Hi everyone!
My son is 11months old and in utero at 24weeks he was diagnosed with ASP, Agenesis of the Corpus Callosum, PVL, Hydrocephalus, Colpocephaly and 2 large Arachnoid cysts. We were told he was going to be incompatible with life, blind and the list went on. I knew in my heart everything was going to be fine. Fast forward to today, he is just incredible, meeting all his milestones and I have to say he's the happiest baby ever, I don't even remember the last time he cried. He sees a Physical and Occupational therapist every week to make sure he stays on track and he also gets an MRI every few months to check the hydro and cysts. Even though one of the cysts sits right on his optic nerve I swear he sees better than I do, especially in the dark. I call him my little Superhero, he's just proven all these doctors wrong time and time again. Wishing all of you the best of luck in life, I know hearing those word of a missing piece of the brain is just devastating, especially in utero but know that there can be a very happy ending like my own.
My son is 11months old and in utero at 24weeks he was diagnosed with ASP, Agenesis of the Corpus Callosum, PVL, Hydrocephalus, Colpocephaly and 2 large Arachnoid cysts. We were told he was going to be incompatible with life, blind and the list went on. I knew in my heart everything was going to be fine. Fast forward to today, he is just incredible, meeting all his milestones and I have to say he's the happiest baby ever, I don't even remember the last time he cried. He sees a Physical and Occupational therapist every week to make sure he stays on track and he also gets an MRI every few months to check the hydro and cysts. Even though one of the cysts sits right on his optic nerve I swear he sees better than I do, especially in the dark. I call him my little Superhero, he's just proven all these doctors wrong time and time again. Wishing all of you the best of luck in life, I know hearing those word of a missing piece of the brain is just devastating, especially in utero but know that there can be a very happy ending like my own.
Loading...
Thank you for saying that...I am also experiencing a lack of CSP with my daughter and I am 25 weeks along myself...I have never considered abortion as an option and if there is hope, then there is a way! God bless our babies.
Loading...
My baby was born on January 12th. She has absence of the septum pellucidum and hypoplasia of the corpus callosum, and is completely normal. No seizures, no hormonal imbalances, and she's doing everything a one month old should be doing. Praise the Lord. :-)
Loading...
I think everybody should read very carefully your post...doctors know very well...please listen them and dont get blind
Loading...
You really shouldn't be responding to this post as your only experience is through one friend! When giving advice to someone on having or not having their child you really should have more research and better knowledge of the subject. I have been around multiple children with this disorder who have grown up to be wonderful people. I now have a foster baby who is doing wonderfully and I could not ever imagine someone telling us that he should not have been born. A disorder or a doctor's diagnosis of special needs is not at all a reason to fear or a factor in deciding to not have a baby
Loading...
Please, share all this information with detail about multiple children with this disorder who have grown up to be wonderful people.
Loading...
My son is 4 years old, diagnosed with missing septum pellucidum at 1 week old. Has a lazy right eye but otherwise a healthy, smart, normal little boy.
Loading...
My son was diagnosed with an absent sp on a 24 week ultrasound, we were asked how we felt about termination by the Dr. He was born at 38 weeks and was seen by a number of specialists in different fields and all concluded that he was perfectly healthy even with the absent sp. They also said that it is probably a lot more common than we even no since it has only been a marker for development in fetal ultrasounds since 2003.
Loading...
Your post made me so happy! My 3 month old grandson was just diagnosed this week. He was adopted and my hunch is the biological mother knew. It really doesn't matter now, because he is ours and our love for him is unmeasurable. Your post has given me hope that he can live a good life. Thank you and God bless.
Loading...
Hi, I was born without a septum pellucidum. I have septo optic dysplasia and optic nerve hypoplasia. I have my quirks, but I'm a normal human being. I do have vision problems and hormonal problems and stuff, but I'm fine. Give your baby a chance to live. :3 God bless you! :D
Loading...
Babies can be slower with sod, but don't worry, she should be ok. My prayers to you guys. Hugs :D
***this post is edited by moderator *** *** web addresses not allowed*** Please read our Terms of Use
Loading...
when i was little my eye muscles were needing fixed. I would turn my head to the left and my eye to the right to see, but it looked like I wasn't looking at my mom and she'd get upset. Don't worry, just take them to the eye dr. Hugs 43 yr friend and christian. :D God saved me I almost died different times in my life, but he saved me! :D Praise GOD! Just get an opthalmologist to do a test to look at their optic discs. :)
Loading...
I have abscence of septum pellucidum and I'm fine, plese don't abort for this! There are so many smart people and fine people without septum pellucidum, or agenesis of corpus collosum. Please don't abort your baby! GIve a chance to live!!!
Loading...
Our daughter is 7 years old and extremely intelligent (Aren't they all?). Her reading and maths level is at year 6 standard and we are reviewing options for alternative schooling. She too has ASP. During our pregnancy there was an abnormal measurement in her brain which corrected itself. After she was born a routine scan to follow-on from this measurement revealed the ASP. We saw geneticists and specialists and no one has ever identified any issues as a result of this.
She does wear glasses. But so does her Mum. She was also born with a club foot which has now been corrected. Interested to hear if anyone else has similar conditions.
She does wear glasses. But so does her Mum. She was also born with a club foot which has now been corrected. Interested to hear if anyone else has similar conditions.
Loading...
I have no septum pellucidum. i was born in 70s. I'm glad the technology wasn't as good, because I got a shot at life, not saying my mom would've aborted me, idk what she would've done, but what I do know is I am fine! I have my quirks. People who do not have this shoudln't tell people to abort! That's rediculous. Everyone should get a chance at life! I am a bit quirky I guess, but I'm fine!! Why do people run to abortion??!!! These babies may have some special needs, but you just don't say well, this ones to short, abort it, this ones handicapped, abort it. Ppl tell ya all the time this could happen, that.. etc, BUT they don't know!!! I had problems growing up and almost died different times, but I LIVED because of the grace of GOD! I just don't understand abortion. :'(
Loading...