Hi everyone. I'm writing this down and hoping it will help and provide a possible answer for some of you, since we all suffer similarly but can't get diagnosed.
I've read every single post in here, trying to find a way out of my misery.
I have had the exact symptoms as most of you, it started a week ago as what I thought was a small tear from physical irritation after sex. Soon it became awfully itchy and painful to touch. Still I didn't make any big deal out of it, until I've found another sore by touch. I looked with a mirror, freaked out and arranged a gyno appt. I will also state that I have a a 2year monogamous relationship and always use protection. The sores were just like open little red circles on my labia majora that was also swollen and red. Peeing on them was awfully painful.
I went to the gyno and after she just briefly looked at me she IMMEDIATELY sent me away to a dermatologist, saying she has nothing to do with this because it's herpes. I was so confused and agitated, has anyone had a similar experience, like their gyno would refuse to treat them because of your problems and send them to the dermatologist? I was also surprised by her manners in general, how she diagnosed me right away and was behaving in a really somehow judgemental way. This has happened to me with the other docs I visited after that as well. They say it's herpes right away and act like I should not be whining about it, it's obviously my fault. All of this has made me so extremely emotional, unsettled, ashamed, worried.... not only was I in pain, but those people who should've been there to help me were not taking me serious at all when I said it doesn't fit the herpes description in my opinion and I can't think of any way that I could've gotten it.... I know they are trained professionals, and I must have been just some whining 20yr old that read something inaccurate on the internet in their eyes. But they didn't seem to listen at all. The Dermatologist swabbed the ulcers and took my blood for testing on HSV 1 and 2. Then sent me home with ONE cream that is used with babies when the diaper irritates their butt. I was beyond shocked, I came to her with pain, I was unable to pee becsuse of it and she gives me a baby butt cream and tells me to come again in a week when the results will be ready.
Then things got worse really fast. On Thursday (the day I visited all of the docs), i had maybe like 8 ulcers on the labia Majora. Saturday - i stopped counting after 30. They were everywhere, top to bottom, it looked terryfing, I even had one on the hood of my clit. And the pain was unbearable. Not only when I tried to pee, but practically all the time. I was on the strongest painkillers we had at home, and I didn't feel any relief at all.
The only way I could pee, and I recommend this to you if you're struggling with this, was to get in the bathtub, squat down really low, knees apart, I took two cotton pads and soaked them in lukewarm water, pressed them gently on the ulcers on both sides so it would push them back and cover them, then hold my breath and let it all out at once. I also postponed peeing every time till I could and didn't drink much . That's surely not good for you but I was terrified of peeing.
So anyways I cried the whole weekend , I was so so desperate and emotional, nothing I tried had relieved me. I couldn't shower because the water pouring over the ulcers was unbearable. Finally I couldn't take it and went to the ER on sunday. Another pleasant experience with the docs awaited me there. I told the receptionist I wanted the gyno. Soon after that the nurse came out to the hallway(half full of ppl) and was questioning me right THERE about my problems. Then she told me the same thing, she basically half shouted it while walking away: "this isn't a gyno's problem but a dermatologist's because this is HERPES" . I assure you everyone has heard it in the hallway. And what was I supposed to do??? Find an ER that keeps dermatologists in it???
So there I was again extremely embarrassed, desperate and in pain, she took my papers and just told me to wait. I waited. For TWO FREAKING HOURS not being able to even sit properly in those chairs fighting back the tears from pain.
The gyno examined me and said they need to clean the ulcers with some solution they would pour over it. I immediately freaked out and started crying because I knew it would be extremely painful . The nurses had to hold me down on the table because I was literally screaming and kicking when they did that. They all tried to calm me down saying it can't be that bad. Yes well. I would tell them to try to say that with this done to their vaginas but I do not wish that pain for anyone to experience, not even them.. I've been through 4 surgeries so far and nothing compares.
The only good thing that brought relief was when they gave me a shot with painkillers finally. The gyno gave me medication for the treatment of herpes and sent home.
I was for the first time hopeful and relieved . That lasted for like two hours until the shot wore out. The meds, even though it was a short time to be making conclusions, I felt were not working. At this point, I would be event GLAD to have herpes just so the meds would work!! But the state of me was just getting worse, my labia now swollen to the maximum full of red open sores. On the top above my clit, where the skin meets I had a huge like ruptured blister that I was sure I can't get to dry out because it's placed in the skin that overlaps. I also had a some kind of a white-green-yellow-transparent-ish discharge that was a bit sticky. Not a strong smell. I have had quite a lot of yeasts but this discharge was different, and when I didn't clean myself with wet cotton pads for longer than 2 hours the discharge was making everything burn and itch even more. The doc also recommended to keep it dry, so I always tapped it with a Kleenex gently after I washed. I used the baby cream, yeast infection cream and coconut oil after that ( not all at once, I was switching them).
