I had a left kidney removed a year ago, it had moved outside the kidney, into the vena cava, but then calcified, the Dr. said this was very unusual... I am a stage 3...
I have been admitted to the hospital emergency ward 3 times with agonizing pain... after surgery the nurse complained I was under-medicating, but three months later as I started to regain my health, the pain started and was brutal, I would sit and sob and want to die.... the Dr. put me on oxycodone ? but I protested and am on a low dose of hydrocodone... I take it two times a day, morning and evening..I hate it, it makes me limp,
and I have no will to carry through on things, although I am adjusting to it... I am determined to get off drugs.... . I also have painful swelling etc. on my left side... it is getting a little better after a year. I keep exploring alternatives, sometimes massaging with essential oils helps the discomfort/edema like symptoms... have had every test imaginable, x-rays, obgyn, colonoscopy, back mri, lungs, it seems to be an effect of the surgery... I have been exploring alternative medicine as well, as going to Chicago to the Block Center, (great book, Life Over Cancer, by Dr. Block led me there) they address, mind, body, spirit, emotions.. My odds were not great, but as Mrs. Block said at Chicago, You are not a statistic... I had my surgery at Brighams, and reiki treatments helped a lot while I was there... my room-mate died a month after leaving the hospital, of uterine cancer... I have been to a Reiki master Bridget Dinsmore in Cambridge, she is wonderful, and delt with her uterine cancer without surgery and radiation and chemo etc... so she was an inspiration in the face of my fear....massage with essential oils, a moist heating pad has been great help, I went to Tom Tam sessions, (based on accupressure, and visualization) I have used a far infared lamp, and just ordered a set of Dinshah color filters, for light treatments, I also am taking a lot of supplements, for this and to make sure the cancer does not bloom elsewhere, I have met too many people who said, I was fine and then it came back... Daniel Reid has a wonderful book on Chinese medicine which has been very helpfrul, and I have adjusted my diet... . I am 68 and find it is hard to make big consistent changes, so its Kai Zen, baby steps so to speak.... with a full life of family , friends, work,
and some unfinished business of my own interests, its like trying to turn an ocean liner around to make changes in my outer life to match the profound inner changes I am undergoing... To face the fear and the pain I stormed heaven with prayers and told myself and tell myself,
there will be gifts as well as struggle... Mrs. Block said, visualize 3 times a day for 10 minutes, your perfect life in one year, in the morning, your perfect life in three years, at lunch, and your perfect year in five years at night... I also have a vision chart of my 70th, 80th and 90th birthday parties... Leave no stone un=turned. Focus on love and fun as much as possible... I have two labs, and a sweet grand-son and loving husband, sons, and sister and daughter-in-law, and dear friends so that helps... Loving best wishes, to all... Sukie
I have been admitted to the hospital emergency ward 3 times with agonizing pain... after surgery the nurse complained I was under-medicating, but three months later as I started to regain my health, the pain started and was brutal, I would sit and sob and want to die.... the Dr. put me on oxycodone ? but I protested and am on a low dose of hydrocodone... I take it two times a day, morning and evening..I hate it, it makes me limp,
and I have no will to carry through on things, although I am adjusting to it... I am determined to get off drugs.... . I also have painful swelling etc. on my left side... it is getting a little better after a year. I keep exploring alternatives, sometimes massaging with essential oils helps the discomfort/edema like symptoms... have had every test imaginable, x-rays, obgyn, colonoscopy, back mri, lungs, it seems to be an effect of the surgery... I have been exploring alternative medicine as well, as going to Chicago to the Block Center, (great book, Life Over Cancer, by Dr. Block led me there) they address, mind, body, spirit, emotions.. My odds were not great, but as Mrs. Block said at Chicago, You are not a statistic... I had my surgery at Brighams, and reiki treatments helped a lot while I was there... my room-mate died a month after leaving the hospital, of uterine cancer... I have been to a Reiki master Bridget Dinsmore in Cambridge, she is wonderful, and delt with her uterine cancer without surgery and radiation and chemo etc... so she was an inspiration in the face of my fear....massage with essential oils, a moist heating pad has been great help, I went to Tom Tam sessions, (based on accupressure, and visualization) I have used a far infared lamp, and just ordered a set of Dinshah color filters, for light treatments, I also am taking a lot of supplements, for this and to make sure the cancer does not bloom elsewhere, I have met too many people who said, I was fine and then it came back... Daniel Reid has a wonderful book on Chinese medicine which has been very helpfrul, and I have adjusted my diet... . I am 68 and find it is hard to make big consistent changes, so its Kai Zen, baby steps so to speak.... with a full life of family , friends, work,
and some unfinished business of my own interests, its like trying to turn an ocean liner around to make changes in my outer life to match the profound inner changes I am undergoing... To face the fear and the pain I stormed heaven with prayers and told myself and tell myself,
there will be gifts as well as struggle... Mrs. Block said, visualize 3 times a day for 10 minutes, your perfect life in one year, in the morning, your perfect life in three years, at lunch, and your perfect year in five years at night... I also have a vision chart of my 70th, 80th and 90th birthday parties... Leave no stone un=turned. Focus on love and fun as much as possible... I have two labs, and a sweet grand-son and loving husband, sons, and sister and daughter-in-law, and dear friends so that helps... Loving best wishes, to all... Sukie
Hello,
While I'm relieved to find I'm not alone with this particular issue, I'm sorry to see so many others also dealing with this. I had a total left nephrectomy done in September 2009. Mine was an odd thing, no RCC or anything like that. It was the second surgery in 9 days and my ureter had basically disintegrated and my kidney function had gone kaput. I was having pain for two months before my surgery and now it's March 2010 and I still have pain - more pain.
