I’ve read every post on this thread (many of them multiple times) and have tried just about everything imaginable. I’m currently taking a combo of Baclofen (20-30mg/night) and Simethicone (125-250mg/night) and that does help me to get 5+ solid hours, but no more. I’m always gassy upon waking, thus the Simethicone, but I’m not sure how much that is truly helping. I’m on my second doctor and he too has never heard of this condition. Off to see a pulmonologist today and may do another sleep study—last one was 5 years ago, but that was pre-SRPE. I’m now exploring the cause & effect relationship between SRPE and already restless sleep with increasing snoring. Thus, the doctor visit today.
I will certainly report back as/when I learn anything new. I’d ask others to keep doing the same. With so little research & data out there on SRPE, keeping this thread alive is important.
Thanks,
JP
(Philadelphia area)
This condition is SRPEs: sleep related painful erections.
It has nothing to do with masturbation.
For scientific papers, search for key words sleep related painful erections meta analysis.
Hi JP, for scientific papers, Google key words sleep related painful erections meta analysis. Papers are from dutch researchers. It contains latest data on the matter until 2018. Good luck.
Man, I have read all the available articles on the internet, as well as all the forums on the matter. Step 1 makes a lot of sense. I used to masturbate a lot before the onset of this hellish condition (sometimes up to 4 times a day, very sick I know...). Step 2, make sens too because this conditions doesn't comes out all of a sudeen, there are lots of cause and the main for me at least is haevy masturbation or watching porn, it totally changes the chemistry in your brain; so you becaome somehow addicted and high libido.
Agree on that. That's why I think this conditions doesn't come out all of a sudden without a cause. The main factor, at least for me, is the bad habit of heavy masturbation and watching porn. It changes all the dopamine, norepinephrine and serotonine; and also it dysregulates enzymes like PDE5 in the cavernosal tissue.
For my part, I had a new sleep study done this past Tuesday and will have results from that by early part of next week. In the meantime, continuing ~20mg of Baclofen + 5-10 mg of Ambien, which now get me ~6hrs / night consistently.
I will only dip into antidepressants and the like, if everything else is ruled out, completely. The case will have to be VERY compelling for me to go that route.
Thanks, again, for all the tips.
Be well,
JP
I've been suffering from this problem for a long time, but for some reason it left me alone for the last 3 years or so. I used to post regularly on here and other forums, but after it left me alone I tried to put the thought of it out of my mind entirely. Now it's back all of a sudden, and I don't know what to do. I wish I knew what I did to get rid of it before. It truly does suck to be kept awake every night and never have a solid night sleep regardless of how physically exhausted you feel. I've never gone the route of baclofen or other meds, but I did try a load of over the counter supplements, breathing exercises, kegels, reverse kegelds, back stretches and yoga in my first few years of suffering. Here's hoping for a natural cure someday soon. Stay strong those of you also suffering from this.
Rezz
Yes, this does interrupt sleep, is highly variable in the number of times it happens during the night. The best thing is to deal with it as fast as possible (the routine) by getting up and urinating as quickly as possible. It is difficult to urinate through an erect penis, but for me gently squeezing the sides of the penis seems to help start the flow (every man can see what helps him). Return to bed quickly and try to fall back to sleep as fast as possible. Make changes to your lifestyle so that you go to bed (sleep) earlier, try not to obsess about the condition, anxiety regarding it will make it harder to fall back to sleep. As I stopped obsessing about cures and “what is wrong with me” I have learned to live with it. Although this is a little different perspective, there is a certain pleasure in the relief from the persistent erection (that is highly uncomfortable) that you feel as it slowly subsides after urinating and when you are already back in your bed, that can help you fall back to sleep.
Anxiety and obsession is your enemy with SRPE. Acceptance will help you. There could be so many things worse than having the issue we have.