I’ve had tinnitus for 8 months by the way and i only got my beta blockers 2 months ago so i think it’s hormone related. It’s just like i hear my heart beating in my ear. I have had it checked and no one can seem to find the cause for me. Also the anxiety got better each month. I would say it went away month 10ish.... i am sad to say how long this has taken because i don’t want to discourage anyone but i do want to be truthful.
The internal shaking was so scary because i was like is this a seizure?! I’m so happy that has stopped for me completely. My legs still go get weak sometimes in the morning when I’m laying down they feel like jello. I’ll try to do a timeline of what happened to me.
Month 1-3 panic attacks, ocd thoughts, irrational fears that things would happen to my loved ones, anxiety, depression, not wanting to leave the house, feeling disconnected like i wasn’t in my own body. No appetite at all. Crying all the time. ( side note I’m the happiest least sensitive upbeat person i know)
Month 4-8 internal shaking when I’m sleep i wake up and feel it but can’t see it physically, weird nervous stomach while I’m sleeping kind of feels like a stomach dropping sensation repeatedly made it hard to sleep, palpitations, tingling lips and weird electric feelings in my legs, really bad thigh cramps when laying down, insomnia, sleeping 4 hours a night but not feeling tired during the day, no appetite
Months 9-11 really bad migraines, auras, vision problems with blurry vision, heart palps, digestive issues ( i had this issue in my teens so not sure if it’s related) FOOD INTOLERANCES to foods i used to be able to eat such as garlic ( would cause really bad heart palps ) watch what you eat and see if u notice trends with your heart palps.
Months 11 to now overall a lot better. Heart palps got worse then appear to be getting less and less. All other symptoms have subsided other than the tinitius i have had for about 8 months. I sleep fine now and feel a lot better. I hope this can help someone not feel like they are going crazy. What’s happening to you is real. Hormones play a part in almost everything our body does and these weird things going on are just the growing pains of disturbing our natural system. You will be okay.
Month 1-3 panic attacks, ocd thoughts, irrational fears that things would happen to my loved ones, anxiety, depression, not wanting to leave the house, feeling disconnected like i wasn’t in my own body. No appetite at all. Crying all the time. ( side note I’m the happiest least sensitive upbeat person i know)
Month 4-8 internal shaking when I’m sleep i wake up and feel it but can’t see it physically, weird nervous stomach while I’m sleeping kind of feels like a stomach dropping sensation repeatedly made it hard to sleep, palpitations, tingling lips and weird electric feelings in my legs, really bad thigh cramps when laying down, insomnia, sleeping 4 hours a night but not feeling tired during the day, no appetite
Months 9-11 really bad migraines, auras, vision problems with blurry vision, heart palps, digestive issues ( i had this issue in my teens so not sure if it’s related) FOOD INTOLERANCES to foods i used to be able to eat such as garlic ( would cause really bad heart palps ) watch what you eat and see if u notice trends with your heart palps.
Months 11 to now overall a lot better. Heart palps got worse then appear to be getting less and less. All other symptoms have subsided other than the tinitius i have had for about 8 months. I sleep fine now and feel a lot better. I hope this can help someone not feel like they are going crazy. What’s happening to you is real. Hormones play a part in almost everything our body does and these weird things going on are just the growing pains of disturbing our natural system. You will be okay.
Thank you for this, it is so helpful reading timelines, sometimes it feels like it's going on forever with little progress - but 11 months is such a long time. I'm so glad you're feeling better. I hope the tinnitus goes away for you. Mine is so irritating, it's so loud especially when I try to sleep, I've stopped using headphones to listen to music and am scared to take beta blockers in case they make it worse, although they really helped me!
I am also having most of these symptoms, for me the anxiety has reduced a lot but I still feel like I'm very physically unwell which is scary :( Posts like yours are so reassuring x
I am also having most of these symptoms, for me the anxiety has reduced a lot but I still feel like I'm very physically unwell which is scary :( Posts like yours are so reassuring x
How does everyone feel when they're on their period? I'm on my 3rd since coming off, I'm on day 3 of it, and just feel so nauseous and ill!! I came off bc in august!? What is going on :(
Hi everyone, I found this forum last month and reading through it has been somewhat comforting. I seem to have the worst form of post birth control syndrome you could ever imagine. This is my second time trying to go off, and i'm a really strong person, but I haven't been able to stay off any longer than a month. About three weeks in I start experiencing rapid and irregular heartbeats, dizziness, intense migrains and head pressure, fatigue to the point where I feel narcoleptic, depersonalization, a ton of suicidal thoughts, major mood swings, crying spells every day and massive panic attacks every night that have sent me to the ER 8 times. I thought I was dying. My heart is broken and i'm so frustrated. I feel as though i'll never be able to get off this pill and have kids one day. I don't understand why so few people have reactions like this. No doctor can help me. I have major PTSD from all of this. My mother had estrogen receptive breast cancer which has been my main reason for trying to get off. I'm not sure how many people still post or read things here but if anyone has any advice or insight it would be greatly appreciated. Is it possible for me to have my hormones tested while ON the pill to at least try to get some sort of insight as to what might be off? I was taking B Complex, Magnesium, Vitamin D and Probiotics which didn't really help.