I started going to a Pain Management specialist and he said he has a few other patients that he sees due to what they call "post-nephrectomy syndrome." I've been taking Neurontin 1200mg 3x/day plus Opana ER and Oxycodone for breakthrough pain. I've also started neuropsych appointments for the related depression. My doctor is also doing inter-costal nerve block treatments.
What I was told is that what is happening is unfortunately not out of the ordinary. The body is healing and so scar tissue and adhesions may be forming and this particular scar is not an easy healer. As the body heals, it is squeezing those nerves.
I highly recommend getting into a pain management specialist if you can. While I still am in a lot of pain, I at least have doctors who validate how I feel and keep trying new things. They also know all the medicines to treat nerve pain better than our PCPs do in my humble opinion.
I keep a heating pad at my desk and use it frequently and have one on the couch when I'm home. I find heat helps a bit.
I wish everyone well and hope my experience might be able to help someone else.
While I'm relieved to find I'm not alone with this particular issue, I'm sorry to see so many others also dealing with this. I had a total left nephrectomy done in September 2009. Mine was an odd thing, no RCC or anything like that. It was the second surgery in 9 days and my ureter had basically disintegrated and my kidney function had gone kaput. I was having pain for two months before my surgery and now it's March 2010 and I still have pain - more pain.
I started going to a Pain Management specialist and he said he has a few other patients that he sees due to what they call "post-nephrectomy syndrome." I've been taking Neurontin 1200mg 3x/day plus Opana ER and Oxycodone for breakthrough pain. I've also started neuropsych appointments for the related depression. My doctor is also doing inter-costal nerve block treatments.
What I was told is that what is happening is unfortunately not out of the ordinary. The body is healing and so scar tissue and adhesions may be forming and this particular scar is not an easy healer. As the body heals, it is squeezing those nerves.
I highly recommend getting into a pain management specialist if you can. While I still am in a lot of pain, I at least have doctors who validate how I feel and keep trying new things. They also know all the medicines to treat nerve pain better than our PCPs do in my humble opinion.
I keep a heating pad at my desk and use it frequently and have one on the couch when I'm home. I find heat helps a bit.
I wish everyone well and hope my experience might be able to help someone else.
I also had my kidney removed by hand assisted laproscopic surgery 7 yrs. ago. I also have a large bump on my stomach where the incision is. I had a scan and it appears to be a hernia. Dr. said if it doesn't bother it just leave it alone. I also had renal cell carcinoma and I find it confusing when to be concerned. As soon as I tell my primary care Dr. they want to do scans. At what point to we need to be concerned?
It makes me feel like I am not alone. I had my left kidney removed June 1, 2010, it was renal cell carcinoma, and after the operation a month and half later, there is pain ! The pain on my right side and across my back, and it comes at night. I have a hard time lying down and have to take something for the pain just to try and sleep. Have been to see my specialist and doctor, and at least 3 other doctors and they all say it is the operation. It takes time......so I am wondering how many out there have some information as to how long this could last. I am slated to return to work Sept 1st and with this pain I am not so sure I can return. Thanks for the comments and charing on this site.
I had a nephrectomy of my left kindney one year ago and I am still experiencing pain in my left abd and back. My doctor is aware and has given me lortab which I cannot tolerate. I would not even want to have to depend on pain meds one year after surgery I thought I would be cured after surgery. I am not. I have tried muscle relaxants b/c he thinks it muscular. I am at a loss , after reading a lot of these post I feel like residual pain is standard. My pain is worst with physical activity. My doc has suggested a steroid injection at the site of the pain. Has anyone had this done? The pain in mostly in my stomach its even painful when touched at times . It boggles my mind 8-|
3 years after RCC and right kidney removed the pain is still present and at times worse...sorry folks..
tired blocks, injections, pills and now discusion leads to a nerve stim implant..
next option sueing the dr whom performed the surgery!
tired blocks, injections, pills and now discusion leads to a nerve stim implant..
next option sueing the dr whom performed the surgery!
