back again.no new news the pads showed 3 mo. before they found ovarian cancer 3 C. Had major abdominal surgery & 7 mo. of chemo , vit C drips , acupuncture, lymph drainage massage . Still have pads .Maybe we'll not figure this out.
I have this same problem - started last September. I am 69 .live in upstate New York, never took steroids, haven't taken anything in years. only thing I remember taking as Zanex and Paxil for panic disorder and stpped taking that 20 or more years ago.
I had eye surgery 13 months ago - can;t imagine a connection there.
The only thing I see as a possibility is my sinus problem - infection? been a problem off and on for decades.
I am so glad to have found this site - seeing this swelling get bigger - then smaller - one day one side then another day the other side is bigger - I really was thinking I must be going crazy. I am glad I am not alone with this but sorry for all of you that are also going through this.
My GP has the site and hopefully will take some time to consider this. Like a lot of you I think I'd like to know why as much as anything - mine is now behind my neck as well (yes, had the Cushings tests) and definitely bigger since shoulder surgery end of August 2012 when I had an allergic reaction to the nerve block and Fentalin (spelling?). I suppose we just keep looking, hoping for a Dr somewhere to find the answer...
Welcome Gillycat. I think most of you here are in the USA, except for one or two in Europe. Just me 'down under'! I was pretty rapt to find this site too - I felt like a lone freak. People would ask what these lumps were and I'd tell them according to the Dr's they don't exist (under MRI) - in other words they didn't have a clue. That was 20 years ago and nothing has changed. Well, the lumps are bigger! Joy!
I have this same problem on top of my right shoulder and I unfortunately drink ALOT of Coke. I also use to have a severe problem with using opiates (pain pills), although I haven't taken any in years. Other than that, the only thing that I have found that aggravates this is when my boyfriend presses on this knot in my trap muscle (in between my right shoulder blade and spine). When he presses on the knot in my back, the lump on my shoulder starts to tighten up... its weird. But it does tend to make me think it is a muscle problem. Thank you for trying to help us figure this out.
When these swellings first appeared I had just had a nasty virus infection the Dr thought was Leptospirosis, but then turned out not to be. I have had a huge amount of stress though - in the six years prior to the swellings appearing my sister was killed in a car accident, I lost a child and had a marriage go down. However, since these swelling appeared (19yrs ago now) I have been diagnosed with hypothyroidism, rheumatoid arthritis and a chronic pain syndrome, and in the last year, Cogans Syndrome. I am also B12 anaemic now and need treatment for low ferritin and folic acid too. I am allergic to all opiate/codeine medications. I don't drink coke, only weak coffee. Following surgery on August 30th on my left shoulder the left swelling increased over 100% and the right remained the same. The surgery was very painful and there was pain from the swelling (or underlying muscle?) and the trapezius muscle over the shoulder. The swelling is along the back of my neck - looks like Cushings swelling but tests are negative (thank God). Hope something in here is helpful! Thank you for your efforts on our behalf.
i have same gel pack on my left side above my coller bone. have had ct scan, thyroid test, ultra sound, x-rays,and 2 blood test -i go 2-14-13 to get biosy on it. so far the one test shows my hyroid is normal. i have no pain, no itching but what is it---mayb i will find out 2-14. one thing no one else mentioned i was and probably still is -i'm very dehyrated. i have started drinking 6 large glasses of water a day. add mio if u don't like water (it adds a flavoring like cherry , orange, grape, etc.) will put on here after i see dr if i get some kind of answer
My husband is having symptoms of neck swelling and diarrhea and sore throat it hurts to swallow. what is this?
Time to see a doctor I think. Sounds different to what we experience.
Thank you
Swelling of the lymph nodes near the left clavicle can be related to the abdomen. Look at Mayo Clinic site. I think I might go have a colonoscopy.
Yes I have the same problem. I am an avid Health Store follower rather than going to the Dr. I took 6-8 Flax Oil Pills a day for 3 days, available at Walmart or most other stores now. It went down. I forgot about it until I woke up this morning and it is back and I am getting worried. I haven't taken any of the Flax oil pills for 2 days. So, I am getting back on it, and will take 3 pills 3 times a day for a month or couple of weeks. Then down to 2-3 a day if it is better.
I do think it is the bed I am sleeping in. It is a rollaway bed Divan. It has a hump where it folds out and is very uncomfortable. My hip on the side I sleep on, also, has been swollen and hurting besides twisting my head to get in a comfortable position. And, to get out of that dang rollaway, I have to twist my right leg and put pressure on it to get out. It is low to the ground. And, I am not overweight. When I get a new bed, I will find out for sure if it is the bed.
I plan on going to Healthstore and get some Cool Cayenne Pepper pills in case it is an infection. I will take two 3 times a day with plenty of water each time. Another good thing for infections, cancer, and much more is Q10. They use to sell it in only 30 mg but now sell it at Walmart and elsewhere in 100, 200 and 400 mg. They realize how much it actually cures. They get so big at 400 that I stay with the 200 mg. It puts oxygen into the tissues, and my sister was cured of Lupis when she took it. A Dallas research company created it for Lupis about 20 yrs ago. Then the only place you could get it was in 30 mgs at health stores for $36 and up. Now it sells for $12-13 for 30-60 pills at 100 mg. And, then price goes up the more mg you get. I will let you know if the swelling goes back down in a couple of days. Oh, also, Flax Oil stopped my Dads shaking of the hands and lips and head. He took the liquid at 2 tablespoons a day minimum. He was amazed. He started just swallowing it out of the bottle that I kept refrigerated. It cost about $12-14 a bottle. Drink Spring water not faucet water. Too many chemicals for our bodies and lord knows what else that gets into our bodies and can cause havock.
hi everybody! i had a swelling above my collarbone for three weeks and didnt go away , i went to many different doctors but they couldnt find anything, so yesterday i went to an osteopathy chiropractic doctor and he said i have a thoracic outlet syndrome. he did some crazy things that didnt hurt but sounded really awfull in my neck and i think the swelling is going away and i feel really nice. i dont know if this is helpfull, but it's so fustrating not to know what you have, i made so many blood test and exrays and lung test etc. so whatever it is be positive that you will be better!
Hello There. Thank you Lisa for posting your status. That is an interesting finding. What other symptoms did you have? Specifially did you have "Both sides of neck swelling above collarbone" or was it one sided. Were you involved in an auto accident or have any other trauma prior to the symptoms appearing?
For me personally I am trying to chase down anything that is causing these gel pads that show up on BOTH sides of the neck (like the subject of this thread). It seems that this is different than just one side of the neck, or the throat. I have written about it extensively pages back, and these swelled to a point and stayed there. It has been 6 months now.
toyman123 (not really 'guest') but can't find my password at work!