Hi all,
I am 65 yrs old, and 5 yrs ago I had a mini-stroke. After my MRI they told me I have ASP, but they didn't say much about it. I realized this may be why I made a lot of bad decisions in my life. maybe....(they also told me I have ADHD). I've gone through 65 yrs without knowing and have to say I'm doing pretty good. Just had some learning, speech, and shyness issues.
Like many others have posted, there is a spectrum of problems. Don't take on too much worry. Try to be happy and love your kids. I wish you all the best. Ann
I am 65 yrs old, and 5 yrs ago I had a mini-stroke. After my MRI they told me I have ASP, but they didn't say much about it. I realized this may be why I made a lot of bad decisions in my life. maybe....(they also told me I have ADHD). I've gone through 65 yrs without knowing and have to say I'm doing pretty good. Just had some learning, speech, and shyness issues.
Like many others have posted, there is a spectrum of problems. Don't take on too much worry. Try to be happy and love your kids. I wish you all the best. Ann
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This is an old post but the information helped me a lot i currently have a 10 month old daughter with absence of the septum pellucidum but she has no other problems, ibwas just concerned on how she will be the older she gets, so thank you again
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It seems that people in this post only speak about hope of not having a kid with mental retardation or other disabilities. Does anyone have a child with asp and cerebral paralysis?
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Hello. My daughter is 7 years old and found out in the NICUat 3 weeks that she had absence of the septum pellucidum and experiences headaches time to time. I'm a little concerned that she may be dyslexic as well. She has pituitary issues (growth hormone deficiency, hypothyroidism and an adrenal insufficiency). Otherwise, she has done fine and right on track with school.
She has had her eyes checked and has great vision, ao no issues there. I also often think that her IQ may be higher than average, but I haven't checked yet.
She has had her eyes checked and has great vision, ao no issues there. I also often think that her IQ may be higher than average, but I haven't checked yet.
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My daughter has sod! She is 1... she has zero issues at all and is like any other child!!! It is a spectrum disorder,so it doesnt mean they will face any of this. Lots of people go through life with a missig septum and dont even know it!
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Somebody has a child with ventriculomegaly as the only diagnose but who has a severe mental retardation? Is my child the only one?
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Hi Laura,
I’m 33 weeks pregnancy and my baby has missing CSP. Is your child continuing to do well?
I’m 33 weeks pregnancy and my baby has missing CSP. Is your child continuing to do well?
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When I was pregnant with my son it was queried at a 28 week growth Scan if he was missing his septum pellucidum. We were waiting for a follow up appointment but he arrived early at 29 weeks and a post birth ultrasound confirmed it. Our specialist discussed the possibility of septo optic disorder but also Said he sees many babies with this who have no symptoms at all, and has seen only 1 or 2 with more significant learning disabilities. My son is now 7 months old (4.5 months post due date) and is developing well. His sight is fine other than a possible mild astigmatism that we will check again next year; his thyroid hormone tests were normal. He is growing well but we have been told that post one year he will be monitored as any growth hormone deficiency would only become apparent then.
I’ve been interested to see several premature babies here but assume it may be because diagnosis is more likely due to additional tests!
I’ve been interested to see several premature babies here but assume it may be because diagnosis is more likely due to additional tests!
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My son has severe mental retardation and he also has mioclonic epilepsy. He is under treatment bus drugs are not doing much. Doctor recommend us cetogenic diet to try to control epilepsy. He will be hospitalize soon to follow this strict diet. Epilepsy issues did not appear until he was 6 years old, but retardation was evident since 2. No other diagnose was found, except ventriculomegaly. He only speak a few words and requires permanent supervision of an adult.
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I am 67 years old and a recent CT scan found I have an absent pellucidum. I had learning difficulties as a child and memory problems. I had no other symptoms and no one ever suspected I might have a problem with my brain. When I was 47 I got an associate's degree and graduated manga chum laude. I was lucky. There are many nasty possibilities with this condition. Ask Dr. If they see any other things on your scans that could indicate things like optic dysplasia or the other know possibilities. Good luck to you in your decision.
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I know this is old, but I feel the need to share as well. My bf doesn't have a septum pellucidum. He was born with Septo Optic Dysplasia. Other than having vision trouble and being unable to drive it has not affected his life in any other major ways. You wouldn't know looking at him or meeting him he was missing anything.
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Actually, my bf has septo optic dysplaisa. You wouldn't know looking at him anything was "wrong" or "different". I'm beyond blessed and thankful that his mother decided he was worth the chance of having him. Speculation shouldn't equal abortion. My mom was told my sister would be a mentally retarded boy who wouldn't be able to communicate, walk, talk, or do anything. Low and behold the docs were wrong and my sister came out a healthy baby girl. Graduated top of her class, and is one of the smartest and most talented people I know. Everyone deserves a chance at life regardless of their state of mind or mental and physical abilities.
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I can only speak for myself. I am 55 years plus, have slightly above average intelligence, and found at the age of 42 that I had “congenital absence of septum pellicudum”. However, I graduated in the top 15% from University. Although I worked physical blue collar jobs most of my life. My three children are honorable people, hardworking and productive citizens. I have a good work/personal life balance, a loving life partner, and while I am not wealthy, I have done ok for myself. Your choice, long past, I hope we’re what worked for you. May you be well.
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My son also had headaches and was diagnosed at 16 with ASP. He is also dyslexic. Other that the dyslexia he has had no learning disabilities and actually tested well above average. He attended college and did get an associate's degree, but it wasn't easy for him. Hes now 25 and has some issues with depression and anxiety, I'm not sure if it's related to the ASP or not. I know he struggles to find a career in the feild of his chossi g due to struggles with dyslexia and fell that may be a contributing factor.
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