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Hi, my baby has ASP, was born at 30 was and is now 10 months corrected age. I 've been waiting all this time since she was born for all her medical checks to be completed. I am happy to share that everything else is perfectly normal. All this time been extremely worried and looking for problems in her - all unnecessary.she has normal corpus collosum, optical nerve. Small pituary gland but functioning correctly: all hormones are within normal range. My heart goes to all mums and dads who are going through the same: do not let ASP stop you in enjoying your baby, everything will be just fine xxx
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Hi, I am replying to your post late because got to know abt this today only. My daughter is 19 months and is diagnosed with septum pellucidum and septo optic dysplasiya. We got to know about this when i was 32 weeks pregnant. Now her development is totally delayed as she is not sitting independently, but she understands everything, knows her body parts. She is getting physical therapy, occupational therapy and speech therapy. Her left eye is esotropia. Please help me If anybody who is having their chid with developmental delay with the same diagnosis. I am worried about my childs future.
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Hello all! First I want to thank everyone here for sharing their comments.
My husband and I are expecting our first child together since a devastating miscarriage three years ago. I see a specialist because of my fibroids and at our 29 weeks check-up we learned our daughter's septum pellucidum is absent. This was diagnosed after an ultrasound and Fetal MRI. I cannot begin to explain the emotional roller coaster this has caused after hearing all the possibilities of how our little girl may be affected by this "condition". We were advised to bring her in within the week after her birth. Even with tears in my eyes, I am trying my best to stay positive. The reality of the unknown does concern me but all of the comments here keep me motivated that all is well. I just wanted to express my gratitude for each of you sharing your story. While difficult to deal with, it is comforting and encouraging to read how God is still in control. I ask for you to keep my family in your prayers as I continue to pray for yours.
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I posted here several years ago, and I still get notifications when someone new posts. My boy is now nearly 5 years old, and a completely healthy, smart little kid. If they hadn't discovered through ultrasound that he was missing the septum pellucidum we would have never known. I also went through a lot of emotions and a feeling of hopelessness, but things have turned out great. I agree it is so important to share these stories, they gave me a lot of hope too. Stay positive! It turns out that every child is different and has different physical characteristics and personalities, but as parents we love them for who they are.
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My son is 15 years old and this past July we found out he is missing the septum pellucidum & has septo-optic dysplasia. He is perfectly fine!! He is very short for his age so he takes a daily shot of growth hormone replacment and has already grown 4 inches. He is to grow at least 4 more. I would not abort a baby because of this reason! I couldnt imagine life without my son & could not bare the thought that if i aborted him knowing now he is fine. If I were you I would talk with a Dr about the chances of your baby having any kind of difficulties. Like I said, my son was 15 before we even knew he had these issues.
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I know this is an old post, but for anyone else that stumbled across this while looking up "missing septum pellucidum" I want you to understand what it really means. I have an 11 year old son that has had migraines since he was 3. A few years ago, his doctor finally had an MRI done and that is when we were told he was missing the septum pellucidum. There is absolutely nothing wrong with my child; at least nothing I would have given him up before birth for. He has very minor vision problems, his headaches of course and he gets a little angry at times over very trivial things. The majority of it can just be passed off as "he's just a boy." But he's an absolutely amazing, funny, smart, perfectly normal child that makes my world spin (in a good way). In my opinion, just missing this piece of the brain is absolutely no reason to abort a child.
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I have just found out my son has mild ventriculomegaly (lg vents) and is missing his septum pellucidum at our 20 week ultrasound. So far the doctor said everything else looks fine in the brain. I was wondering how everything went for you baby should you happen to read this again! Either way, these posts are very encouraging and I will be praying our little one does well like so many of these posts!
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I have answered before on this forum, but I think it is good to recap for new people in the same situation as you, this is a period where I am sure you can use some encouragement. I was in the same situation as you, my son had vents that were about 12mm on either side. He is now 5 and half years old and a completely healthy and intelligent little boy. Had it not been for the ultrasound I would have never known anything was different about him. When I had him there was not so much information about this online and I was very worried, but over the years I have heard more and more examples of kids with mild ventriculomegaly who turn out just fine or with minor issues (and who is perfect anyway?). I hope you enjoy the rest of your pregnancy.
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ciao caterina sono greta e sono alla 22 settimana di gravidanza, è stata diagnosticata alla mia bambina l'agenesia del setto pellucido, mi puoi contattare?
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Thank you. My son and daughter in law have learned that their fetus has a isolated missing septum pellucidum. One doctor suggested termination. Another, said she had patients doing fine . It is so comforting to hear from someone older who is doing fine, as they also warned possible schizophrenia. Could I ask what prompted you to get the MRI where the condition was diagnosed.
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