OMG ... I was taken to Hosp by my partner 8/8/2008 , excruciating pain and unable to use my rt leg . Was told my leg had to be amputated as I was in kidney failure . After 2 years in a wheel chair and lots of swimming I was getting better . However " now today" I am in excruciating bone pain in my ankle and very sad about it as I am now having to run around after my 3yr and 18 mth old !!! Super happy I have my leg and my babies ... But so so frustrated with the pain :-/ :-)
OMG ... I was taken to Hosp by my partner 8/8/2008 , excruciating pain and unable to use my rt leg . Was told my leg had to be amputated as I was in kidney failure . After 2 years in a wheel chair and lots of swimming I was getting better . However " now today" I am in excruciating bone pain in my ankle and very sad about it as I am now having to run around after my 3yr and 18 mth old !!! Super happy I have my leg and my babies ... But so so frustrated with the pain :-/ :-)
Hey I know you posted this a year ago but I'm wanting to know how your muscle biopsy turned out? Are you still having problems? I did crossfire trained for years and then one day it just hit me and was in the hospital for a week. They did diagnosis me with rhabdo and I've notice even if I walk to much in a day now my legs get very weak. I've been to 3 different specials that can't tell me anyrhing and it is very frustrating. Any help would be greatly appreciated
I had Rhabdo about a year ago. I definitely had cognitive effects for a long time afterwards. I think that there is a variety in the cause/symptoms of Rhabdo that makes treating/dealing complicated. I went into shock, when I had it, so I was given Ativan. For 2-3 months following I had repeated shock, feelings of confusion, and constant dizziness. My blood pressure was significantly higher than usually at the time. In extreme shock, I had to self-administer small amounts of Ativan. I also did acupuncture to keep me calm. This transitioned to severe headaches that was accompanied by extreme thirst, and less frequent dizziness. I also had the more typical bouts of muscle pain and achiness during the first couple months, but it took another 12 months (14 total) to feel cognitively normal again.
Hi There,
I can relate and while I haven't posted my story, I would like to somehow get in touch with you to see how our situations may be similar. So little is known about this and very little long-term treatment is offered to those of us who have recurrent rhabdo, which is what I've dealt with.
May I contact you via email? I also happen to work in the medical field and when I fell up to it, I will post my story here to share with everyone. Thanks in advance and I'm so sorry that you have also suffered with this misery.
I can relate and while I haven't posted my story, I would like to somehow get in touch with you to see how our situations may be similar. So little is known about this and very little long-term treatment is offered to those of us who have recurrent rhabdo, which is what I've dealt with.
May I contact you via email? I also happen to work in the medical field and when I fell up to it, I will post my story here to share with everyone. Thanks in advance and I'm so sorry that you have also suffered with this misery.
^^ Pardon the typo(s)! I was responding from my phone.
Hello I had this condition almost a year ago. Did you go through therapy after your hospital stay? Also do you have any muscle weakness or pain now
Hi everyone, I was discharged 2 days ago diagnosed with Rabdomyolysis. It happened when I passed out from a 5k run. My fault I did not drink lots of water before the run. My CK levels peaked at 7,900 u/l not that high compared to others here so I might think mine was not blown off Rabdo more of extreme muscle injury and my urine didn't turn dark. Now I feel a bit weak and have muscle pain in my neck. I drink mix water and gatorade hourly to hydrate. For my pain I just run a hot shower to ease the pain. I don't drink pain killers not good for kidneys and the pain is bearable. Hope all of you have less of those muscle pain and felt less weak. - Donna, SA, Tx ; Oct. 2,2015
Hi Donna. My name is Eneree. I too am from Texas. Last Friday I woke up in the middle of the night in a panic because my arm was tingling. Needless to say I couldn't go back to sleep because when I tried I would start having heart palpitations and I would wake up. That transitioned into Saturday as well. Only at night would these things happen. Sunday I went to the ER and I was diagnosed with Rhabdo. Now I'm different because I wasn't working out. I was in that small percentage who got it from either some sort of virus combined with stress. My CPK was nowhere near as scary with 699 so they treated me with an IV and said drink plenty of fluids. The first few nights I actually slept well. My head was kinda dizzy and small body aches happened but nothing too major. Last night I was going to sleep and then I got a massive case of the chills. I didn't get any sleep. Anyone experiencing symptoms of the chills mixed with a little finger/feet tingle? My sister is a nurse and she said it's symptoms so I just need to stay hydrated. I would like to email you or someone to have discussions about this if possible. It helps having someone to talk to.
