When I woke up the next day, the lady on the opposite side of the ward asked my why I was walking funny. I didn't notice, but after I was told I noticed my knees were buckling underneath me like "jelly legs" and the doctors kept saying "oh you'll be ok in 3 days" and would say a random number of days each time. They quickly discharged me and I got worse every day and by August (2 months later) I couldn't walk at all and now I am wheelchair bound. They refuse to say what's wrong with me and won't give me a diagnosis, all they say is "we don't know what's wrong with your legs". I am fed up. Yesterday I phoned a lumbar puncture medical lawyer and they think I have a case as all the other doctors I've seen outside of that hospital have all said "well isn't it obvious that the LP caused all this then?" but it's being covered up in the hospital. Just thought I'd share to insist that you avoid LP's at any cost or you could end up like me! x
Hello, Please tell me that you are doing okay now and this is all in the past?. I have been told stress can do crazy things as far as some very unusual symptoms. We can struggle with a lot of aches and pains that can be very severe that docs. cannot diagnose.. The old saying goes stress can kill you. People are always saying don't get so stressed out, or stop worrying!! It is not like I do it on purpose. . For some reason all the things I worry about hit me hard at night. It is an abundance of fear, and aches and pains that overwhelm me. They seem to be so insignifacent in my waking hours. Okay mental overload is what I say, referring to myself. Whatever your health problems were or are may you find the right doc with blessed hands who can treat you..and heal you.. I am praying that you are 37 now and living it up. I. myself have Chronic back issues with 2 previous surgeries of the back. I did have a spinal cord leak on one and they used cement to repair it as I laid flat on my back for several hours waiting to move. The doc sais it was just a minor surgeries. (Minor)?? What would be a considered a not so minor surgery?. I am left with a lot of permanent numbness in my right ft, and calf of leg which never stops hurting. This causing falls due to the numbness in the foot and leg affecting my stability. I live daily with the Chronc back pain. I am now dealing with extreme headaches to the max that is a new symptom along with some light headed. It is causing falls due to the head pain. The extreme head pain is why I ended up in ER. on a late night. I had my first and last Spinal Tap. Who dreamed an ER docter would do a Spinal Tap without a guided x-ray machine of some type and assistance.. The unkwown of our aches and pains can be very frustrating as well as scary. . I understand your frustration and fear of( WHAT IS WRONG?) Why am I having these symtoms with all this pain? I myself have had 2 CT brain scans and a Spinal tap. All good. Thank God but not an explanation to my severe pain. Now I am dealing with Chronic severe headaches from the recent Spinal tap that I hope will be gone soon. It has now been 7 days.
I have extream neck pain like really bad and I honestly feel like I'm on fire but no fever. They told me now this is normal.... I'm a 26 year old hairstylist and I have a feeling this just ended my career. However the tap WAS necesserily as none of the other tests I have had show anything..... they didn't warn me about everything though and made it sound like no big deal. When my aunt got here she lost her sh*t.
Appatently.....You can ask for a specialist to do it. You can refuse it. You have the right to have it done in a strrile room... you have the right to a second opinion and ask questions a lot of questions people don't they just say oh that sounds serious and medical ok...
Questions to ask: is there tests we can do before this is necessary, why are you performing a spinal tap, can I have a second opinion, how deep of a tap is it? (Some take just fluid and is like an epidural some tske marrow), how long should I lay flat after, why, what can I do to minimize swelling and bruising on the site, should I up my water intake, is icing my back or heating my back ok,should it affect bowel movements and for how long, how should I sleep after (on my back or side) will walking affect the healing, how long does it take for spinal fluid to rpenis, how much does a normal spinal tap take out, how much are you taking out, where are you taking it out
You will feel crazy asking so many questions however it is worth it and I wish I had. However for things like TB or Meningitis or MS thay is not presenting in the brain yet (rare but happens) spinal taps are very important
Good luck
ive had the same issues after my spinal tap was done in 2006 they couldnt figure out why i had a fever of 105.1 for a solid week so the doctors did a spinal tap to find the cause since my urine and blood was clean.now 11 years later i have not had normal bowel movements i have severe abdominal pains my legs get so tired when i walk and i cant stand straight this all happened afte my spinal tap i was perfectly healthy before all the taps were done i was a high school #1 gold medal winner in track and played baseball after the taps i have lost the want to because im in so much pain inthe lower back nd headaches and the feeling of my lower has like its gonna snap if i stand up straight.my bowel movements have to be done via a water bag because i cant make the muscles push in my abdoman or the rectal area.