Post-Scoliosis Surgery Back Pain

this is exactly what my pain is like, I had the op at the age of 7 and im now 18, and recently have really sharp pains but in my lower back, I think I need to go see a doctor but in the research ive been doing most people have said the doctors answer is theres nothing wrong, would be interesting to know what your doctor saysnto you about this

I have a 54 degree S curve. I now have constant leg pain in addition to back pain.
I will NOT let them fuse my spine and never be able to bend again. I will go for massage therapy, hydrotherapy, PT, take pain killers, use stima, live on pills. but I will not allow a rod and fusion to be done to me.
ANYTHING, hope you all hear me, ANYTHING is a better alternative. I do not want to be alive and fused and in constant pain, and no way out, and be even more dependent then I already have become; Walking is now difficult for me and I use a cane. But at least I still have fight left in me. I am going to try and fine a good surgeon who can fix the L4L5 problem and the stnosis.

I had the Harrington Rod surgery almost 45 years ago! I am now 57 and in extremely good shape and health..other than I too live with the pain that is in my lower back and my shoulder/neck area. This just came on in the last few years. I find chiropractic care has great helped. My neck is nowhere near as forward or as stiff and immobile as it was and the lower back pain is completely alleviated. I combine with massage therapy and most of the time feel pretty good again. Only when I stop the chiropractic treatment does it return with a vengeance. My understanding is that the surgery only works for so long and then the curvature returns and that seems to be what I am experiencing. Anyone ever had the rod removed? If the spine is fused why would the rod be needed any longer?

Hi,

I had scoliosis surgery 28 years ago when I was just 15 years old!!! It was such a long time ago, I hadn't ever heard of the condition, felt isolated, scared and received no after care what so ever.

On a positive, the surgery was successful, and I had a very normal, pain free life until I had children. My son was born 18 years ago when I was 25 (10 years post opp) and that was the first time I really experienced pain. However, it soon settled down and again, I had pain free years until my daughter was born 12 years ago. And that's when the pain started. At first, it was in waves, and I always put it down to muscular; it would bother me for a few months, and then it would settle down again.

 

However, this episode, started in December 2011, and it started in my lower back. A constant lower dull ache that just seemed to get worse. I developed hip pain, neck pain, a click in my shoulder blade on rotation, all in my left side of my body and suffer with constant headaches and Raynaud's phenomenon (blood restriction and pain to my feet which i am convinced is related).

I have battled with my GP for referrals to the hospital and was finally given a spinal injection in Oct 2012 for a Disc Bulge. This has helped but i feel it is wearing off fast. I have seen a should specialist who agrees there are problems and again injection pain relief. I am seeing the Hospital Physio but am so depressed and fed up. I am convinced ALL my conditions (I have terrible stomach pains too) are all related to my scoliosis and my surgery with Harrington Rods.

 

I would love to hear form anybody who is suffering with similar symptoms to myself many years on from surgery.

 

 

I had scoliosis surgery 26 years ago when I was 15. I have suffered from severe hip pain due to the bone being removed for the fusion for just as long. I also have had to deal with right shoulder pain that my ortho doc says is the result of my shoulder blade coming into contact with the upper ribs that are of course also out of alignment. This pain radiates up my neck and down my right arm causing not only the severe pain but stiffness as well. Rainy weather is not my friend. Heating pads don't work and OTC meds don't either. I have never gone the route of Rx pain pills due to my father being an addict & always having the fear that will happen to me. The pain gets steadily worse each year, it can be very depressing. I feel much older than my 41 years. On top of the fact, that my curves are almost the same degrees they were in 1987, makes me really regret ever having this surgery performed. But I know women who didn't have it & only had to wear a brace but ended up years later having to endure the surgery anyway. So it's like a nightmare you can't get away from. Sorry to be so negative but today is a really overcast rainy day. I hope it will get better & I find some treatment that alleviates the pain better.

