I have been experiencing the same flare ups, first it started with the bottom if my feet, and has moved to hands and lips.i ave seen two physicians that can not give me any answers... I continue to take Benadryl to help with the sweeling. did you have any surgical procedure when your flare ups started? I started having symtoms a week after having robotic hysterectomy. I am not sure if they are related.
After experiencing the same symptoms on and off for over seven years, I went on a five month diet that cleansed my body of all chemicals. I used the diet on a Candida website as my model diet. It has now been ten months since I had my last flare up. I'm convinced that the flare ups are caused by chemical buildup in your body. You need to look at the ingredient label of everything you consume and you'll see the prevalence of chemicals in all convenience foods. In addition, most of the meats are raised using antibiotics, antihistimes, and growth hormones. In one recent study, they discovered that the farmers were using arsenic in the feed to improve the color of the chicken meat. Another source of chemicals are artificial sweetners. I also avoided sugar and used Stevia as a substitute sweetner since it is plant based.
Wow, your story truely mirrors mine. I had a robotic hysterectomy in October. I woke up from anestesia with a swollen lip and the nurse told me that I must had bitten my lip during surgery which is highly unlikely since I was completley under. I have had random episodes ever since. Have you?
I started having the same type of swelling about 4 years ago after being diagnosed with Graves disease (a form of hyperthyroidism). It was off and on for a year, it wasn't very severe then. I was diagnosed with bladder cancer in Aug. 2012. I had to have my bladder removed and a complete hysterectomy. Three weeks after that surgery it started all over again with a vengeance. Right now my right hand is swelling moving towards my wrist. I have asked all kinds of doctors and none of them know what it is. I sure would be interested to know if anyone ever figures this out!
If they gave you a significant amount of antibiotics, this may have triggered the reaction.
i'm 17 years of age. i've been having swelling for a over a year. it comes and goes, but can sometimes last for weeks. At the moment, my left hand is swolen to what looks like a boxing glove and my right side of my right hand is swolen across my little finger,travelling down across my wrist and down my arm. I also have the swelling on the underneeth of my feet and it's agony to walk on. it feels like i'm walking on a lumpy surface or that something has attatched its self to my feet, but the only thing that is there is large swelled patches. These all start of as an itch then progress to swell and become red. I've had this swelling for ongoing four days now. I have been to the doctors on numerous occasions and tried numerous Antihistamines, and these didn't even touch it. Neither did removing certain products from my diet such as dairy and wheet as suggested. Nothing that has been recomended has ever helped and it persists. I've read that some people who experience similar symptoms find that it doesn't hurt, though mine is increadibly painful and makes the are around it loose feeing (for example, if my palms swell, i wouldn't be able to feel my fingers) I just want to get this sorted and find a way to stop this as it's begining to effect numerous parts of my life: when it happens on my feet, i can't walk on them...when it happens on my hands i can't grip things or open things. i'm getting fed up!
I find it interesting that so many people have this problem but there is no answer!!
The problem is that when you go to the Allergist, he has no idea what to do to treat this affliction. It's obviously an allergic reaction to something that's happening in your body but antihistimes don't seem to work. My belief is that the body is suffering from an overload of antibiotics, hormones, chemicals, leaching plastic and the preservatives that the food companies have been putting into our "convenience" foods since the 1970's. I cured myself by abstaining from all foods that had any chemicals and consuming only organic meats and vegetables. It took five months but it worked and now I can, with moderation, eat normally. Look at the Candida diet for direction.
Hi everyone,
How strange that so many people have this condition. I had what was self diagnosed as ‘physical angeodema’. The majority of my swelling were my feet, hands and jawline. I found a link between the majority of my swellings which was pressure, so when I went running my feet would often swell, if someone slapped me my face would swell, If I went to the gym my biceps and hands would swell.
I saw lots of doctors; they all couldn’t give a %~@* about me. This was seriously affecting my life. I eventually did see a specialist who did blood tests (all negative) and he told me I had angioedema, and that it would pass in 6-18 months---no cure. He was correct! It pretty much lasted for 19 months, it was the worst time of my life. My last reaction was 2 years ago...until now. I sit here devastated as the underside of my foot is swollen, I couldn’t believe it----- I thought I had stepped on something (perhaps a golf ball? ha). Nope, no golf ball, just an itchy swollen foot.
The swellings used to be deep, a little itchy and slightly pink, and warm to the touch. It itches simply because its filling up with blood and lymph fluid, all the vessels and capillaries are dilating so becomes red/itchy sometimes a little sweaty?
I can only offer you advice to try and spot links between your swellings, to minimise them. I stopped exercising completely and I ended up only having 2 attacks a week instead of 5.
