Sphenoid sinusitis for one year now.

Was your CT scan specifically of your sinuses or of your head? I have all the symptoms people are referring to, and I've had a CT scan and MRI of head due to headaches and dizziness, but not one of just sinuses specifically. My ENT looked at scans and said sinuses looked normal, but I'm wondering if she could really see the sinuses that well in that type of scan?

I'm going through the same did you pull out your tooth ,didn't work?

Hi! Sorry I just crept up on this page but YES you sound like you have it! I was diagnosed with sphenoid sinusitis AND ethmoid sinusitis about 2 years ago. When I was younger I tried to do a backflip in a bouncy house and I believe I did something to my neck and I SWEAR I have this knot that won’t go away. I started getting god awful headaches that Advil, aspirin, ibuprofen, aleve, topamax couldn’t even help.. my doctor even prescribed me zomig because they said I had aura migraines. I’ve been diagnosed with high blood pressure also but my head started feeling like it was being closed in and I couldn’t hear anything and it was tight 24/7. I would never have a runny nose, just chronic post nasal drip and swallow hard nasty tasting stuff every now and then. Doctors gave me meds, shots, & antibiotics left and right. Finally went to see an ENT and got a CT ordered and they found I had sphenoid & ethmoid sinusitis, a deviated septum, nasal polyps, & later on down the road I decided to get a skin test to see what I was allergic to and found out I was allergic to 11 things super common in my area so that was contributing to my sinus build-up. I had 2 surgeries done at the same time. The endoscopic sinus surgery & septoplasty. About 3 years ago I had my tonsils and adenoids taken out by the same dr so he was puzzled why I was still acting like I had strep or something. I suffered for like 4 years and it only got worse.. PLEASE go see an ENT and beg for a CT or something I wouldn’t want anyone to live that way. I use a neti pot, a Vick’s humidifier, pataday eye drops, nasal drops, and take singular for allergies so I hope that helps for tips. The surgeries weren’t bad either, I just kept bleeding out my nose and felt like I couldn’t breathe since they packed my nose with some kinda gel stuff.

are you better now?

I need to know how you felt after surgery as I have been thinking to go through this route. Would you recommend a surgery? tell me how you feel before and after surgery? do you still get headaches? neck stiffness/pain? blurry vision? eyes/nose pressure? this would be very useful for me. Also, please let me know what exactly the surgery procedure is called? Thanks

I have been suffering more than words can describe. Not only do you sound just like me with your symptoms. I was also exposed to toxic waste. My home was built on top of one that was covered up long ago. I really wonder if mine is related. My entire family suffer from immuno deficiencies. It makes sense.

After 4 months of sinusitis hell: brain fog, head = pressure cooker, dizziness, fatigue... a ct scan that showed that all my sinuses are thickened again (after 3 surgeries) plus one maxillary is completely full... I am slowly recovering thanks to natural therapies. Antibiotics and steroids only suppressed the symptoms, they all came back after stopping the medication.

All my allergy markers in blood are normal, including IgE and eosinosphiles. I had the heureka moment when I read an article about how some people have poor microbiome in their sinuses. I started taking probiotics and added ca 1/4 of my lactobacillus capsule to my neti pot mix (salt, soda and a tiny bit of probiotics). This has made difference plus today I started putting kimchi juice into my nostrils (google kimchi and sinusitis). Also I found relief hanging 5 min my head downwards from the bed, because maxillary sinus can drain only upside down. This took some pressure off my sinus.
Good luck to everyone on the same road of recovery! Check the good bacteria in sinuses thing (might be the reason why my sinuses got clogged over and over again).

Start fire vinegar add fresh oregano and moringa fresh / mint bad breath / hot as possible, I drink 1-2 table spoons in 8 glasses water day and nite / you will be 50% or more better in just few days. I also have herb mix I take. Keeps infection into
allowing secondary infections.

I also have herb mix I take. Keeps infection in check not
allowing secondary infections. Good Luck

This is very good information, thank you. I have a couple of questions: What is crs,pnd & c**p doctors? Also, where does one obtain Bactiban? Lastly, I have fluid in my left sphenoid, will your recommendations help drain? You didn't say if you had mucus or what level infection. Again, thank you so much.

have you thought of TMJ issue?

