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I've been dealing with it for many years, close to 10 or more. I've just lived with it. The lack of sex drive due to pain is the worst of it. Failed relationships . I think I'll have them removed next year. There's just no help for me.
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This is razy, I have been suffering from this for about a year and a half been put on antibiotics etc with mininal improvement. 2 days ago I had a thought about anti inflammation creams to put directly into the area rather than tablets - I think I read someone was going to try it - but hadnt commented about it, so I tried this

So far the results been incredible - I have little or no pain (i feel like a new person) and feeling around there the swelling on the tube (which when i have a hot bath I can properly check) has almost gone after 2 days!!

 

 

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supposed to read "crazy" lol
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Can you name the anti inflammatory cream you are using?
Thanks
DJAA
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Just Sainburys (UK supermarket) Ibuprofen 5% gel - I apply everytime I feel it coming back in the area - it gets rid of everytime. I hope this works for other people as well
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I'm curious, is your guys metus is red? Cause i also have epididymal cysts.The metus is the pee hole.

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Welsh guy here. When I had an ultrasound they told me I have cysts but this is normal and nothing to worry about.
I asked would the cysts cause me pain and I was told No but I'm not so sure.
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JCA,

Glad you're feeling a bit better. I've had a problem similar to yours - after a horseback ride on vacation (why oh why did I get on that horse), my right testicle was hanging higher than normal. A few hours later, it swelled up, was deemed epididymitis, went through antibiotics and ibuprofen - that was 10 months ago and it still flares up. In all that time, even when the pain recedes, that right testicle still hangs high. During a flare-up, it lodges against the body and won't budge. And there is a constant sensation of tension on the spermatic cord that feels like it's drawing the testicle up. I too can't sleep on my side or put any squeezing pressure on that spot without it flaring up. I keep telling urologists it feels like an injury, not epididymitis, but they don't think it matters. Urologists and WebMD say nothing of symptoms like this, but people online report them. It's clear there are a lot of issues that haven't been explored in the research.

The best temporary pain relief I found was Arnica gel applied topically. It worked better than any NSAID without the side effects. Stopped using it though as I was concerned that the sensation of heat could affect sperm quality, which I have to take care of right now.

After beating myself up for going on a stupid horseback ride, I'm starting to think maybe some of us are just susceptible to this, and it would have happened some other way, from a bicycle or whatever. Everybody walking around out there in the world, especially past a certain age, carries around some kind of pain you can't see.

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What makes this doubly-worse is that I had another - unrelated - injury on the left testicle. Doctors and specialists just can't phathom that kind of bad luck. At this point, I tell them it's okay to say they're stumped just as long as they can come up with some suggestions as to what it might be or what may have happened.

The first two urologists were recommending I have the epididymes removed/epididymectomy because they were convinced it was epididymitis (they diagnosed both injuries as "epididymitis"). For some time, I believed them because the symptoms were quite similar for the left testicle: 1) low-hanging, 2) pain at the back and above the testicle, 3) hardened or lumpy epididymis, 4) pain relief when the testicle was lifted. These were the tell-tale signs, except there was no infection. I had numerous urinalysis done along with a bunch of testicular ultrasounds, and they all came out normal. Usually, with epididymitis, the epididymis swells up bad that a radiologist would be able to pick it up on the imaging scans and you'd get a positive result for bacterial infection. I suppose one could get an inflamed epididymis from an injury to the area, which is what happened to me (I was fooling around and my girlfriend moved... while she moved, she accidentally pulled on the left side of my scrotum).

This also did not explain what happened to the right testicle, which was just a fluke. No actual injury happened. It was just a really strong cremaster and dartos muscle reflex that pulled the testicle up into the superficial ring of the inguinal canal. The pain was unbelievable. It felt as if I was kicked in the testicle really hard. The pain was so severe, it shot up to the lower abdomen and traveled to the middle of my back where the kidney is located. That was not f***ing epididymitis! I think I underwent partial torsion or there is trapped nerve or a torn muscle or anything other than epididymitis. Not only does my right testicle retract up, but it also looks slightly twisted to the side or horizontal, so that it when it retracts, it does so horizontally sometimes.

The resulting look is freakish, to say the least. My left testicle hangs about 3/4-inch lower and my right testicle has the same, exact thing that yours does - it gets yanked up by any kind of abdominal or core muscle movement. It's so ridiculous that just lifting my right leg with lift the right testicle up and almost into my body. This means I can't ride a bike, I can't run, I can't bend or squat, or jump, or sleep on my sides, or sleep on my stomach, or have sex, or do anything without my testicle retracting forcefully. All the while, my left testicle is doing the exact opposite - it just hangs really low with hardly any movement and if there is any pain, it's a dull ache it comes from behind and above the left testicle.

I'm sure the combined injuries are what baffle the doctors. I try to explain to the urologists, but they don't care 'cause, honestly, there isn't much they can do about it anyway. I don't think it's extremely rare for men to end up with a high-riding testicle as a result of bike, motorbike, or horseback riding, but there isn't any treatment for it. The urologists may not tell you this, but they haven't a clue how to treat that and would rather advise you on living with it. The alternative would be to do surgery (e.g., orchiopexy, orchioectomy, spermatic cord denervation, removal of the cremaster muscle), which may end up making things a lot worse.

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If you press or squeeze the cyst and get pain then it can be the cause. I have two and both are tender to the touch and generate pain. I am having them removed Dec 2 2014
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Keep in mind a low left testicle is nothing unusual. The left testicle has a T in the blood vessel that causes it to naturally retain more blood and hang that way. 

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I will try the flowmax. I have been suffering for 14 almost 15 years now
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Take cialis. It helps alot. Low blood flow can cause a lot of pain around the testicles.
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No, it doesn't. Cialis won't do anything for testicular or intrascrotal pain. If you have low blood flow to a testicle, it's most likely due to torsion, and the testicle will either shrink/atrophy, die, or both.

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Man, this is depressing. Just spent 3 hours carefully reading this entire thread, taking note of all drugs, treatments, ideas, things to avoid, etc. It's not unbearable for me, but I randomly got the dull pain in my left epididymis about a week into December. I was immediately concerned about this and saw a doctor.


He felt the both sides and the left epididymis specifically was tender. So he diagnosed me with epididymitis. I'd already been reading up and was expecting this diagnosis, but I figured maybe it'd be fine and antibiotics would work. Took Levofloxacin for 10 days, seemed like it dulled the ache slightly, but now it feels just the same as before.


From reading this thread, looks like this is just something I'm going to have to deal with forever. Only 23 years old, not even sexually active. On top of that, have back problems and muscle injuries that have pain from never healing properly (thanks a lot Dr. Misdiagnosis). I feel incredibly bitter towards all GP's now. Looks like I'll just have to hope the ache doesn't get worse...


- N

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