Its 7.05 am here , you might interest with my stories , im reading the previous discussion for an hour , and wowwwwww there are so many ppl around the world with nearly same condition as mine. We had a big family * wink * BY The Way ,you know , the 1st thing you need to do is not to cure your body or pain , but to strengthen your mindset , and be prepare what you are facing, stay positive thinking is a must , dont let the 'thing ' get over you. LET me share my little story here , I am an asian girl with height of 5'10 , 26 years old . 12 years ago , I was told im having scoliosis for around 26 degree and if it get worse I need an operation , three months later my s curve gets into over 45 degree ( not really remember the curving ) ok then I hd an operation considering major operation that hd a risk of being paralysis , well not too much stories here.... my teenage time was not that bad , besides being too tall , most ppl in my place see me as a weird height and my pimples acne problem is really serious . MY DREAM ACHIEVED , when I was 19 I get into fashion & modelling line , joining several world standard modeling and beauty competition , high fashion show, im in the world of glamour , I had hard training and maybe too much of highheels , I hd the 1st major pain of my back ( not to say back sore n minor pain which happens always) and that cause me to lay for three days on bed and it was the biggest reason I gave up . . I DID NOT give up of getting myself a wonderful life , later then I do many things , hd severe achievements , im once a modeling and beauty organizer , giving hopes and dreams to the young girls , currently a wedding & event decorator , creating the perfect ambience to the lovely people , but Heyyyy , it was not easy , painkillers and vitamin c are my bestfriend, I always felt tired , extremely exhausted after the works , sometimes I get body pain , headache . But I didnt stop , only until for the recent years, things are getting serious , I feel my body is getting weaker , my Eq is not good especially whn I am with the ppl I love , I do my own things , rarely hang out with a big group of friends, no dancing drinking , I feel uncomfort doing some of the work and things that normal people can do and when I talk to them I cant or as if im complaining , people dont understand , few times im under depression and I tried committing suicide bt nt success and for the past few months , my backsore , pain is getting worse , lower back nervepain, right back muscle tighthen and pain , uncomfort feeling especially the right side of back waist and leg , I cant get to walk properly sometimes I feel like falling , after get to xray , and xxx my back bone hd other problems as well , im having gastric too , headache and I had to visit toilet frequently feel like peeing all the time , i cried in nights , i cant walk in flat foot flat shoe either,cant run , steps gettibg slower; cant stand or sit too long for like one hour the maximun i hv to change my posture , i hv to avoid bending and squating sitting on floor, insomnia is common already , for these few years I dont have really good sleep , I fight with my skin condition as well.. i feel like a old women , stress from work , life and health , probably im going to do another turning of my life journey , THERE ARE so many time im in the negative thinking buts thanks God , I tried to fight the mental distress from who I am to who I am today , and im looking ways to get better physical condition , I get to know one thing , we choose to be who we want to be , but dont be too strict to yourself , loosen up your step and loosen up your mind , there are people better but there are people worse than us , FOR THOSE WHO ARE IN PAIN OR UNCOMFORT or who haven , take really serious on this matter , change your lifestyle and posture , do light stretching if can , do massage get a proffesional to do nerve loosen let the bloods flows better , you might slap your back anckles of youe leg ; it may turn bruise ( im using this way too ) , try acupuncture, put a small pillow under your waist , stretch your foot , for people with headache problem that might be because of the neck bone curving too , get to rest on medication pillow , strengthen your mentality , tell yourself you can , Do Not let the pain n incomfort control your life , if you do really feel badddd find a doctor , oh ya suggested to find more doctors and research too.. I wonder if my stories can get you inspired , too much to talk here , im still on the way to overcome it and I realized im not too bad, I appreciate things that happen and changing it grows me up . . GOD BLESS EVERYONE .

I really hope you Krista and all other with pain will be better after all.
As a father to my daughter with constant hard pain in her back (especially the lower back)
after a surgery 4 years ago (partially redone 2 years ago) I am looking around internet to
find some golden bullet to help her. The doctors says everyhing looks fine on x-ray so they
cant help her.. :-(

I know your pain, father. I am mother of someone in constant pain and I am doing the same thing. Please tell me what do you mean partially redone? Right now we are considering taking the hardware out of her back. Doctors are at a loss as to the pain and a horrible popping sound in her back. We are frustrated to say the least.

I'm 16 and had my back surgery when I was 12. I had a serve curve and after surgery experienced a lot of pain. it has gotten better, but occasionally I have pain in my shoulder blades which i'm experiencing right now as i am typing this. I also have cramps in my lungs. I know my curve damaged some of my internal organs, but after 4 years i'm still experiencing pain. 

Can you tell me what essential oils you are using?

i had my surgery about 1 1/2 years ago now. I had the rods in my back and before my surgery I was asked "did i want a curved back and pain or have a scar, straight back and pain because either way you will always have pain" this is because you have something in your body attached to your bones that isn't naturally supposed to be there. I'm sorry to say that you will most likey always have pain and that you just have to manage it, if it gets too bad you will most likely need pain killers. because if you think about it you have had a trauma and they have changed the structure of your spine from a curve to near enough perfectly straight.

I would suggest going to your doctor and explaining what you are experiencing and that you have had your surgery 13 years ago and they should be able to help you, i have done this and they did give me stronger pain relief than paracetamol for only when i need it. I hope this helps.

I had scoliosis surgery over 2 years ago- My spine was fused from T-3 down and rods also put into my pelvis to stabilize the lower spine. All of my lower right back pain and groin pain is gone.However, all of the new discomfort- burning, tingling , feeling like "there is a board" in my back is in my upper area also between the shoulder blades.I had read that after fusion, all of the stress on the spine is now on the area that is NOT fused. So in my case, I believe that is what is happening in addition to what I believe are adhesions from a drain site.I use a TENS unit, tonic water which has quinine in it that relaxes the muscles, physical therapy and magnesium. This, along with heat, seems to help Please let our Dr. know of your symptoms. The muscles have been cut and so many ligaments stretched. This is a massive surgery.. I don't think I even realized how long the rehabilitation time would be. I hope you can get some relief. God bless!

I suggest that everyone here go to the "Scoliosis forum chat site" - just google that and it will come up. It is the best site for discussing about harrington rod surgery. Although the moderator is pro scoliosis revision surgery, there are some knowledgeable people on there.

Best of luck to us all in enduring our terrible pain. God bless you all in your suffering.

 

I suggest that everyone here go to the "Scoliosis forum site" - just google that and it will come up. It is the best site for discussing about harrington rod surgery. Although the moderator is pro scoliosis revision surgery, there are some knowledgeable people on there.

Best of luck to us all in enduring our terrible pain. God bless you all in your suffering.

 

I had scoliosis correction surgery in 1994. I have had chronic lower pack pain since about 2001. Because the mobility in the spine is limited to only a few areas, the ones untreated by the surgery, they are going to wear out faster.