Bleeding from the right kidney, but dr's are clueless.. Please help!!!!

Yes I have Had this issue. I also went threw all the tests you have. They swore I had a kidney stone, but when they used the scope They found nothing. I was never in any pain. It is still a misterey as to which kidney. I moved out of the town we lived in and my bleeding stopped over night. We think it was the clorine in the water. that is only thing that changed. You do not mention if you have any pain.Did you injure you kidney, or fall. I hope this has helped. Do you drink tap water. I went threw this in the year of 2000, the end of winter. I had an athletic build, for the most part I was healthy. no reason for it. see what happens when you change water. do you have any allergies. I was 41 when this happened. It has never been diagnosed. I hope there is info here you can use. I pray you will be ok.

i agree with AlannaWilson if your doctor is clueless you should go for a second opinion. Have you done that yet? will your insurance allow it?

I just read all of the posts here and would like to add my two cents worth in hopes that it will help a couple of you with some of your problems. I have had the same problem as most of you for almost two years now with no solution yet.

One of the things I wanted to mention was that I had a 20 year problem with kidney stones. I had passed over 30 stones within that period and was treated by several different doctors. None of them was able to figure out how to stop them. After I had my last one I had an elderly lady tell me to drink a glass of apple cider vinegar mixed with honey very day for a week and then cut it down to once a week.

I followed her advice and the stones went away for two years. At that time I ended up in the ER with what I thought was a kidney stone but it turned out to be my first case of urinary tract infection. I told the doctor about the apple cider remedy and he said he had never heard of that before but that all I had to do was take vitamin C. I thought it was kinda strange that they let me suffer for over 20 years before they suggested the vitamin C.

I haven't had a kidney stone now for over six years but I have had quite a few UTI's. I was having one just about every six months. I had Non-Hodgkins Lymphoma and went through chemotherapy and 17 radiation treatments and was told by the doctors that the UTI's could be a result of the chemo.

I went to a specialist to figure out why I was having so many UTI's and when he did a cystoscopy of the bladder he detected a spot in my bladder that turned out to be the very early stages of bladder cancer. I also had an enlarged prostate that I was taking medication for. The doctor gave me a TURPs procedure on the prostate and then cauterized the prostate and also the spot in my bladder. That got rid of the cancer and also made my urine flow a lot better but I could not get the bleeding to stop.

I asked the doctor if the blood could be coming from the kidneys but he said no and was sure that it was the prostate. I had two more cystoscopies and he noticed that one of the blood vessels in my bladder was bleeding so he cauterized that and the bleeding stopped for five weeks.

Two years ago, when the bleeding first started, I had lifted several 40 pound sacks of salt and did some yard work and that is what triggered the bleeding. After the bleeding stopped for five weeks I lifted several bags of salt again and that afternoon the bleeding started again. The doctor told me that radiation treatments can make the blood vessels in the body weaker and could cause them to rupture when doing strenous work.

My blood tests always turn out good with every thing normal and no signs of cancer. I also had two different CT scans in a two year period. The first one showed that I had two cysts in one kidney and one cyst in the other kidney. The second CT scan showed there was no signs of cancer and that the cysts had not grown much at all and they were no concern. He also said that cysts in the kidneys do not bleed.

A couple of months ago, after 18 months of continous bleeding and clotting the doctor did another cystoscopy. Every thing looked good but he did notice blood coming from the kidneys just as I had suspected from the beginning. Thats when he referred me to another specialist.

When I had the chemo six years ago it also damaged my heart and I had to have a pacemaker defibrillator installed. I can still get around and do light work but I have to pace myself. I am 71 years old and the past six years have taken a toll on me but I am slowly getting my strength back.

A couple of the posts mentioned that they have had this problem for 8 to 10 years. I am at the point now that I know that I don't have a lot of time left but that I don't want to spend what little time I have left having these people do their experiments on. I like to fish and do things around the yard and I am afraid that if I go to my next 3rd opinion specialist that they will put me through all the tests and procedures and keep me incapacitated for another two years without any results.

This post doesn't solve my problems but I hope it might have helped someone that has suffered with kidney stones or radiation treatments

I've had this problem. Only with both of my kidneys. Had severe pain and was woke up.. drove to the ER and after having a ct scan, I was being transferred to Barnes Jewish. Was there for almost a week. Almost three weeks later, I was in the same spot with my left kidney. I still have blood in my urine, and am in constant pain. Doctors have no idea what's wrong. I had subdural hematomas on both kidneys and apparently that only comes from severe trauma, which I didn't have.

