If you haven't already heard, there is a link between Herpes simplex and burning mouth syndrome. Rx-Valtrex is used to treat it with good results...
adrianna@trutonemasteringlcom
Clonazepam (klonopin) is very helpful for BMS. I was lucky enough to have my doctor believe me after going through a stressful event of having back to back cataract surgeries with the second one ending in occular herpes for 7 weeks and 3 days later the burning mouth all from Aug 2014-mid Dec 2014 when my doctor had found low B12, changed Blood pressure meds and I finally told her I wanted to be on clonazepam which she had never used for this so I sent over the information from Brigham and Women's Hospital with their treatment using the clonazepam 1 mg nightly and it keeps me from 60-80% better depending on what Generic Brand I'm on and right now not as good as my generic was discontinued so on a different one but still functioning well and never had side effects except for getting used to new generic from the fillers. Used in low dosages there the potential for abuse is quite low. I got this when I was 54 and am now 57. My treating doctor has now left and new one is not comfortable with using clonazepam but is doing it on a month-by-month basis. Columbia University should have recommended clonazepam. I also went to UCONN Health in Farmington, CT since I live in CT and they do a whole assessment for this condition and then give you a letter report recommending clonazepam. Unfortunately this letter doesn't seem to mean anything to doctors who don't what to prescribe the drug. A psych doctor will definitely give your the drug. I was not told this but I have Type 1 for sure - starts after wakening, worse as day goes on but I seem to level off at around 8 pm and almost all days I can enjoy my day even though I still have tingling in my cheeks and right side of tongue sometimes feels like somebody is biting down on it. Clonazepam has been a lifesaver. Starting dose is usually 0.5 mg a day which I did for 6 months and then went to 1 mg a day and have stayed on that dose.
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Throwing also in the mix Alpha Lipoic Acid two times 600mg per day. Have been using Lorazepam 0.5 for years and will switch to Gabapentin and the Clonazepam instead.
Good luck to all who are suffering from this debilitating affliction .