septum pellucidum absence

Guest over a year ago

There are variants with this, some are slower, some have different problems, but when I was born there were no support groups, no internet, no help. Just the drs saying what they knew! Please give life, don't say this person might be special needs so forget it! :'( I sent my mom this blog post of a couple that ended up having the mom induced way early because baby had loss of septum pellucidum and because they heard all this bad stuff and they knew she'd die soon if they induced, and she did! She could've been a beautiful baby!!! UGH!! I sent my Mom the blog and even made my mom sad!!!! i said I'm glad technology wasn't this good back then! How bout interview everyone you can without it?!!! Everyone deserves life!! :'( I'm not trying to be rude, but it upsets me to see people doing this, or talking about maybe doing it! :'(

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Guest over a year ago

Amen God Bless

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rahul over a year ago

Hi, Everyone since i have read all the posts i am filled with loads of positive energy , as i am a father and recently my wife had an ultrasound we found that he or she has (ASP) i couldn't stop myself crying coz i was so worried about the same then we did MRI & everything was done and we were assured about the same , however we know in her 7 month of pregnancy there is nothing we can do , all i have is my prayers and blessing of god , after reading all the comments in the section , i just hope that everything goes fine , Kindly pray for my child .

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Guest over a year ago

God Bless Amen

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Guest over a year ago

Good day,

When i was 25 weeks pregnant, i found out my son has the absence of septum,
Confirmed with MRI,.. we decided to keep him because everything else in the brain looks normal, he is now 7 weeks old, has no sign of SOD, my son is perfect !

Everyday i wake up, look at him and tell myself that im so happy that i didnt abort ! I love my son sooo much ;) xxx

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Guest over a year ago

My daughter is now a 9 month old happy healthy baby and she is missing the csp in her brain, she is more advanced then my other two children were at her age, please consider that there may be little to no effects as well.

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Guest over a year ago

I am 20 weeks and 5 days. My husband and I were told at our 19 week visit that we were having boy but that they could not see his CSP. I was devastated and scared and my husband is still managing to stay on the positive side. After trying to find out more information on the internet I got even more scared and concerned because of all the negative things that this can cause. Then I stumbled upon this thread and am soo happy I did. This thread gives me and my husband more hope and comfort that if our baby boy is missing his CSP then it is absolutely possible that he will be just fine. We had a follow sonogram and the specialist was still unable to see the CSP, so now we are waiting for the MRI which is scheduled for tomorrow. On a more positive note the doctor who did the sonogram said that everything else looks good and the brains looks good just cant find the CSP. I know that no matter what the outcome is my husband and I will love our baby boy no matter what and his big brother who is 3 is very excited to meet him. Thank you all for sharing and please keep us in your prayers. God Bless.

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Guest over a year ago

God Bless Amen

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Guest over a year ago

My beautiful twin girls were both diagnosed with missing CSP at 20 week scan, a more detailed scan then showed absent corpus callosum and enlarged ventricles. We were given then chance of an MRI but this was to "give us options" so we declined. The diagnosis was confirmed at birth but no other abnormality found. They are now 2 1/2 years old and funny, naughty, cheeky and adorable normal little girls. They have met or exceeded milestones, they both have phenomenal speech for their age and are bright sociable and full of beans! I found this thread when I was at my darkest hour during pregnancy and couldn't have believed that I would be so lucky but I knew whatever I would love my little ones and this is a massive bonus that they are ok. I hope this can give hope to someone as it would have to me xx

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Guest over a year ago

My child is now 10 years old. He has mental retardation. He os like a 2 years old baby. De are thinking about who will take care of him in the future

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Guest over a year ago

Hi there, this post is years old but i have just found out in 20 week scan that at the moment our baby boy has isolated ASP. Everything else in brain and his body at this point look like they should. I have a MRI booked for 2 weeks.

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Guest over a year ago

We learned that our son, who was a 27 week preemie, had ASP. They did tests and sent them across the country, and we were very stressed about it. He is now 14.5 years old, highest honors. I find him short-tempered, and I wonder about the correlation since they were testing his cortisol levels in the beginning, but I really don't know if there is any relation. I do not tell people that he is "missing part of his brain" so that nobody prejudges him.

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Guest over a year ago

Hi
My daughter is in exactly the same position as you and awaiting her MRI. She has waited a week already and has another week to go. Hope you had good news

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Guest over a year ago

I also have a 4 month old adopted grandson diagnosed with ASP and cortical dysplasia. I don't know if the birth mother knew or cared. It has been a roller coaster ride from the beginning. It is so scary not knowing how he may be affected by all of this yet. But I love him so much and its incredible how much joy he has brought my family. I feel that god put this sweet boy in my daughter and son in laws hands for a reason. They have the means and love to be sure he gets whatever he will need to lead a happy life. This blog is so reassuring and has helped me so much. Thank you all and god bless these very special children.

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Guest over a year ago

Hi everyone! Thank yo for sharing your experiences, thoughts and prayers. An update on our lil guy. The MRI results came back and he does have his CSP but his left ventricle had some fluid in it. Then we had another ultrasound done about 2 1/2 weeks later and it showed that both his ventricles have a lot of fluid in them and has been diagnosed as hydrocephalus with no other abnormalities so we are not quite sure what this means other than he will need a tube inserted after birth to help drain the fluid. The doctors don't know whats causing it and want to run a bunch of test to either rule out or confirm possible causes. The doctor actually asked us if we wanted to terminate the pregnancy and I was shocked because the thought never crossed are mind. We just want our son to be ok and our are hoping and praying for the best. Unfortunately we are playing the waiting game as we wont see a specialist in this type of diagnosis till mid May. We just don't understand how everything looked normal on the MRI with the exceptions of a small amount of fluid in one ventricle and then 2 1/2 weeks later two ventricles are filled with large amounts of fluid. The doctors don't know what happened and just tell us he has Aqueductal stenosis causing the build up of fluid in two of his ventricles. Again thank you all for your thoughts and prayers. I will update you guys when we know more. We just want our little boy to be ok.

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