Soo, finally the results came back yesterday. The dermatologist called and told me to stop taking the meds from the ER, because I was NEGATIVE FOR HERPES .
Also negative for other kind of STD. And here I'm finally getting to the point, sorry. I'm not saying this is what all of you must be having as well, I'm sharing this because I actually GOT DIAGNOSIS and that would be the Golden staphylococcus.
It didn't surprise me really because I know I had it for years, I got it from hospital when I had a surgery, and I can't get rid of it since. It also lives in my respiratory system and in my ear, and has caused lot of trouble so far.
The thing is, it is reaallyyy hard to detect, and can be only found through swabs from skin/mucus membranes and when the doctor swabs you it is not sure that the bastard will be exactly at that place. It is known for causing a lot of dermal infections and lots of other stuff. It is also resistant to a lot of antibiotics, when they find it they immediately test your golden staph for resistance to various antibiotics and then give you the one it's sensitive to.
I'm currently on one of those atbs. So far, I still am in pain, still can't pee, can't walk properly(I walk like a some kind of spider with legs wide spread) and the other symptoms are still present as well. It has been just one day though, I hope for these antibiotics to work really bad.
So girls, I know very very well how you feel and I'm so sorry, I know it's extremely hard. But I know you're tough. We can do it.
I really can't say if my case could be yours as well, I'm just saying that you could ask your doctor about it. Also if you know you have a history of golden staph, tell it to your doc right away.
I wish you all all the best, take care and get better.
I've read every single post in here, trying to find a way out of my misery.
I have had the exact symptoms as most of you, it started a week ago as what I thought was a small tear from physical irritation after sex. Soon it became awfully itchy and painful to touch. Still I didn't make any big deal out of it, until I've found another sore by touch. I looked with a mirror, freaked out and arranged a gyno appt. I will also state that I have a a 2year monogamous relationship and always use protection. The sores were just like open little red circles on my labia majora that was also swollen and red. Peeing on them was awfully painful.
I went to the gyno and after she just briefly looked at me she IMMEDIATELY sent me away to a dermatologist, saying she has nothing to do with this because it's herpes. I was so confused and agitated, has anyone had a similar experience, like their gyno would refuse to treat them because of your problems and send them to the dermatologist? I was also surprised by her manners in general, how she diagnosed me right away and was behaving in a really somehow judgemental way. This has happened to me with the other docs I visited after that as well. They say it's herpes right away and act like I should not be whining about it, it's obviously my fault. All of this has made me so extremely emotional, unsettled, ashamed, worried.... not only was I in pain, but those people who should've been there to help me were not taking me serious at all when I said it doesn't fit the herpes description in my opinion and I can't think of any way that I could've gotten it.... I know they are trained professionals, and I must have been just some whining 20yr old that read something inaccurate on the internet in their eyes. But they didn't seem to listen at all. The Dermatologist swabbed the ulcers and took my blood for testing on HSV 1 and 2. Then sent me home with ONE cream that is used with babies when the diaper irritates their butt. I was beyond shocked, I came to her with pain, I was unable to pee becsuse of it and she gives me a baby butt cream and tells me to come again in a week when the results will be ready.
Then things got worse really fast. On Thursday (the day I visited all of the docs), i had maybe like 8 ulcers on the labia Majora. Saturday - i stopped counting after 30. They were everywhere, top to bottom, it looked terryfing, I even had one on the hood of my clit. And the pain was unbearable. Not only when I tried to pee, but practically all the time. I was on the strongest painkillers we had at home, and I didn't feel any relief at all.
The only way I could pee, and I recommend this to you if you're struggling with this, was to get in the bathtub, squat down really low, knees apart, I took two cotton pads and soaked them in lukewarm water, pressed them gently on the ulcers on both sides so it would push them back and cover them, then hold my breath and let it all out at once. I also postponed peeing every time till I could and didn't drink much . That's surely not good for you but I was terrified of peeing.
So anyways I cried the whole weekend , I was so so desperate and emotional, nothing I tried had relieved me. I couldn't shower because the water pouring over the ulcers was unbearable. Finally I couldn't take it and went to the ER on sunday. Another pleasant experience with the docs awaited me there. I told the receptionist I wanted the gyno. Soon after that the nurse came out to the hallway(half full of ppl) and was questioning me right THERE about my problems. Then she told me the same thing, she basically half shouted it while walking away: "this isn't a gyno's problem but a dermatologist's because this is HERPES" . I assure you everyone has heard it in the hallway. And what was I supposed to do??? Find an ER that keeps dermatologists in it???