My symptoms sound slightly different to most people on here, I always had my feet, hands and jaw-line/neck swelling up every couple of days, sometimes my biceps/tongue. Average length in time for my swellings would be maybe 8 hours. Antihistamines don’t really work, I haven’t changed my diet, I am healthy, don’t smoke, rarely drink alcohol, exercise at least a moderate amount, have an athletic build, take no drugs, drink lots of water and am not under that much stress. There really is no evident cause for this random condition!
I hope someone has an answer!
Well - I too am relieved that I stumbled across this thread. I'm 50, Male, and I've been experiencing the itchy, then red, then the swelling on my fingers (sometimes they feel ice cold too) - typically mine starts on the fingerprints of my thumb and spreading to my palm, and then to my wrist OR from a finger down to the palm. Never my whole hand, just one or two fingers and it could be on either hand. I've also experienced the same issue on the base of the toes - I guess the ball of the foot. This has been going on for the past 2 months. What caused me great concern today is that my lower right lip suddenly swelled for no reason. So to see a thread from others who have experience EXACTLY what I've been experiencing is quite amazing... I've tried to explain this to my wife and I really had a hard time explaining it without showing her the swelling. I will let my doctor know during my next physical so he's aware - but from the sounds of everyone here it may be something I'll have to live with...
Thanks JJ MOM for the Allegra suggestion - I'll try that.
I came across this thread searching the same symptoms it seems everyone else has encountered. About a month ago i experience slight swelling in my right foot. It began with itching then it felt as though something was stuck to the bottom of my shoe, which was the swelling. About a week later my foot swelled again then my hand then my lip. When my lip swelled it began on one side and slowly moved over to the other. Went to the DR at that point because i know face swelling can lead to throat swelling. The Dr was clueless and prescribed cold sore medication , even after i explained the other swelling encounters. Needless to say i didn't need the cold sore medication as my lip went back to normal after the swelling subsided.
I've since had my bicep swell and my hand and ring finger on the other. I never seem to swell in more then one location at a time and it lasts about 48 hours from initial itching to swelling being reduced. I'm not hopeful in finding a cause. My environment is always different when the swelling starts and i rarely have the same food on the days the swelling occured. My concern is throat or tongue swelling has anyone encountered that or has it been mainly foot and hand ?
A second doctor i have seen started me on Allegra and singular , which seemed to quicken recovery time. Going to try it for 30 days and see if i have any more attacks.
I have had all of your symptoms. In addition, I suffered from swelling of the tongue and gums. It usually happens overnight and when I awake the swelling is there. One trigger seems to be if I bite my tongue while eating, I'll will get swelling that night. Last year I had all of your symptoms plus the swelling of the tongue and gums. I went to an allergist and he didn't have a clue what it was. Did some research on-line and found a Candida site that seemed to match my symptoms. Candida is caused by excess yeast in the body so there is a diet to detox the body of yeast. I went on it for five months and eliminated all of the symptoms and also lost 30 unneeded pounds. The Candida diet requires only organic foods, no sugar, no starch, nothing to feed the yeast. In addition, I take probiotics which kills the yeast in the gut. After five months I slowly introduced foods that I liked back into my diet but stayed away from sugars. It's been 7 months now since I had my last swelling incident.
Thank you to all that have written in. I was searching for something like what my husband was experiencing, and was shocked to find that so many of you have been experiencing the same thing: what started as a swollen lip then moved to swollen balls under the soles of his feet, swollen pockets underneath his buttocks on both sides, then to swollen pockets on the palms and swollen wrists on the inside, near the veins. We have been medicating with benadryl since the episode began, with some relief, but not total. After reading many of your posts, I looked into angiodema and found that a medicine interaction-induced version exists, typically with people who use ACE inhibitors. When I looked those up, I saw that blood pressure medication, specifically in the -pril family (he takes lisinopril) are ACE inhibitors. I also have high blood pressure, and got off the -pril family of drugs, as they were causing chronic cough, which also happened to my mom when she was on them. Lately, I had been noticing that he is coughing all the time, and I recommended he switch drug families. After this case of what seems to be angiodema, I am even more adamant. If any of you out there are taking other ACE inhibitors and are not allergic to anything you are aware of, maybe this will provide you some relief. Please let me know if you stop taking an ACE inhibitor, and your symptoms subside.
Good luck to you all!
I've had the same symptoms and flares for years. When I was a child in middle school it happened very frequently. As I got older they seemed to stop. Now, after fifteen or so years without a single flare up, they are happening again. As a child I underwent all the blood work, the clinical studies, the allergy tests. Nothing, not a single answer. Doctors finally diagnosed it as stress. I think they like to do this when they are tired of looking for the real answer. I had hoped that in fifteen years something would have come up, but after my internet search all I've learned is that there are hundreds of people experiencing the same symptoms with no idea how or why we get them. The only consensus I've found is that Benadryl helps relieve the symptoms. Still no answer. Sorry I couldn't be more helpful.