My daughter gets pain day and night goes on for weeks on end sleepless nights I have been to over 3 different doctors specialist tinkling yes we have come to a solution but only to find we are still dealing with this.
Tomorrow we have more test done this has been going on for over 4 years I only hope that my girl one grows out of it or we find the cause hate seeing her pain.
:-(
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My daughter started having pain in her vagina area when she was 5 years old. I posted on this forum over 3 years ago when my daughter was 7, it is on page 2. Please, please read this.
My daughter had severe vaginal pain episodes at night ranging from nightly to once a month from age of 5 to 9. It was horrible, she would wake crying and screaming clutching at her privates literally writhing in pain. It seemed to come in waves, almost like period cramps. Her stomach muscles would clench, her back would arch, she would scream and clutch at her privates. A few times she even started saying she didn't want to live anymore because of the pain. It would last anywhere from 30 minutes to a few hours. By the time it subsided, she would be drenched in sweat. Her vagina area was very red and irritated and therefore would sometimes also hurt when she went pee. We went to the pediatrician many times, we even worried that someone may be violating her at daycare but the pediatrician said she did not have any signs of that and the daycare was very reputable and she was never alone with anyone. She had UTI test after UTI test, all negative. Getting a urine sample when they are young is a nightmare, they even catheterized her once to get a sample which was horribly traumatic and took 3 nurses to hold her down. They did an awful test under mild anesthesia called VCUG (Voiding Cysto-Urethrogram) which was negative. They put her on Nystatin cream--external (like Monistat). I applied it nightly but it did not help which was a nightmare to apply. They said give her warm baths with baking soda--didn't work, they said epsom salts in her bath--didn't work, they said vinegar--didn't work. They said stop using soap on privates, we stopped soaps, it didn't help. Dye free laundry detergent they said, I have never used anything but dye and fragrance free for more than 20 years or whenever it first came out. They said she wasn't wiping properly, so we worked and worked to make sure she wiped properly. They said she needed more probiotics from so many antibiotics from repeat ear infections, she was already eating lots of yogurt and kefir, but I added a probiotic supplement. It didn't help. We went to a pediatric urology specialist. He said it could be a yeast infection and we needed to put her on Nystatin cream externally, I told him I tried that several times for 7-10 days he said I needed to do it for a whole month because it takes that long for all the skin cells to slough off and new ones grow. So with my daughter screaming her head off--they don't want their privates touched, I applied it every night for a month, it didn't help. He said the pain was in her perineum--the area between anus and vagina and caused by the strain of constipation. She did have a history of constipation and had already been on Mirilax but I made sure she had Mirilax daily. It took a long time but we got the constipation under control but she continued to have the vaginal pain episodes. We got into a routine of when the pain started, I gave her a warm bath, and urged her to try to pee. We still thought there was a urniary connection because the red irritation was causing her to not want to go pee. I often gave her Tylenol or Motrin and Benedryl--Tylenol/Motrin for the pain, Benedryl to help her get back to sleep. I wasn't sure if it helped, or it just needed time to go away on its own.
Then, when doing research on the web, I came across this forum again and saw my post from more than 2 years ago. I also saw some more recent posts from mom's who had found their child with similar symptoms to have pinworms. I looked up pinworms but there is nothing about the type of pain my daughter was experiencing and my daughter never complained of itching and the pain was always in her vagina area, never her anus. The only thing she had in common with pinworms was that the pain always (all but once, out of hundreds of episodes) came about 1-2 hours after falling asleep. Usually between 10pm-1am which is when pinworms come out of the anus to expel their eggs. It didn't seem to fit her symptoms but in desperation, the next time she had a pain episode, I had her lay on her floor, kept the lights off and looked at her vagina with a flashlight and my high-powered reading glasses. I had a roll of tape ready just in case. AND THERE IT WAS! This disgusting worm, about quarter inch long and thin as thread (I think they call them thread worms in England and some other type of worm is called a pinworm over there). It was wriggling around and literally looked like it was stabbing at my daughter's vagina with its pointy end. The worm was bloody and there was blood on my daughter where it was stabbing at her vagina. And there were a couple more worms deeper in the opening. I was able to snatch a couple using the tape and I put them under my son's electronic microscope and even took pictures of them. I made an appointment the next day and brought the evidence which my doctor did not want to see. My wonderful pediatrician who we adored and trusted acted like he was disgusted with me and that I was crazy. He totally dismissed that pinworms could cause her the type of pain she was having. I told him about this forum and the other mothers and he dismissed it. He couldn't deny she had pinworms, since I had actually seen them (and caught them), but he would not even ponder that they could cause the intense vaginal pain my daughter was having. He said buy some over the counter pinworm medicine. It was called Reese's Pinworm