Hello, I was wondering has anybody ever figured out why you was bleeding from your right kidney? I'm going thru the same thing and I'm only 34 years old. I'm really scared but I'm keeping a positive mind....

My 20 year old daughter is going through this. Last week her hemoglobin was at 6.5 and they gave her a transfusion. She has had it for 9 months and all test come back negative. Im dieing in side scared. They will be doing a scope soon that will go up through the bladder into the kidney. Any more ideas please pass on.

Hi I have been bleeding in urine since June..went to doctors and cut a long story short I had a visit to urology one stop clinic..CT scan in kidneys and cystoscope..all clear..great news..go home and still bleeding..back to doctors then back for cystoscope number 2..all clear and now waiting to go see a kidney specialist..I take photos all the time and actually got excited when urine was quite clear then next day so bloody I couldn't see bottom of the toilet..

I Patricia Floyd has till problem my right Kidney my Doctor said that I am blood from right kidney and going take a xray

I have a similiar situation to the original poster except my bleeding is coming from the left kidney.

I started bleeding 4 months ago in November.
No UTI and normal kidney function.
Went to a Nephrologist - ultrasound was clear
He automaticaly diagnosed me with chronic kidney disease and scheduled a biopsy.
The day of the biopsy I had to see a urologist who suggested I do a CT scan first
CT Scan clear
cystoscopy showed bleeding from the left side
1st ueteroscopy show ueter was clear but put a stent in bc they couldn't get to the kidney
2nd ueteroscopy he washed out blood clots and lasered a group of capillaries in the kidney
Mysteriously neither were bleeding.
My urologist says he has never seen anything like this in his 15 years of practicing.
Big reveal I've been pregnant the entire time!!
He suggests if I don't stop bleeding I wait 6 months until I have the baby then have another CT scan and a biopsy of the left kidney.

I'm starting to think this could be some rare hard to diagnos autoimmune disease which scares me.

Anyone have any advice. I am in Dubai now but thinking of going to the U.K. For a second opinion.

Glad to hear I’m not alone. In July, I went to the emergency room for excessive bleeding and pain on my right backside flank. The pain was horrible! The admitted me and took a CT scan and could not see anything in the scan because the ureter was completely filled with blooodclots and my kidneys were filled with blood. The pain persisted as well as the extreme bleeding. They transferred me to Seattle to a bigger hospital to see a specialist and the specialist there said I would need to wait until the bleeding went down and I healed. The bleed stopped as all I did was lay in bed. They discharged me and on the way home I stopped twice at test areas where I filled the toilet with blood and blood clots. I called my primary care doctor when I got home and she was very concerned. I had lost a lot of blood by this time as I had been bleeding for almost a week. I hadn’t lost enough blood to admitted or receive a blood transfusion but enough to feel myself fading. I was very scared. I found that staying down and not getting up unless to go to the bathroom helped stop the bleeding. After a week I set up another appt with a urologist who my PCP recommended in my same town and he did another CT scan and laposcopy abs found that everything looked great. I had one small cyst but there was nothing to worry about. It is now the end of April and I am bleeding again but very little pain. It’s the weekend so I can’t get a hold of my doctor and have no interest in going to the ER as they have no clue what to do with me. My plan is to stay down until Monday and then report to my PCP and the specialist that the bleeding has started again. The two things that are similar in these cases is that week of the bleeding I was coming off my period. The way that I know it was my kidney was bleeding is that I was pushing out blood clots from my bladder when I peed. So no it was not just a bad period. But the timing of everything was the same. Monday Tuesday Wednesday period and then Thursday coming off and then Friday blood in my urine. Other contributed is physical exsersion. I was exercising a lot those weeks and was pushing my body to the limits... I did the stairclimber this week as well as other weightlifting exercises. The only problem with this is that I exercise like this on and off frequently and this has only been like this recently. As anyone else on this thread come to a resolution? I’m interest to know if any of found a solution.

I was diagnosed with glomerulonephritis 15 years ago, but have had normal function. Just have hematuria and protein. Lately I have had right side kidney pain, and dark foamy urine. Should I be concerned?

L.P.H.S.
Loin Pain Hematuria Syndrome.