Please tell me what happened with your trial / Mayo Clinic info. I had my thyroid with Hurthle cells removed 9 years ago. I did not receive radiation. Just last month, it was identified via blood work that my thyroid is growing back. I am scheduled to have an ultrasound next month. Possible radiation to follow. Blood work is a mess - super high TSH, super low T3, almost no vit D, low B12, pancrease on overdrive.... and Completely In Shock!
The Doctor said the regrown thyroid gland was cancer free? so why remove it again. Your friend is very lucky, i wish i can regrow my thyroid. Not having a thyroid has left me with no good sense of taste, weak bones, chronic lethargy, ongoing headches and overall depression and misery. I do take synthroid everyday but it is never the same, my diagnosis was graves, keep your gland!
This is great. I want to know If your friend also take replace drugs
That is not true your body needs iodine for other areas such as your skin, brain, breast tissue and more.
I had a TT followed by 2 rounds of radiation 7.5 yrs ago & had all scans clear since.
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so do I
Thank you. :)
I was glad to see your post. I am 1 yr post TT without RAI. I have tissue regrowth. I go tomorrow to endo. to see what my options are.
I was glad to see your post. I am 1 yr post TT without RAI. I have tissue regrowth. I go tomorrow to endo. to see what my options are.
I am so interested in talking to you... Please email me,
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Thank you so much
Hi Lauriehope. I had a TT 8/15/16. I haven't felt normal since. I would to know how you are doing?
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diagnosed with graves disease in 2007. had complete thyroid removed (10+lbs thyroid that had wrapped itself around my neck, squeezed off my trachea, and grown down into my heart and lungs) back in 2009. it's growing back. don't have details yet as i'm going to get levels checked today after being off levothyroxin for 4 weeks now (synthetic should be 94% out of my system). can a healthy thyroid grow back? mine was not cancerous. what if it grows back down in my chest area?? life has not been the same without a thyroid. no control over weight, depression, fatigue regardless of now normal my synthetic levels look on paper.
I feel the same way. How are you doing now?
No way to condense this, but I can relate to what you're going through. I had a partial thyroidectomy due to multinodular goiter (no cancer involvement ever) almost 50 years ago as a teenager. At 39 years old, I had a total thyroidectomy as what was left behind grew out of control, compressed my trachea to the point of narrowing my airway by over 60%, and was resting on my lungs. A very tiny piece, less than the diameter of a split pea and paper thin, was left behind as it was attached to my trachea and it would have caused more problems to take it out and the surgeon thought that if it grew back at all, it would be decades and another surgery would be easier by then. So, fast forward another 25 years and at the age of 64 I now have another left lobe with some nodules on it, and scattered thyroid on the right side as well with the nuclear scan showing "intense" activity in some areas.
During the past few years I've been seeing an MD of alternative medicine to see if we could figure out why I am losing so much hair in spite of dermatologists saying I should be able to grow it, and my fingernails also aren't behaving as usual. This MD thinks that Synthroid is not the answer for everyone and we worked together to lessen the amount of Synthroid and I started on a porcine glandular supplement. He got my labs to a good place working with Reverse T3 results instead of just using the TSH as the Bible. I did not see any new hair and, in fact, started to lose even more.
However, I did go to an endocrinologist so I would have established care with my health insurance plan, and she chose to stop the porcine supplement along with the iodine I was taking (after the alternative MD discovered a big deficiency in this) and keep me on the very low dose of Synthroid I was already taking, then ordered an ultrasound which showed a thyroid lobe had grown back, then the nuclear scan, and now she's started me back on a higher dose of Synthroid. So I've come full circle only to learn I have an alien in my throat again! I'm totally perplexed by this and do not want to have another surgery so I guess we will watch it and get periodic ultrasounds to see if it's getting bigger. I've started to research what regenerates thyroid tissue, and it was discouraging to learn that some "supplements" may cause this, but which supplements were not indicated so no way of knowing if taking the porcine caused it or not. Time will tell if the hair loss was due to hyperactivity due to the Synthroid, porcine supplement, and regenerated thyroid that is producing hormone. And I will still want to think about taking a natural supplement versus the Synthroid.
During the past few years I've been seeing an MD of alternative medicine to see if we could figure out why I am losing so much hair in spite of dermatologists saying I should be able to grow it, and my fingernails also aren't behaving as usual. This MD thinks that Synthroid is not the answer for everyone and we worked together to lessen the amount of Synthroid and I started on a porcine glandular supplement. He got my labs to a good place working with Reverse T3 results instead of just using the TSH as the Bible. I did not see any new hair and, in fact, started to lose even more.
However, I did go to an endocrinologist so I would have established care with my health insurance plan, and she chose to stop the porcine supplement along with the iodine I was taking (after the alternative MD discovered a big deficiency in this) and keep me on the very low dose of Synthroid I was already taking, then ordered an ultrasound which showed a thyroid lobe had grown back, then the nuclear scan, and now she's started me back on a higher dose of Synthroid. So I've come full circle only to learn I have an alien in my throat again! I'm totally perplexed by this and do not want to have another surgery so I guess we will watch it and get periodic ultrasounds to see if it's getting bigger. I've started to research what regenerates thyroid tissue, and it was discouraging to learn that some "supplements" may cause this, but which supplements were not indicated so no way of knowing if taking the porcine caused it or not. Time will tell if the hair loss was due to hyperactivity due to the Synthroid, porcine supplement, and regenerated thyroid that is producing hormone. And I will still want to think about taking a natural supplement versus the Synthroid.
Hi Nichole, I had a thyroidectomy a few years ago, and am considering lowering my synthroid in hopes of it growing back. I've researched a lot about homeopathy and do not believe in western medicine or pharmaceuticals. I'd be very interested and appreciative on any information you may have about this thanks!
I have found out that my 1/4 of thyroid left after surgery of 50 years is regrowing. What a shock. Now I'm having issues, does anyone know what the side effects of this could be. Dr. says wait and see???
I have heard of the thyroid growing back - Nature is wonderful, always trying to fix up the body's complications