Amitryptaline, and Ambien? Interesting combo. I thought the amitryptaline assists in sleep. Why the ambien?
I was taking baclofen, 60 mg, 20 mg 3 x per day with great success for 9 months. The baclofen was also mitigating my GAD (generalized anxiety disorder). However it stopped working for my GAD but still worked great for my SRPE. I quite the baclofen because I want to find one med to take for both issues. Working with my Family Doc, I've tried Clonidine which did not help at all, and Flexeril that helped the SRPE but gave me more anxiety. I'm currently taking Mirtazapine (2 days in) that is helping with my GAD, but nothing so far for the SRPE. I'm going to ask the Doc if I can add the baclofen back in the mix. So much for one med.
By the way, I did find when coming off the baclofen I did experience some withdraw symptoms. So if start, titrate up and if you stop, taper slowly.
DH from OH
I was taking baclofen, 60 mg, 20 mg 3 x per day with great success for 9 months. The baclofen was also mitigating my GAD (generalized anxiety disorder). However it stopped working for my GAD but still worked great for my SRPE. I quite the baclofen because I want to find one med to take for both issues. Working with my Family Doc, I've tried Clonidine which did not help at all, and Flexeril that helped the SRPE but gave me more anxiety. I'm currently taking Mirtazapine (2 days in) that is helping with my GAD, but nothing so far for the SRPE. I'm going to ask the Doc if I can add the baclofen back in the mix. So much for one med.
By the way, I did find when coming off the baclofen I did experience some withdraw symptoms. So if start, titrate up and if you stop, taper slowly.
DH from OH
Can you call it "recurring" lower back pain when it's fairly constant? Some days it's worse than others but my lower back has been a problem for years. I've been a mechanic for almost 20 years so it kinda comes with the territory.
MJ from NJ
MJ from NJ
And I just looked up that article. Thanks for pointing that out. Very interesting. Especially considering that the patient had an ependymoma at T-7. I've had what's been classified as a subluxation at T-6 for a long time. Maybe I should have that rechecked...
MJ from NJ
MJ from NJ
Neurologist was surprisingly attentive and curious about the SRPE. He suggested that it may a problem with the pudendal nerve and is sending me for an MRI on my lower back. He said we could call in a specialist to block the nerve to see if it has any effect. Hoping and praying for a resolution.
MJ from NJ
MJ from NJ
Keep us posted on this.
I believe this is possible since mine started after I took up mountain biking. It also is worse when I sit a lot. I'm not sure you could fix it even if you knew it was the pudendal nerve.
Mike O
I believe this is possible since mine started after I took up mountain biking. It also is worse when I sit a lot. I'm not sure you could fix it even if you knew it was the pudendal nerve.
Mike O
This is Keith. Someone asked about the combo of amitryptaline and ambien. The former deepens your sleep so you don't wake up as much. This is why it is somewhat effective for the erection problem. I also use ambien because I frequently have trouble falling asleep (which is sometimes unrelated to the erection issue). In any event, I would not rely on ambien alone for the erection issue. There is an extended release version (7.5 mgs, I believe) of ambien that could be more effective, but ambien does have a dependency issue and it's best not to take it every night. From what I'm told by the doctors, amitryptaline does not have the same dependency/tolerance problem as ambien whereby you have to keep raising your dosage to get the same effect. I have been on 75 mg's of amitryptaline for the past 2 and a half years with no increase.
Is this the regular lower back MRI or something specific for pudendal nerve?
The doctor did ask if I do a lot of biking and/or sitting because it can damage the area around the pudendal nerve. I don't so he didn't elaborate on it but get yourself to a neurologist. There are procedures that can help. Search for pudendal neuralgia. Lots of info there.
He said lower back MRI and I can't understand the handwriting on the script to tell you of anything more specific than that.
hi this is ajay
nobody has discussed the sexual history .the reason this srpe happens because of constant sexual intercourse or doing prone masturbation making nervous system llike liver and other things weak .....
this is my doctor suggested to me solution is not found yet...i would like to have views from others on this that this is why this srpe happens daily
nobody has discussed the sexual history .the reason this srpe happens because of constant sexual intercourse or doing prone masturbation making nervous system llike liver and other things weak .....
this is my doctor suggested to me solution is not found yet...i would like to have views from others on this that this is why this srpe happens daily
I have a higher sex drive than the average bear. Always have. I fit the bill of sex or masturbation every day. I wonder if it is nervous system or more pelvic congestion. I know my whole pelvic floor is tighter than prior to this issue and has been that way 4 years.
Same here. Libido is my middle name but my urologist suggested that's a good thing. I told him I ejaculate pretty much daily, if not more and he said that's great. Trying to abstain would prove nothing anyway due to normal nighttime erectile tumesence. We can avoid arousal while we're awake but not while we sleep.
M "Libido" J from NJ
M "Libido" J from NJ
Hi everyone, I have been suffering from this condition for several years too. For me, the erections themselves are not painful, just persistent and rigid, but they cause intense discomfort in the pelvic region which only urination can relieve. Is it the same for others too?
Libido has nothing to do with this. It's an autonomic nervous system phenomenon.
As I have said in the past. The only thing I've noticed that makes it go away spontaneously for me is about a week off of work. If I'm not sitting in a chair 8 hours a day it takes about5 days for things to just resolve normally which makes me think that it is related to pressure caused by sitting on nerves or blood vessels. The only other thing is possible the posture you hold when you sit causes your spine to do something that makes it worse. I have noticed It is always worse when I roll on my back. Always it gets worse. On my side with my knees up it is much better.
As I have said in the past. The only thing I've noticed that makes it go away spontaneously for me is about a week off of work. If I'm not sitting in a chair 8 hours a day it takes about5 days for things to just resolve normally which makes me think that it is related to pressure caused by sitting on nerves or blood vessels. The only other thing is possible the posture you hold when you sit causes your spine to do something that makes it worse. I have noticed It is always worse when I roll on my back. Always it gets worse. On my side with my knees up it is much better.
The thing that I've had help the most is sleeping with a pillow or something large and soft enough to put pressure against your erection/crotch area. Usually sleeping on my side with the pillow does the best.