So there I was again extremely embarrassed, desperate and in pain, she took my papers and just told me to wait. I waited. For TWO FREAKING HOURS not being able to even sit properly in those chairs fighting back the tears from pain.
The gyno examined me and said they need to clean the ulcers with some solution they would pour over it. I immediately freaked out and started crying because I knew it would be extremely painful . The nurses had to hold me down on the table because I was literally screaming and kicking when they did that. They all tried to calm me down saying it can't be that bad. Yes well. I would tell them to try to say that with this done to their vaginas but I do not wish that pain for anyone to experience, not even them.. I've been through 4 surgeries so far and nothing compares.
The only good thing that brought relief was when they gave me a shot with painkillers finally. The gyno gave me medication for the treatment of herpes and sent home.
I was for the first time hopeful and relieved . That lasted for like two hours until the shot wore out. The meds, even though it was a short time to be making conclusions, I felt were not working. At this point, I would be event GLAD to have herpes just so the meds would work!! But the state of me was just getting worse, my labia now swollen to the maximum full of red open sores. On the top above my clit, where the skin meets I had a huge like ruptured blister that I was sure I can't get to dry out because it's placed in the skin that overlaps. I also had a some kind of a white-green-yellow-transparent-ish discharge that was a bit sticky. Not a strong smell. I have had quite a lot of yeasts but this discharge was different, and when I didn't clean myself with wet cotton pads for longer than 2 hours the discharge was making everything burn and itch even more. The doc also recommended to keep it dry, so I always tapped it with a Kleenex gently after I washed. I used the baby cream, yeast infection cream and coconut oil after that ( not all at once, I was switching them).
Soo, finally the results came back yesterday. The dermatologist called and told me to stop taking the meds from the ER, because I was NEGATIVE FOR HERPES .
Also negative for other kind of STD. And here I'm finally getting to the point, sorry. I'm not saying this is what all of you must be having as well, I'm sharing this because I actually GOT DIAGNOSIS and that would be the Golden staphylococcus.
It didn't surprise me really because I know I had it for years, I got it from hospital when I had a surgery, and I can't get rid of it since. It also lives in my respiratory system and in my ear, and has caused lot of trouble so far.
The thing is, it is reaallyyy hard to detect, and can be only found through swabs from skin/mucus membranes and when the doctor swabs you it is not sure that the bastard will be exactly at that place. It is known for causing a lot of dermal infections and lots of other stuff. It is also resistant to a lot of antibiotics, when they find it they immediately test your golden staph for resistance to various antibiotics and then give you the one it's sensitive to.
I'm currently on one of those atbs. So far, I still am in pain, still can't pee, can't walk properly(I walk like a some kind of spider with legs wide spread) and the other symptoms are still present as well. It has been just one day though, I hope for these antibiotics to work really bad.
So girls, I know very very well how you feel and I'm so sorry, I know it's extremely hard. But I know you're tough. We can do it.
I really can't say if my case could be yours as well, I'm just saying that you could ask your doctor about it. Also if you know you have a history of golden staph, tell it to your doc right away.
I wish you all all the best, take care and get better.
Ask your doctor for lignocaine gel. It is a topical anathesia and take the pain away almost instantly. I can not survive without it. Also take Epsom salt baths x
I posted on Saturday and this is a response to mine (click on the blue link to see my initial post) mine turned out to be hsv2 which is so strange as symptoms started the day after I had unprotected sex. So I'm not sure if I got it from the guy I had sex with or from my ex boyfriend. Your initial outbreak can take 2 days/weeks/months/or years to happen so who knows. I regularly get tested and it never showed up before my ex so idk. I don't think it's hit me yet. I'm sure it will hit me and I will be distraught.
oh honey, i wish you all the best, i have no idea why there isnt a cure yet. i mean look at what man have made possible so far. i heard about a story where a man was cured of hiv, i mean you never know! god may be with you. just keep praying and believe in miracles
Thank you so much for your kind words. I could use all the kindness I could get right now, I appreciate it so much.
So I'm just updating this. After about two days of taking the antibiotics they prescribed me things got a lot better, the swelling went away and the sores started to heal, by the 4th day it was all okay and such a relief. I did make a mistake and took a bath, maybe don't do that for a while after you experience this horror , it started to sting a bit again. But it resolved eventually. Good luck to all of you stay strong
Thank god I found this thread. I really do think it is from taking antibiotics. I have been taking a large dose of Amoxicillin for a sinus infection for about a week now and took a smaller dose about a month and a half ago for an ear infection. I noticed one bump a few days ago that was sore to the touch and I thought it was just an ingrown hair so I left it. Then, the next day I noticed the sores which don't have any fluid coming from them (just like someone mentioned, like bottom of octopus tentacles). I started freaking out thinking it was automatically genital herpes. I have been with my boyfriend for almost four months now and he is clean. We sometimes use protection, but not all the time. In May of last year I did a bunch of STD tests and was diagnosed with chlamydia but took antibiotics which cleared it up and I was retested with everything negative.
