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are you married? do you have children? i am married to a freat guy who would do anything to help---he pushes food too much but he just wants me better----I have 3 sons---two who are married and three granchildren under 3 years old----your communication with me is really appreciated---
did you honestly feel like you were dying sometimes? I think nausea is probably the worse symptom---I feel lucky not to be suffering pain---some people have terrible stomach pain with the nausea---
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i have taken your advice and taking things very slow---ate crackers and apple juice for breakfast----small bowl of oatmeal for lunch and crackers at 3----for dinner I am boiling carrots and potatoes-----how boring am I?---just ready to get better---thanks for your support
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ddmac wrote:
I am 10 days post gall bladder surgery. I was doing great until the 4th day when I awoke with severe nausea and heartburn. This has not gotten any better, and now I have bouts of lightheadedness. This could be due to not eating but is a bit scary. I am taking Prilosec and Carafate which is barely managing the problem. Tomorrow I am scheduled for an EGD. I have been searching the internet to see if this is a more common problem than reported. I was told by my friends, surgeon, and GI that this surgery was a "piece of cake" and that I would be great in a week. I am worse now than ever. Anyone else suffering? Anyone have this in the beginning? Anyone have this eventually resolve? I keep hoping that my digestive system is just adjusting but I have my doubts after reading posts from others.
I had mine out jan 25th, 2010 and its been months since ive been able to go home. i stay in a hotel across from duke, as i end up at the er there or at chapel hill almost every other day...sometimes evey day or even twice a day. its flared up my crohns disease a couple times too. i get nausea constantly and am always dizzy or feeling like im going to pass out or just die. ive had an ultrasound via an endoscope, catscan, 2 colonoscopies and another regular endoscope, to check for ulcers, gerd, anything...
all my labs are always good they say, although i have had many lipase levels around 300-500. my pancreas was checked out with that endoscopic ultrasound and found to be fine. im tag-teaming hospitals, getting a second opinion, but mostly, i wait for these far off appts with these specialist gi docs, only to be temporarily maintained at the er with zofran for nausea and or dilaudid for pain...sometimes morephine.
my husband comes up often, but we'll lose our insurance if he loses his job, so i have to take care of myself solo and its been scary. when the dizziness comes or the pressure/twisting pain, straight through to my back come, its impossible to sleep lying down and i find it scary to sleep as sometimes (a lot) i wonder if i will wake up...its that bad. some docs blow me off now as i have seen all the er docs in both facilites so much, that i know them all and the nurses and the valets...its just unbelievable that in this country we're being dealt with this way.
Ive even had a couple er docs tell me theres nothing they can do for me, in a mean way, and that i "cant be helped", as i come there so often.
ive been given a halter monitor for my heart/chest pain. i truly think it could be an adhesion, maybe kinking up my intestine as when i get the crohns flares, the pain in the middle area lightens or disappears...maybe because nothing is going through there as its blocked down further in the intestine.
but the middle area of pain and nausea, right between the ribs and slightly under the ribs is the cause of my crohns flares. i can tell it is. the bile-diarrhea makes me so incredibly sick and ive had it everyday for the most part. basically, i wake up, struggle to the hotel restaurant for food down the hall from my room, eat, get sick, lay there in bed for hours and repeat that senerio all day long. walking to my docs office is a huge struggle. i drive, feeling like im passing out, to her ofc across the street where i make it walking about 50yards or so, usually ending up getting someone from another clinic to call for me a wheelchair. i try to walk a little everyday to keep from getting bloodclots, but its a major feat and i hurry back to my room feeling like i should be calling an ambulance.
no one is taking this seriously and im astonished, as is everyone i know. there is something horrific going on in my stomach and no one cares.
ive been told its ABDOMINAL MIGRANE, a term they say is very real and i get scolded for not trying "CYMBALTA" AN ANTIDEPRESSANT. i even have been made to talk to a psychiatrist in the er to make sure im not suffering from depression to which they found i was behaving normaly for someone in pain who was recieving no answers.
the catscan i had was a while ago and ive been told they dont want me subjected to radiation as i could get cancer in ten yrs but i dont care about ten yrs...ive lost 30lbs and i wonder if i would make it ten yrs like this.
ive also been asked why im staying here in town (Im from a rural area and it takes 3 hrs to get here) and what hotel im staying in and the most bizarre insulting questions about my home life. its so degrading and it infuriates me.
when i started getting sick in mid december...major diarrhea (more than with my usual crohns diarrhea) and so sick i could move out of bed hardly, i came to a surgeon at chapel hill who had done a great job on my crohns, and i asked him to help me as my little hospital told me i had pancreatitus and needed my gallbladder out, he said he'd take it out in a few days. i asked him if he was sure it was the gallbladder and he said he would take it out either way and i didnt need it anyway and that if the problem still presented itself late, that we would tackle that issue then...well, its then and its been then for months and im going broke trying to survive this and still no one is offering a solution other than telling me im hypersensative to pain and i need cymbalta to shut down the pain my nerves are sending out...
i want a diagnosis that has evidence.
i dont believe that is causing nausea and dizziness and pain and twisting wrenching in my gut. ive read so much stuff online and there are probably thousands of us, and to just blow us off as THE UNLUCKY ONES...leaving our livesin ruins, is cruel and inhumane.
i pray for us and ask for all to pray for us and to pray for our doctors that they find compassion and wisdom in treating or healing us. but mostly i pray for immediate responses to our plea.
everyday is groundhog day for me, as im sure it is for you.
im surrounded by, supposedly, the best and brightest and told if there were something wrong, theyd know what it was....
I am just writing to see if you are still on this forum---I feel exactly like you do and don't know where to turn either---I don't know when you did your post but are you still available?
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