I have the exact same symptoms - so glad I found this site.
I'm female and 51 and had my first episode yesterday. It freaked me out so much I typed my symptoms into google and cannot believe so many people have it too! Today I had three deja vu attacks then my whole body goes into an adrenaline rush and I feel dizzy and confused.....very upsetting too.
Hi, I'm 22 and I've experienced little deja vu feelings randomly throughout my life, usually a dream is remembered by a being in a similar scenario as the dream which causes the deja vu for me. Then a couple years ago I got a really intense deja vu, I had gotten my license and fixed a car I had had sitting for years to be my first car. As I stood there watching the motor run it hit me I had had a dream of that before and I felt nausa in the pit of my stomach and felt as though I'd throw up and felt distant from reality for the rest of the day, like my mind was somewhere else. Today it happened again and I felt the same way, then it happened twice more, being caused by a random youtube video with a similar situation I dreamed and then a thought that caused me to remember and entire dream, all in the same couple hours. Really strange, especially since they became less related to the actual dream, but still as intense. I think the intense deja vu feeling is caused by remembering forgotten thoughts or memories, more importantly those stored in the dream sections of your mind, the part that's active while you sleep. Like you can remember dreams and feelings when you wake but they fade. Then during the deja vu all of those come back as if that part is active or sharing information with your conscious mind, causing the feeling of being distant since all of your mind is focusing of memory retrieval and trying to figure out the what cause the deja vu and where you remember it from. Just my thoughts, I was just really put off by how intense the feeling is and the physical reaction, as if my brain is too focused to control my body haha.
They are still the same today as they were 34 years ago, the only difference now is that I think I have gotten a little more used to them and really want to understand and make sense of the deja vu.
In the early days when I was having one, I felt I had to get out of the room or stop whatever I was doing. I think this was just me trying to get away from the intense feeling, which didn't help as it just had to run its course.
I've also had them while driving, but I am still able to concentrate. I get them while talking to people and they say I just go blank for a bit.
The trigger is always a mix of:
- Sound (music or something someone is saying)
- What I am seeing
How I feel while its happening:
- I know without reservation that I have dreamt this exact scenario (feeling only, I probably never did)
- I begin to sweat heavily
- If it is an intense deja vu, I get the sharp white shapes that others have described flashing in my vision
- Intense nausia
- I have an intense desire for it to stop, but I also have a just as intense desire for it to continue so I can understand the dream
When it stops (usually around 30 seconds)
- Still sweating
- Breathing deeply so I don't puke
- Trying not to pass out
When it dissipates (5 minutes or more afterwards)
- I feel dazed,light headed and exhausted
- I sometimes get a headache afterwards (not a migraine)
- I can't concentrate on anything
- I feel like I 'knew' it was coming for the past couple of days
- I can feel vague for a day or two later
It's all about the dream...
How I feel about them now is very different to when I was young. As intense and debilitating as they can be, I almost look forward to them because the intense dream like deja vu makes me feel like everything at this moment in time makes perfect sense, like I am able to get just a glimpse of another world that has all of the answers, and want more. It sounds ridiclulous but this is exactly how it feels, and these days I look forward to the feeling.
However, I actually think this has to be some kind of small seizure and what I am feeling is just a symptom. I think this is confirmed by the fact it affects my vision, and that I am so exhaused afterwards.
At this point in my life I am kinda okay with it. Maybe one day we will get an answer.
I'm also glad that this thread shows I'm not alone. Thanks to everyone that has posted their experience.
I'm 62 man. Most of these events happened while at my desk in my work office. A very intense feeling of Deja-vu would come over me quickly, with an intense burning smell. Very weird, but I would embrace it initially and go into in a dream-like state. I was still in reality, but almost a fog-like state. This would last maybe 1 minute, then I would see (imagine) a grinning man popping up from the next cubicle, who would smile at me. I would then withdraw from the episode, sweating profusely, and feeling nauseous, not being able to remember things during the episode. So strange. I had this happen maybe 25 times, the last time being about 20 years ago. Told my family doctor, he just gave me a strange look.
My questions to my neurologist were Can these seizures progress into grand mall seizures he said the likeliness is very low because my MRI does not show any type of damage or signs that it would progress.
The only time that my episodes would be an emergency is if I actually start convulsing.
I asked if my memory would get better. He didn't give me a definitive answer and just told me he hopes it will get better. At my initial appointment he found a good term for my memory issues which is called "word finding difficulty". Ever since I had a large number of episodes I have trouble with words im trying to use while speaking and writing even something as simple as the word "pan" while talking about cooking.
I have a journal to write things down. I have not had an episode since 9/5/2017 which i had 9 episodes that day. I never paid attention to the frequency of when they would occur so not sure if the medicine is keeping them at bay or if i just haven't had an episode yet.
I have felt triggers while on the medicine (500mg Keppra) but they felt very small and no episode occurred after the "trigger".
For now the treatment will be medication. My dosage will depend on the frequency or occurrence of my episodes more episodes means I will have an increased dosage of the medication. I have a prescription for the next 8months.
Will update later.