Mind you, there's nothing to say that damage is not being done by SRPE anyway. It might be a case of nothing to lose!
I hope you will continue to update us on whether this method continues to work for you. I don't think there is any real risk to doing it, so long as you get a "breather" once or twice a night. And to be able to get off baclofen has to be good.
Thanks for the update,
Rezz
So not great results but the almost 6 hour stretch of uninterrupted sleep initially was good. I keep a paper and pen and cell phone on the night table next to my bed with the time I go to bed and listing whether I have taken baclofen or not and the dosage and with or without athletic supporter, so when I awake I can record the times easily and quickly. I have been trying to adjust the socks to compress the area as best as possible, but not overly uncomfortable.
Let's see how things continue... Today I plan to print out some blank calendars on the computer tomusemto record my results. Right now I am using just a blank piece of paper.
For what it's worth, I'm finding 30mins in the sauna in the evening seems to diminish the number of times I'm awoken, either by my bladder or unwanted erections. I imagine it's because my body is generally more relaxed (and dehydrated?) and I therefore sleep deeper.
Keep us posted, please, Eugene.
This is exactly how I am. If I try to go down on Baclofen I will have some really, really bad nights. It's almost as if it causes damage. Then I have to load up to get it to calm down. 30 is my dose that always seems to work. It sucks but once on Baclofen you are kind of stuck on it. I feel like when we have these intense episodes they tend to perpetuate themselves and increase the intensity of recurrent/subsequent "attacks". It's really horrible.
Anyway, I'll be putting this information in my survey for Eugene.
Rezz.
Yes, the jock strap does trap the erect penis, and I imagine this can be bad if the size of the erect penis is too large for the pouch ofmthe jock. In your case Rezz, if you are still willing to try the jock method, you may want to cut the top of the jock's pouch so it when youmhave an event it does not constrain the erect penis. In my case, the erect penis is just slightly smaller than the pouch. Anyway, like I said I stuff the jock with socks to compress the flacid penis, and this seems to help diminish the number of SRPE events, so far. And, best thing is that I have stopped all baclofen for the test. My next test will be to sleep again without the jock, and no baclofen, to see if the SRPE returns with greater frequency as in the beginning. this will allow me to test if the jock strap is really providing relief for me anyway.
Eugene! Very helpful details. Thanks for posting this info. I'll give the strap technique another go. BTW, anybody on baclofen and thinking about trying this or any other method should (I understand) be very careful in how rapidly you taper the dose. Going off too quickly can (I understand) result in terrible distress. Here's a quote: "My neuro told me there was no need to wean off the Baclofen and that i would be fine coming off the 5mg. I trusted him and just came off it. Three days later i began violently retching with an extreme sensation of nausea. The retching was not gastro intestinal but from the sides of my body. My stomach was also very touch sensitive as was the rest of my body. For two weeks the medical profession were baffled. I kept telling them that it was because of the Baclofen but they kept dismissing it. After two weeks of retching I was rushed to hospital where finally a doctor said that this was most definitely Baclofen withdrawal syndrome and that I was to go back on 5mg. As soon as I went back on the Baclofen the retching stopped but my intestines opened and all my contents came flooding out." 5mg is a tiny dose, and I don't think everyone is going to have such a reaction, but it's probably best to reduce by about 2.5mg per week or so. ALSO, if you are reading this thread because you or someone you know is suffering from SRPE, stuttering priapism, or anything similar, but have not commented or joined in the discussion, PLEASE don't by shy. We want to hear from you, and it's nothing to be ashamed of. You can be totally anonymous. Together, maybe we can find answers.
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https://upload.wikimedia.org/wikipedia/commons/thumb/3/3e/Sleep_Hypnogram.svg/1920px-Sleep_Hypnogram.svg.png
If you check out the sleep cycle, in the site I just posted above, you can see there are about 5 REM stages a night. Nocturnal erections are known to occur during REM. So, most people are saying that at worst they are having about 5 SRPE events per night. So this makes sense. However, It seems that SRPE events can be quite variable per night, sometimes 2 a night, other times 3 or 4 and then sometimes the extreme of 5. This has been true for me, has this also been true for you? I wonder why there is this variability? Why sometimes all 5 REM stages are causing SRPEs and sometimes some REM stages do not trigger a SRPE event?
interestingly, one person in the questionnaires said that they can have as many as 10 events. In this case, I wonder if some people have fragmented REM stages so that they can experience more events than 5 per night?
Anyway please confirm if you agree that 5 per night is about the maximum number of SRPEs you might have a night and whether you find this to be variable.
I am just thinking out loud here.
Eugene