist when I was 17, because I never had my period.
The Doctor examined me, I went through blood tests, Ultrasound and Radiology.
the results were:
Ultrasound results= I dint have a uterus.
then the sent me for CT scan.
CT scan results= My uterus is not there, or may be it is too small. it dint show up in the scan.
Now my blood test showed that there is nothing wrong with my hormones, and I am healthy woman.
It is just that I wont be able to produce a baby as it doesn't have any place to grow for 9 months.
yeah, but if ever me and my husband plan to have our own baby (who looks like us with the same DNA), we will have to arrange for some other woman, who can carry our baby for 9 months in her uterus. so it goes like, they will take my eggs, and my husband's sperms, and 1st grow it a little in a test tube and then transfer it to another woman's uterus. however this procedure is expensive. Adopting a child would be another option. There are a lot of children who are living without parents.

I hope it helped.

I am 23 years old had my period on at 18 I drank birth control with a dr. prescription. I stopped the pills a month after. I had the same concern as you do. I'm going to a specialist soon because my hormones are fine.

same problem with me

hi I just checked this part off the website out and I was shocked to seel all this! I am currently 16 and I got my period 3 years ago!!

Wow, I am very surprised to see so many people in such a similar boat as myself...

I am 27 (and turn 28 in about a month), and had my first period at the age of 14. Even though I DID ride my ass off in sports up until the age of 17 (when I found out I had a serious spinal condition which would later require surgery, which I had on my 20th birthday of all days...) I STILL continued to have regular cycles. I am an "ectomorph" meaning I have generally "small" body type, and am also 5" 8' with very long arms and legs but more of a short waist... I am a model, too, though in all honesty my job doesn't mean nearly as much to me as my health by a LONG shot... Anyway, I had my last period aproximately 1 year and 2 months ago... I remember that, while they always arrived on schedule (usually around the 20'th of each month), they had been getting "lighter" and lighter in the months prior to the last period I had... and d**m and I ever SCARED... I also still wear a 32A bra (it was as though my breasts never matured or something; I've had trouble finding bras in regular stores for YEARS because typical adult women don't wear 32A bras..) I too am also experiencing the "excess facial/body" hair that some have previously described, not to mention the weight gain in my mid-section... IN the past year, I gained 22 pounds out of NOWHERE, ALL in my belly/tummy area, without changing one single thing in relation to my eating habits/exercise routine/anything else. I've even tried what many would call "literal starvation" for weeks at time and have still had no successful weight loss [unfortunately my career agents take my weight very seriously, and for women "periods" ARE a girl/woman's way of "cleaning out their bodies" which is what gets rid of water weight, bloating and excess fluids, among other things.

I am finally seeing someone today, and would have sooner but have been scared as a type of "cancer"of the female organs runs in the family and has caused deaths in mine... BUT, I want to make sure I add that my most recent symtom that started around two months ago is abdominal pains in "those" sections where the female organs are located... the pain has gotten worse and worse until, as of a few days ago, I can no longer take it and have a real, serious feeling that something serious *is* wrong with me... And, from other reading I have done, it would also seem that I have experienced early-onset "Menopause" as the symtoms fit (hot flashes, mood swings and the weigtgain, among others). Another crazy thing is that in the past year I began having "acne" like I used to back when I hit puberty, along with another crazy thing which is that my immune system keeps "crashing"... like, I have been sick ALL the time, from both repeat infections that go away only to come back as little as one week later, to catching colds, flu, strep, staph infections, etc, all with little to no exposure to a known source.

Also (even at 27 going on 28) I am stil a Virgin with a capital "V" as I've always believed in "saving myself" for marriage, and I too never wanted to be poked/prodded when I was younger for, yeah... those reasons, lol... For a while I would say and did say, starting in my late teens, that I didn't want kids but stopped feeling that way many years ago, only to now repeatedly torture myself with thoughts such as "I could have but missed my chance, did I do the wrong thing, should I have not waited...?"... I PRAY that it is hormones or thyroid disorder or something -- ANYTHING -- that can be cured/helped with medications or even surgery if that's what it takes -- ANYTHING but what I'm afraid it is -- as I am truly scared, so very frightened, that I may have ovarian cancer & a uterus packed with blood&other random fluids as my aunt, grandmother & great aunts did which led to them either having all of their female organs removed, their owns deaths (for those who would not give up), and even the death of their newborn babies followed by the organ removal... I always knew my body type was never quite "normal" as it's always been so "childlike" in spite of how tall I am, and to anyone reading this who can relate and who is still having periods, PLEASE get yourselves checked out, if only to be safe & sure... Although I am eagerly hoping to learn what is happening to me on this very evening, I am still so very frightened for all of the reasons I have mentioned prior...

P/S... the last period I had over a year ago took place directly around the time of a period of "extreme" and I am talking "EXTREME" stress; I won't go into too much detail, but basically what happened was that I was witness to an incestuous molestation of a child I had babysat/cared dearly for... it left me with PTSD, resulted in me having a nervous breakdown, and the months that followed were not exactly enjoyable... But yes, indeed... I still find that such a bizzarre coincidence and can't help but wonder if the PTSD, stress, constant flashbacks and the all-around feeling of my nerves being "non existant" had anything to do with my periods stopping and/or served as a sort of "time bomb" / "trigger" for an underlying condition (as autoimmune is big in my family too and has also been proven a related factor to women's periods stopping depending on type of autoimmune), or if what happened was just... nothing more than a weird conincidence... Nonetheless I can't shake the feeling that the events *are* connected given both the nature of them and the fact that the timeline fits to a "T", so I guess what I'm trying to say here is to those of you with either hope or so much as a glimmer or hope at obtaining conception... PLEASE try to avoid stressful situations, ESPECIALLY if they are ones that have so much as a remote chance of leading to the requirement of therapy and/or could be enough to leave you hanging with post-traumatic stress syndrome in what is already a stressful situation as is.

I thank all of you who have made posts here for your touching and helping contributions to this thread, it's initial creator, and intend to keep you all in my prayers... good luck and may God bless you all with the best of health, fortune, progress, and, of course, with the laughter of children if that is what you so desire...

im glad to see your comments here! by the way i have no problem like you all here! but i do feel sorry for all of you who suffer this kind of problems like my sister! my sister is already 33 yrs. old and never have a period ever since! she already checked a lots of doctors and the result is all the same of you here! she also wanted to have a child but as we thought that it would be imposible because of here situation! i want to help my sister with this! and a blessing from God that i've found this forum about it! im happy that she is not alone suffering this! i want to see the result of your taking this clomid so that i could recommend it to my sister! pls. i really want to help my sister! if you could pls. 

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Hope you get this reply, I know you posted it a year ago. I never started my periods but I went to doc's when I was 16 as i had extreme pain once a month, no blood. Was put on the pill which made me have a period however soon as i come off the pill my periods stop. I just cant seem to produce my own period. I was diagnosed with PCOS and have been on the pill for ten years. I am 27 now and have been trying for a baby for a year. Fertility treatment is taking forever and a underactive thyroid has put treatment back. I still havnt been told if i can conceive, i dont ovulate so will b trying chlomid soon. I really would like to find someone like me who has never had a period normally and has conceived. I want children so much, I cannot find anyone like me out there. How are you getting on?

did the chlomid work?

Although I have not personally experienced this, a friend of mine has.  She never received her period but she has children now.