Hi I have all these symptoms for years and have never been able to figure it out but now have come to the conclusion that it is my sinusitis I’m interested in the natural approach after doing your probiotics in the nose has it relieved your symptoms.? You uses a normal probiotic capsule?

Hi thankyou for your positive post I think this is the second positive post I've seen after 9 pages.can I ask did you have head pressure. I'm not sure if I have SINUSITUS because I don't have mucus blocked nose
What I do have is
Fullness in one ear been on going a few months
Head pressure / light headedness
Eye pressure red eyes
All of this is on my left side.

I'm so confused thanks for your time

i have had 3 spenoid surgiers = last one 7 years ago. Ihad finally found a primary who listened to me that I had Sjogrens. He delved into studying about that auto immune= doing many tests as we went along- my spine was in horrible pain= neck back of head all you have mentioned. He knew I had infection somewhere in my body as I got better then worse off it= he kept researching and did a scan of spenoid that first time= bingo= he sent me to ent surgeon= he was reading what result were ( primary{ in office. ) n said u have spenoid inefection in back of its cavity where it connects to brain stem. Hes sent rite away to ent surgeon who put scan up and whole one side of head black...He told me many things like long time having it - only way to get rid of is surgery. When he got in there he said he had to remove bone also = evidently infection in bone did not show up. To make rest short my primary cause of my autoimmune saw me often asked about pain in head ( I do have migraines as well). i went from bedridden/wheelchair to flying across country to see new grandbaby able to walk by myself all over airport. About anniversary of surgery to first surgery= it came back this time cysts that went into brain from spendoid. Surgery & ok. I was in hosp a year ago for seizure , follow up with primary. He said oh you have an infection in your spenoid..did nothing....constant migraine at differing levels= but seperate as b4 all this neuro said my brain could not heal them anymore. Those great drs are not here any more. I went down hill for many years. I am bedridden and now allergic to something I am taking at nite not sure what= so whole thing with spenoid symptoms worse as already had untreated. I cant lay head down, I am sicker than ever been. The numbnut dr I have keeps telling me to wear ski wrap all the time- the surgeon who did surgery said do not suffer in silence. They had me in quick for surgeries he said I had in his words dangerous place where you get menegitis from. sorry wiritng is bad..but one thing for sure he said this could not be solved with antibiotics, it had to be removed. I dont think scans showed it in bones dont know if CT and i stress must be ct. The back neck pain went away when he did surgery. A few years ago I was breathing in toxic mold from air conditioner= he just keeps putting band on something that have surgery I am so much worse than ever. This morniing I got up from laying down= I felt something huge coming out of my head- it went down throat. I saw it ( should have saved it_ but huge grey and green ( guessing fungal & bateria both). I cant get into primary for 2 weeks will see some underly Tues. I am remembering what he said...when long time with it= has to be surgery removed. I am truly suffering. Primary;s dont know what to do= even not all surgeons for it is rare to have this in spenoid. I pray I can get thru to them, & take the pain sometimes strongest rx will not help. I have some left over from surgery. It will hit bad - i have bad anyway...but it will take you to your knees begging for help. This i know is poorly wirtten, but I am very sick. I did go to a better hosp. who had us hand deliver some info to primary I know they said very worried about my health there at the good hosp. I know dr said do not surfer in silence = it had to be surgically removed. Also if i have one in that cavity has to be treated anitbiotics for a whole month= I know you can get cdiff but he gave me probiotics not taken with antibiotic but inbetween dosed to not get cdiff. Best I can wirte I hope something helps someone here. Dont let drs blow u off. Yes you can in early stage treat with home remedies and antiobiotic. But long time like a year No! Think of it as a slow moving flesh eating disease= that tiffues has to be removed and if in bone that also. I learned ct scans do not always show how bad it is until surgeon gets in there. I know cysts he said YOU DO NOT KNOW what is in them til sent to pathology not by scan= can not trust that. Hope something helps someone & hope I can get help!

How did all this turn out for you?