Medication and we bought it at Walgreen's. I put the whole family on the pinworm medicine. I washed all the linens, towels, PJs, underwear...in very hot water. I gave my kids newly washed PJs every night and for a week and I gave them morning showers to clean their bottoms. We repeated the medicine in 2 weeks as recommended on the directions. My daughter's nightly pain episodes COMPLETELY cleared up within a week of starting the medicine and she has NEVER EVER HAD THE PAIN AGAIN!!! My daughter was 9. She had suffered this horrible pain for more than 4 years. She is now 10. What a miracle. Shame on pediatricians for not acknowledging this, and letting all these mothers worry themselves crazy and especially our daughters going through this horrible, traumatic pain. The medical world is still male dominated--I bet if pinworms caused boy's/men's balls to feel like they had been kicked repeatedly every night for an hour, we would all know about pinworms and the medicine to get rid of them. They would probably have pinworm medication added to everyone's drinking water. I did NOT tell my daughter she had worms in her vagina, because I thought it might be traumatizing and I was afraid it might mentally affect her sexual well-being some day, heck, it traumatized me for a bit seeing what I saw. I just told her she had some germs and the medicine fixed it. But I did tell her, to keep from getting the "germs", she had to be very diligent with wiping habits and washing hands after going potty and before eating--both my kids rush and could do a better job. It is so nice for my daughter to not suffer anymore. I got pretty lucky that I happened to see the pinworm. I don't think I would have believed it was pinworms if I hadn't actually seen them in her vagina, and it is hard for doctor's to test for pinworms since they only come out at night and not every night--I think they spend most of their time in our intestines and only come out to expel their eggs and then die.
I know it is disgusting, and I didn't believe it, but I sure wish I had known this years earlier. My advise would be, if your daughter has these symptoms, even if you don't see any worms, try the pinworm medicine anyway. Maybe check with your doctor, but I think the medicine is fairly safe, it is OTC after all.
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i agree with the pinworms...I searched and searched the internet and blogs bc the pediatrician was not seeming to get the right answers....my six year old had been expriencing these sharp pains at night sporadically for over the past few months maybe even year... her pediatrician had given her nystatin bc she though it was just a simple yeast infection. after several blogs i came across a lady who said her daughter was having the same symptoms and her Dr. told her to go check her daughters anus at night while she was sleeping bc the female pinworms come out at night to lay their eggs and secrete a itchy mucus like compound at night and can cause sharp vaginal and rectal pain in some. I didn't believe she was having these severe pains at first but they progressively got worse and she would wake up screaming and crying that her vagina was hurting... sure enough i went with a flashlight and could not believe my eyes. I saw the worms. it was very gross !!! ...
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I have had the same condition for about 33 years. It's called Proctalgia Fugax and it's one of the most painful things I've ever experienced. These attacks usually come in the middle of the night. I would compare the pain to what is felt in the pelvic area during childbirth. I had three babies (the last was well over 9 pounds) and my pelvic floor pain was no worse than the Proctalgia Fugax. I take a calcium channel blocker called Lotrel which has stopped me from having the spasms, but I don't think it would be safe for a child to take. Give the name of this terrible disorder to the doctor and ask him to research what would be helpful.
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My daughter is 6 and over the past year every now and again she complains of pain during the night, it's horrible to see her like that and wonder if she has an infection but by morning it's like nothing happened, she also complains of pain in her legs (not on the same nights) I have put it down to growing pains and bady changes.
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You are a medical doctor and don't know how to spell distraction or aside. Hmmmm, you never heard of this either. What country are you from? My daughter is having this and I have had it too. It is very sharp stabbing pain, not cramping.
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Hi,
im a 50 (m) from Austria (please forgive me my bad English). Sometimes in the night (max. 2 times a month) i got pain in the area of the prostate or maybe the rectum. I cannot exactly say where. I went to see some doctors incl, the Urologist, made a rectoscpy and many other diagnostic Treatments. No result. This made my story similar to the stories i read here.
One day, i had intense pain again, i had the idea to use warm water. Using the showerhose (shower head screwed off) i let the warm water flow over the area in pain an brought it then to my anus. I held it to the hole and like an enema i let some (not much!) warm water in my rectum. After a few seconds i let it out. This i repeated 2 or 3 times. There were no stool but the warm water in- and outside the abdomen eased the pain promptly. My Family doctor shook his head about my Story, but it helps effectively and i dont have to use pills with all their side effects. I hope my story is a Suggestion for some of you simply to bath your kids when they have pain in the abdominal area and (if possible and you child does not struggle against it) try a rudimental enema as described above.
Greetings from Austria
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