John
Santiago here
I myself have been suffering from this condition for about 3 months now and I can confirm that no urologist seems to have heard of this problem and can help. I am in touch with the team of Dr. Mels F van Driel from the University of Groningen who seems to be one of the few who is actively doing research here.
I was told that two new articles will be published in the future and one outcome was that pelvic floor muscle therapy could be effective.
My question is: Has anybody of you guys had any success with it and if yes which kind of exercises do you do? Could you perhaps provide a reference?
Thank you and try to keep your hopes up (as I try to do that too, which is not easy...)
Santiago
I agree arginine may play a role. I took supplements contaning arginine and the problem started after that. I stopped taking those supplements and it stopped, allthough it persisted for a year. I then started the supplements again at a oower dose and the problem has returned. The frustrating thing is how long it persists for. As arginine sems to be connected I wonder if diet could play a role generally, eg different amino acids. Sorry about the typos, I see unable tomgo back into the text to correct, hope what i wrote is understandable.
How about starting a specific blog?
Mike O