I couldn't get into my school health center as they were backed up for weeks and my gynecologist can't see me until next week, so I went to urgent care. He looked down there and said they don't seem to concern him and that I just have a bad yeast infection. They took a culture though and I should hear back in the next couple days. For now, he gave me Fluconazole for the yeast infection and I have been using Yeast Guard gel for the itchiness. It doesn't hurt to pee, only when my urine touches the sores. Other than that, I have no other symptoms. Hopefully the test results will help and the medicine too
I couldn't get into my school health center as they were backed up for weeks and my gynecologist can't see me until next week, so I went to urgent care. He looked down there and said they don't seem to concern him and that I just have a bad yeast infection. They took a culture though and I should hear back in the next couple days. For now, he gave me Fluconazole for the yeast infection and I have been using Yeast Guard gel for the itchiness. It doesn't hurt to pee, only when my urine touches the sores. Other than that, I have no other symptoms. Hopefully the test results will help and the medicine too
may god be with you. i hope everything turns out well
Updating my post: still waiting back for results of the culture, but the yeast infection medicine I was prescribed worked WONDERS and so did applying vagisil. The itching has stopped and the first spots are already clearing up. Still seeing my gyno on Wednesday and still gonna have an array of STD tests done
Umm....im 18 and im experiencing the same symptoms as you except i have sores that are scabbing over the pain is so bad that it hurts to wipe when i pee....im really scared
Omg thank you for telling your story you are brave as hell !! I'm going through the exact same thing now I'm the Same age and have one guy that haven't been tested either
Use hydrogen peroxide it will kill the infection but put it directly on the sores it will hurt but it will kill the bacteria it worked for me . I experienced the same thing all test came back negative but my obgyn said it's caused by stress I don't think they even know . Good luck .
Wow so to say the least this makes me soooooooooo happy... This blog has seriously settled me down.. I've been balling my eyes out.. Basically started dating a new guy, we've been having unprotected sex since late February. 7 days ago I had abdominal pain while urinating, the next day I seen blood while urinating rushed to the ER. UTI. but a significant one.. over 200 white cell blood count carbon nitrate etc just all bad. I've been taking the antibiotic and even though I was advised not to have sex .. WE DID.. immediately I was sore... the next day I was swollen.. started seeing cottage cheese and took diflucan and a plan b.. yesterday I had a bit of pain ,,, and today I see one lesion and a few isolated bumps.. along with my still cottage cheese and pain.. immediately freak out go back to ER. physician assistant looks at it says herpes go to your OBGYN .... When I say I have never smoked a PACK of cigarettes so quick in my life crying yelling screaming.. they guy is pissed at me saying he was tested in February hes confident that it isnt that and yelling at him its just bad... so I decided to do my research.. and in doing so I found this blog and also found other blogs and sites with plenty of information regarding ulcers bumps etc.. and come to find out this could very well be a yeast reaction.. and the PA had the nerve to tell me she just didnt know what else it could be...except herpes.. so tomorrow I'm omw to my OBGYN feeling alot better because my story is so similar to alot of you ladies.. I WILL BE BACK TO POST MY RESULTS... but im just sooooo happy that this is actually normal.. uti.anitbiotic.bacteria.yeast= ULCERS. Thank you for calming down.
So just keeping everyone updated. I have went to the doctor. She informed there is no grey area. It's either herpes or an infection due to all the mess going on with me. I'm concerned. My now ex bf is military. They go through routine testings all the time. But the form he showed me did not have the H test on it. He called his doctor and his doctor informed him he was in fact tested for everything that for just listed most common. & at the top it said negative for all. He was suppose to obtain the rest of the documents to show me that specific test but I have not seen it.. my results should come back tomorrow. But if he in fact did infect me.. it' nice to know HE DIDNT KNOW. He's never had an outbreak or anything so he could be a carrier with no symptoms but pass it through his semen (which is why I took the Plan B.. we had an accident) but I just wont know until we get the results.. the last two women he was with before me he got ahold of and both of them are completely fine where one woman was with him for seven months unprotected... so... I'm praying.. but preparing.. keep your head up ladies.
Calm Spirit
Calm Spirit
Hellooo I'm experiencing the same thing so scared my nurse prescribed me so cream tonight. Is this viral infection then and passed on threw sex