paralyzed diaphragm

 Dr. Kaufmann may be able to repair your phrenic nerve to move the diaphragm!

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sounds like youre happy with youre disability

I would like to speak to that Dr as I have a raised diaphragm and don't no how I got it which causes me problems

I sure would like to know how your doing now. My story is almost identical to yours. Had flu like symptoms in April of 2014 and hen I started having trouble breathing x-rays were taken and it showed my right side diaphragm was elevated. Now it is 6 months and I am still dealing with breathing issues. Your replay is very welcome. thanks

Investigate doing the repair sooner rather than later. From the people I've talked to that have had the surgery including myself seems like the people that get it done within the first 2 to 6 months have a way better chance than the people that wait a year. I waited a year and had many complications after surgery.

I was just diagnosed with this on my left side yesterday 1/16. I can't even take a short walk with out gasping for air. I am battling Mesothelioma in my abdomen and went through a 11 hour surgery and chemo in June 2014, and in 2008. I'm really struggling, I am having additional testing done then back to John Hopskins to discuss surgery. I'm stressed

Hi, First time writing. I have been dx with right raised hemidiaphragm and confirmed with a "Sniff Test". The right side seems to be stuck in the "up position", does that mean it's paralyzed? If so, what is next? I have a spine doctors appt. feb 3rd for neck pain and taking an MRI test Friday (cervical spine) will all that help? Thanks Gene

Hi Herman, I had the plication surgery done at the University of Washington 21/2 months ago. How are you feeling after having this procedure? Any pulling or pressure sensations in your abdomen/chest?

I was diagnosed with COPD and Right side paralysis of my diaphragm . They could not determine how long I've been paralyzed other than " for a long time". I was told nothing could be done for me. I am on inhalers and breathing treatments for my COPD and they tested my oxygen level when I sleep and I now sleep with 3 liters of oxygen. I get very short of breath when I bend over to pick up things or mop the floor. I am obese, have lost about 50 lbs, but have a long way to go. I do not know how I got my phrenic nerve paralyses . I have had C 5/6 fused and had a strange episode of severe sudden onset of pain in my right upper arm. My Surgeon did 3 different views with MRI and found no explanation . Following that, my right hand, wrist and arm were very weak. This was about 5 yrs ago. Have you experienced any weakness in your arm? Also 37 yrs ago I fell off a horse galloping backwards and had a mild concussion . They said that accident could have started the problem very slowly with my phrenic nerve. I have NO energy, still SOB on mild exertion . Think thers's hope for recovery of my nerve? Libby

I am 51 year old mail.  I discovered I had a paralyzed left diaphragm during scuba dving certification check dives.  On two dives I rose to the surface of the quarry that I was in from approximately 40-50 feet depth.  Upon hitting the surface I was completely unable to breath.  I thought I was having a heart attack and thought I would drown.  I could not breath in or out at all.  It took me between 8-12 minutes for my breathing to return to a somewhat comfortable level.  Turns out that the ascent to the surface was the perfect storm for my paralyzed left diaphragm.  What was odd is that I had been as deep as 70 feet swimming without difficulty breathing as long as I was horizontal in the water.  However whenever I was vertical in the water ie. knealing on a platform or duriing my descent where we pulled ourselves down on a vertical cable that ran from a pontoon on the surface down to a platform at 40 feet used for drills I felt extremely uncomfortable in the water.  I was also having difficulty breathing while doing everyday things like bending over to tie my shoes or picking something up off the floor.   Chest x-ray, CT Scan, pulmonary function tests and a sleep study.  I learned that my diaphragm was probably paralyzed since birth.  I learned that it was crushing almost 50 percent of my left lung. During the diving my intestines and stomach were floating up to put further pressure on my left lung.  I had plication surgery on January 21 nearly 6 weeks ago.  I am just making a full recovery from teh surgery with the side effects of soreness and fatigue finally disipating almost completely.  Feeling better I think I am feeling the benefit of my lung no longer being impacted by my elevated diaphragm.  My hope is to return to scuba diving.   I have gone back into the gym to exercise.  When the weather warms up I plan to do a lot of cycling to really test my lung capacity.

Still trying to sort this all out.  Doctors here in oklahoma city do not know what to think.  But "apparently" I have a paralyzed diaphragm on both sides.  difficult to do anything including sleep.  Oxygen at night didn't help.  Constant bloating and some type of cold or respiratory infection for the last 6 months since it developed.  Is this permanent?

Have been doing a lot of research.  There is a possibility is a result of general anasthesia from a surgery I had in August 2014 (time wise this is probable).  ut at the same time I was seeing a chiropractor following a car wreck who was manipulating my neck pretty aggressively.  I have degenerative discs in my neck and spondylitis.  So there is a good chance my phrenic nerve is at issue, but no on eseems to really want to even check this stuff.  My doctor did an MRI and concluded my phrenic nerve was fine.  Don't you have to do more than an MRI?

Hello Ross Ford I have a damaged nerve also and saw your post and noticed it is a year old so wondered how your surgery turned out. please post and let me know if you see this.
Thank You
Randy Gates

Hello,
My brother has a partially paralyzed diaphragm and we were considering checking into a pacemaker for his diaphragm. He was in and out of hospitals for the year 2014 and was in icu for over 150 days. Doctors did not know what to do with him because of many medical mistakes he is currently disabled. I am thinking that when he had hernia surgery they could have damaged his phrenic nerve because he never was completely well after that surgery. Doctors never discussed an option in giving my brother surgery on his diaphragm. Can you help me

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Hello,
What doctor helped you?
Please reply this information is for my brother 

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How are you now my Dad has.a similiar prognosis and.he.is.miserable, I want.tp if.I can do.anything for.him