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Hi everyone!
I live in Turkey, and believe me it looks like we have the same problem around the world!
The first time this strange pain began was last year. When I woke up in the morning there was an exact point in my front neck, next to Adam’s apple – very painful and strange. I went to ENT – nothing. I don’t feel the pain in my throat; it is somewhere deeper than my throat. I went for an ultrasound, because I thought it was Carotid artery inflammation, but nothing there too! I had an ultrasound of my lymph nodes and thyroids, again nothing!
Finally, I went to a physical therapist. She said, although it is not common and it could be the straining of the deep sternocleidomastoid muscle. She was not sure tough, but it sounded like the best possible explanation. I feel like it is a muscle strain too, because in certain positions the pain is felt more. Like when I want to feel the pain in order to understand where it is, I have to make put my jaw and neck in funny positions – there is no easy way to explain this J
Lastly, I am a highly anxious person – especially regarding health related matters. I panic easily, think about the worst scenarios, I have bruxism and usually I have muscle pains in my back and neck almost every day. I grind my teeth so tight at night that I even created a hole in the apparatus that I wear at night. I feel like if I relax mentally and physically, it may help with the pains and specifically this one.
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I believe I have found the answer to this problem. After years of searching, I found a paper from the 1950's talking about Vascular Pain. What we all have is essentially a migraine in the carotid artery. From the paper: “Vascular neck pain has been referred to only occasionally, and apparently never has been described in detail in the medical literature. Most physicians have not made this diagnosis, although the condition is not rare.” Read this paper and you will feel like you've found the best doctor in the world. It's treatable (muscle relaxers and pain meds) and chronic, caused by stress. It is often made worse by fears of worse conditions and by constant touching of the area. The paper pointed out that once the patient is diagnosed properly there is relief and a relief of symptoms.
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My life was hell the last 14 months, neck pain, ear pain, throat pain like streps, no much pain during night but more and more during the day because of movements, huge headaches, chronical caugh, it was like having gripal symptoms every day. I saw 8 Dr's, I was sent to an universitary investigation center and no diagnostic... so conclusion, I it was probably psychological... pffff...
Finally I recently had a surgery to remove a recidiving thyroglossal cyst (small one). They had to remove part of the hyoide bone (Sistrunk protocol) to avoide another recidive. The Dr told me after the surgery that the body of the bone which he had to remove was huge and like infected and/or inflamated, it never saw a hyoide bone like this one, the diameter was 3 to 4 times normal size.
Since this day most of the symptomas disappeared. But my entire life (work, family.. I have 5 children) has been completely shaked for 1 year, time was stopped... all that because an issue located on a small bone which is not well known to the Dr's.
I fully understand what your life has been during 5 years...
Good luck all and do not hesitate to push hard the medical staff, they are humans and for those rare disases you must find an experienced one which was once already confronted to this particularity.
Cheers
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Hi! I came across this post googling for solutions. From my ear lobe on the left, if you go two inches down, that is where the localized pain is. It is like a gland or lymp right near that muscle. It can't be felt but comes and goes with odd sensations. If I turn my head a certain way or if I swallow (only certain times) it's a odd pressure, not really pain just so hard to describe. I was told to suck on a lemon and ice it which I did and it went away for a few days only to return again. It comes and goes and I use ice and heat on it but it never really leaves. I have been to two doctors, an ENT and my dentist. My next step
Is to do a scan on it. It isn't majorly painful but it's enough to make me worry. This has been going on for five months. It started with clogged ears, a right ear infection and swollen glands. The doctor gave me a shot of cortisone and some antibiotics. That cleared up the ear infection but that little glad was still bothering me. I then got a more "specific" 10 day antibiotic which did nothing so I visited the ENT. He said ears, nose and throat look good, go see your dentist. Went to the dentist and x-rays were fine. I then went and got a lymphatic drainage massage and she said try sucking on a lemon to see if that gives your glands a little shock! Did that and iced it and felt better for about five days. I thought I was in the clear and then it came back. Took some prolosec and felt better then it came back. The fact that it keeps coming back is what had me so worried. Sometimes, I will feel lower jaw pain also but mostly it is that one little spot on the left side of my neck.
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