Hey, I am in the same boat as you. Every symptom you listed I have had. I thought I was feeling better but am now back to square 1 after the biggest panic attack last night. I feel like I'm having electric shocks through my body. I am 5 months off.
I know there are so many girls who say it does get better. It's so difficult when you're in the middle of it, and it takes so long. These supplements might help some girls, but the biggest healer is time. I think we have to trust the process and believe it will get better.
I have read other girls having hormones tested but not showing anything was wrong, even though they still had symptoms, so I don't think this will help.
Reading this forum has been the main thing that's helped me. It can take a year to feel better!! It will happen. Post on here whenever it gets too much, going back on the pill will just delay this :( xx
I know there are so many girls who say it does get better. It's so difficult when you're in the middle of it, and it takes so long. These supplements might help some girls, but the biggest healer is time. I think we have to trust the process and believe it will get better.
I have read other girls having hormones tested but not showing anything was wrong, even though they still had symptoms, so I don't think this will help.
Reading this forum has been the main thing that's helped me. It can take a year to feel better!! It will happen. Post on here whenever it gets too much, going back on the pill will just delay this :( xx
I re-stopped the pill. I think my body is pissed at me because I can't make up my mind, but I got even worse when I put it back in my body so I guess this is the best option. I couldn't feel worse though. I'm trembling all over and can't ever breathe properly or calm myself down. I really hope the people who have stopped posting here have gotten better. I need hope.
I'm sorry you're going through this. The trembling is awful and I know exactly how you feel. It does get better and will become less frequent until it's a distant memory- but it takes a long time so be patient and don't try and fight it! Almost everyone I have read about has gotten better, slowly.
I feel the trembling too - you aren't alone in this! You have to get worse before you get better.
I feel the trembling too - you aren't alone in this! You have to get worse before you get better.
I’m glad you stopped the pill again, I know that it’s going to be difficult dealing with these symptoms but stopping it again is the first main step to recovery. My first months off of it I experienced so much trembling as well, but it’s completely stopped now. Feel better! I’ve improved a ton to the point where I’m no longer taking supplements to feel better. I’m about 10 months off now and I still have a few lingering symptoms, nothing major though. We can all get through this
This forum makes me so happy. Without reading these posts I couldn't do this. I've started over 4 times but my goal is to stick with it no matter how long it takes. Thank you ladies for the support!!
Has anyone experienced a racing heart? Like a heart rate over 120? It’s more like an attack and happens to me most when I’m sleep.
Yes, I feel like the trembling/heart palps always happened around the same time for me. I would wake up at like 4 am with my heart racing and I felt really on edge. This stopped when I was about 5-6 months off (but keep in mind my symptoms started when I was like 4 months off) so I had the racing heart for about 2 months.
I’ve been off over a year and this is the only thing still happening but it’s terrible and scary.
I am also having heart problems. Not sure if it's because of sugar or carbs because I've eaten badly this Christmas, which hasn't helped with my symptoms of course. But heart feels like it's coming out of my chest!
Also been struggling with head pressure and fuzziness, it feels like my head is full of bugs or something. Very weird sensation. And terrible fatigue like I've never experienced before. I'm on my 4th cycle post bc.
Is anyone struggling to notice patterns? I've been tracking my symptoms but they seem completely different every month. Makes me worry it's not hormone related. They are changing, but not getting better...
Also been struggling with head pressure and fuzziness, it feels like my head is full of bugs or something. Very weird sensation. And terrible fatigue like I've never experienced before. I'm on my 4th cycle post bc.
Is anyone struggling to notice patterns? I've been tracking my symptoms but they seem completely different every month. Makes me worry it's not hormone related. They are changing, but not getting better...
Hello everyone! I have been having the same symptoms most of you here described. It is almost a year since I have stopped and I feel so much better but still not the same, normal me. I forgot how it was to feel anything positive, besides constant worrying over everything. I was empty and scared all the time that everything I was experiencing had something to do with my health. Most of the days I feel fine now, sometimes I even feel happiness and when I do, it means so much to me. It was a feeling I have forgotten to feel and it is so nice to feel it again. I still have problems with eye floaters, I get anxious after my period for few days when hormone levels are rising, but I can go out again, hang out with friends and live almost normally. If anyone needs help or just an advice on how to survive this hell, just let me know!