My daughter is 21 and side of her body stopped growing from puberty. She has no fat and muscle wasteage on one side. Her face droops on the same side as there is no muscle or fat in thet side. Even her ribs are not even. So basically she has onside hypoplasia. We had the growth plate on her good leg drilled away so that it didn't grow any bigger creating severe differences in height, which would of led to severe scoliosis. She is always unwell and has constant pain all over body. Apart from her physical problems she is very normal and leads a normal life. when looking at her she looks like she has bells palsy but on further inspection you can see the dramatic difference in her legs and her ribs and hips are different. I have asked her to get a referral to a geneticist and an endocrinologist.
Does any one know of any one else or have heard of any one else with this issue? I would like to understand what it is she has and does any one else in the world have this. Is it a syndrome? If we can find out the cause then maybe the symptoms associated with it can help alleviate some health issues, instead of them giving her numerous different drugs to treat symptoms.
She suffers migrans, stomach pains, full body aches, fatigue, and just general feelings of being unwell. When she is extremely tire her mouth droops more and you really notice how much that side of her face sags.
If any one has help with this bizarre condition please let me know. Thank you.