Hello
I had my left kidney removed too, due my left ureter too small thn my left kidney now only work 14%. well if i said i already got this since i was born and i had pain over 27 years for my left waist, by the way now i am 28 years old. sometimes its really hurt a lot it and of course i already check when i was little but no found anything it said normal (around 1980++ only check my urine and x-ray), then the doctor only give me painkiller pill cause he said it was only waist pain not the kidney problem. When 27 April 2010 when medical check for my employ, my mother saw my blood preassure so high then i check again in Mei, then scan use USG and found out there some kidney stone, then i go check up more further, my left kidney already abnormal size(3 L water inside kidney). after that i got surgery on 14 Juny 2010 then removed left kidney. after surgery it really pain a lot and can't sleep well. the pain still there even pass two month . after rest and recovery till September and the doctor didn't give any medicine pill after surgery i am still fine. i back worck on 8 October 2010. thank to the doctor who surgery me. about the pain well sometimes i had pain a little and sometimes felling sensitive in my left waist but still is ok till now better than i had pain when got old pain(before surgery). so if ur pain get more worse, maybe u should contact the doctor about it, that only i can suggest it.
I had my left kidney removed too, due my left ureter too small thn my left kidney now only work 14%. well if i said i already got this since i was born and i had pain over 27 years for my left waist, by the way now i am 28 years old. sometimes its really hurt a lot it and of course i already check when i was little but no found anything it said normal (around 1980++ only check my urine and x-ray), then the doctor only give me painkiller pill cause he said it was only waist pain not the kidney problem. When 27 April 2010 when medical check for my employ, my mother saw my blood preassure so high then i check again in Mei, then scan use USG and found out there some kidney stone, then i go check up more further, my left kidney already abnormal size(3 L water inside kidney). after that i got surgery on 14 Juny 2010 then removed left kidney. after surgery it really pain a lot and can't sleep well. the pain still there even pass two month . after rest and recovery till September and the doctor didn't give any medicine pill after surgery i am still fine. i back worck on 8 October 2010. thank to the doctor who surgery me. about the pain well sometimes i had pain a little and sometimes felling sensitive in my left waist but still is ok till now better than i had pain when got old pain(before surgery). so if ur pain get more worse, maybe u should contact the doctor about it, that only i can suggest it.
:cry:
I just got my left kidney removed last wensday the 3rd which will be one week tomorrow & i will said i have not had much pain at all its more ichy & irritating then anything i got nephrectomy & everyone says it's soo much worse but i don't no how.. My cousin just got her's right side out 2weeks before me & she got her's laparoscope & she was miserable for about 3weeks i feel very lucky i have not used the pain meds they gave me because i don't have enough pain to! I was in the hostpital for four days..
i had my left kidney taken out do to a mass it was as big as the kidney. Eww but i have found it to be hard to get back on my feet.
on top of it all my other dr said i should be ok after 2 days? Really? so i called ucsf an made another appt 5 weeks after the surgery. they told me i fell between the cracks? wow make me feel good about myself but anyways.
i tell you i am in so very much pain idk what it is why im in so much pain its been 5 weeks now
at this point im just happy to be alive..! so tomorrow i go for my "2 week" check up lol...
i just dont want to be in anymore pain god knows me i cant handle this pain anylonger this is why i had the surgery to begin with! i wish i understood what this is an why i fell between the cracks? i just want to know ill be ok an i want to be on pain meds!! gosh i want to feel good an get out an lose some more weight! i cant eat my tummy hurts to bad to eat i cry so much! make this pain go away :-) well i wish everyone well an great health god bless you all! Michcelle
I found this site so helpful, because i just had my right kidney removed (hand assisted laproscopic) two weeks ago and i cant stand the pain. I cant sleep...its horrible. If i laugh, cry, sneeze, cough..it hurts. I can walk for about 30 minutes and then the pain where the incision is is so intense im doubled over. I also have a lot of pain in my back. I worked out 5-6 days a week before this surgery and i cant stand feeling this way. I go to the dr this week for my follow up, but all i keep getting is.."its normal". Does it get any better and what the heck is hurting so bad? Im afraid my left kidney is struggling to work, but its probably all in my mind. I just want the pain to go away, also to be able to stand up straight!
i have had my left kidney removed eight weeks ago Dec 29.2011.
It is uncomfortable to sleep on my right side. I SLEEP ON MY LEFT SIDE MOST OF THE NIGHT And then turn on my right side and then it is okay
Fpr the ost paart the bad pain on the left side is almost gine
It is uncomfortable to sleep on my right side. I SLEEP ON MY LEFT SIDE MOST OF THE NIGHT And then turn on my right side and then it is okay
Fpr the ost paart the bad pain on the left side is almost gine
My Partner had left kidney removed 15 years ago.
Been everywhere, still the same pain.
The only help is cocodomol.
Tom.
Have had left Nephro-ureterectomy, complete over a month a go and am still getting server abdomen pain and swollen feet I cann't sleep laying down as the pain becomes hard to take even with endone5mg and also take oxycontin10mg, I am male 59years
On Feb. 1st of 2011 i donated my left kidney to my brother...its been 6wks and i am now experiencing pain on the right side of my stomach. it is not the incision, and the pain has been with me for 3 days and is constant. Anyone experience this before? I really hate contacting my Dr if its something that is normal.