I had the same thing in September this year. Don't know how long my recovery will be. I had no kidney damage due to being on an IV. I suffer from neuropathy and now it appears my meds don't work. Pain very severe in my feet.
I was in the hospital as well for 2 weeks with Rabdo after an hour long spinning class as well. My ck reached to 90,000. I've been home for about a month my ck levels are normal but still have a lot of leg pain and get tired after standing 2 hours , haven't been able to return to work full time since my job requires me to be standing on my feet all day.Can only do 4 hour shifts at a time.I can only do light walking as the the doctors ordered. I am waiting to see A genetics doctor to see if I had any underlying muscle disorders. The doctors told me they never seen numbers like mine after one workout class thankfully my kidneys were never damaged, I was on IV for 12 days on morphine for the pain the first few days and bed rest for two days with a folley(catheter) I am still weak slowly doing a little better now I am able to walk up stairs slowly, when I was released from the hospital I needed help to walk up as little as three stairs. Don't know how long this constant ache in mt legs will last for. Is anyone suffering like I am?
I got rhabdo doing a spinning class as well. First time doing it. My levels were 45,000 but I think it is because I waited three whole days in pain to actually go to the hospital, I was stubborn. Until I couldn't sleep from the pain. My levels would shift up and down so I spent 5 days at the hospital. It took me about two weeks to recover to a level where I could walk normal. However, it has been 2 years and I still feel some symptoms now and again. I have come back to exercising slowly. I was never a gym freak. It's a shame that we haven't gotten to the bottom of this. I don't see much studies being done, but it is VERY clear that we don't know much about it at all.
If it helps, they told me the same thing. "I have never seen levels like this" I took tests, no underlying muscle deficiencies or damages.
If it helps, they told me the same thing. "I have never seen levels like this" I took tests, no underlying muscle deficiencies or damages.
This is similar to what I experienced and I found, after extensive research of my own (in addition to genetic testing, exome sequencing, workups of every sort), that I do have an underlying myopathy. Mine is adult-onset, that isn't even known to the medical world at this point in time.
My CK levels were over 300,000 when I had my first rhabdo episode from a light leg weight workout and I am no stranger to working out. Having been an elite, competitive athlete, a total gym rat (taking 6 consecutive classes in a row -- spinning, kickboxing, boxing, taebo-like class, etc), this has boggled everyone's mind. Most of all, it's been horrifically painful and unsettling that we have hit dead ends for so many years, drowning in tears and confusion.
I hope you get some answers and I would really be interested to hear what the specialists say. Do you mind sharing your age and gender? I'm trying to study and compile more information about this seeming mysterious thing as someone in the healthcare field, myself.
I feel your pain as I read about your recent experience and it brings me back to that very first episode. I have no words...
Every case is different, some with explanations or at least reasonable influencing factors; it's not so clear with others. So, I don't throw out advice other than to avoid heavy exertion at this time. Follow up with qualified physicans, be mindful of how your body feels as it takes a long time to recover from such damage, make sure to stay hydrated and let us know how you're doing.
Take care.
My CK levels were over 300,000 when I had my first rhabdo episode from a light leg weight workout and I am no stranger to working out. Having been an elite, competitive athlete, a total gym rat (taking 6 consecutive classes in a row -- spinning, kickboxing, boxing, taebo-like class, etc), this has boggled everyone's mind. Most of all, it's been horrifically painful and unsettling that we have hit dead ends for so many years, drowning in tears and confusion.
I hope you get some answers and I would really be interested to hear what the specialists say. Do you mind sharing your age and gender? I'm trying to study and compile more information about this seeming mysterious thing as someone in the healthcare field, myself.
I feel your pain as I read about your recent experience and it brings me back to that very first episode. I have no words...
Every case is different, some with explanations or at least reasonable influencing factors; it's not so clear with others. So, I don't throw out advice other than to avoid heavy exertion at this time. Follow up with qualified physicans, be mindful of how your body feels as it takes a long time to recover from such damage, make sure to stay hydrated and let us know how you're doing.
Take care.
Did you ever get your results? I recent had rhabado 3 months ago with a level of 180,000? Have you been able to work out since? I am also looking for answers from fellow sufferers.
I recently had Rhado from too many pullups in october 2015. I my CK levels spiked to 180,000 but decreased to 18000 in 3 days. I had severe soreness and the obviously discoloration in my urine. I was not hospitalized and drank 4L of water a day and was peeing on the hour every hour, Its now December and I am looking for recovery and re-entry into the gym tips and personal advice. Should I take more time off? What should I do and not do? I feel good physically, but mentally I am scared.