I had an MRI on mine and the guy said "what am I supposed to be looking at?" as the lumps disappear into my...body?...when I lay down. Not any more though - they are too big. The Drs said 'fluid in the tissue' - nothing more. That is why I named them my invisible lumps.
Yes - I think we all know the area - where you would kiss a lover, right? Mine came up when I was spending six hours a week on a computer. I hadn't been on a keyboard full time ever - I had been a journalist for years, but that's on and off all day anyway, and in the time prior to this I had been part time for a year, so it was the least intensive time in ten years. I am exploring TOS with Lymphatic drainage and the Osteo says all the area is tight as a drum, so that fits. So far though, no reduction in the swelling. I will go as long as I can afford to - or when it becomes obvious it either is or isn't working.
How strange!! I am going to see a rhumatology doc tomorrow and will keep u posted on how it goes. What have you done for relief? Mine comes and goes. The cat scan showed the fluid going down into my chest so they want a scan of my chest next.
Relief? Nothing I just turned 50 and these arrived when I was 32.
Wow!! Do they come and go for you?
What brought then on? Mine popped up with my first pregnancy.
What brought then on? Mine popped up with my first pregnancy.
Mine come and go. Showed up when I got mono two years ago. I dont even worry about them anymore.
I found out what the swelling is. I originally thought it was from mono because I had tested positive but it's been over a year and it's still there. I brought it up to my physical therapist. He asked when did I first notice it and had I gained weight? I said yes, as a matter of fact it didn't show up till I gained 30-40weight pounds. He said it's fat, people have different genetics that cause them to gain weight in certain areas and when I gained this extra weight I blew up everywhere including that area.
There are only 2 places (San Francisco & UCLA area I believe) that do the type of MRI for TOS. I do not have lumps - I have swelling in the collarbone area (supra-clavicular fossa).
Mine came up when I was 56kg. NOT fat. Mine are different sizes too - how many lopsided fat people have you seen?
Same. I call them lumps because people say "what are those lumps". They are swellings tho and the left bigger than the right, which fits with your TOS as the lymphatic system that side does most of the body, so would be more affected. I haven't raised this with my GP but will raise it with my rheumatologist on April 10. He has seen these things go up and down like yoyo's over ten years - up when my RA flares and after this latest shoulder surgery. He is at least interested. They never go away. Tender too. I am seriously sick of hearing its fat though - have a look at every fat person you see and you will not see these! I have seen one person with this - a really old man with RA too. No one else. We are a select group - sigh.
Update: I found out what the swelling is. I originally thought it was from mono because I had tested positive but it's been over a year and it's still there. I brought it up to my physical therapist. He asked when did I first notice it and had I gained weight? I said yes, as a matter of fact it didn't show up till I gained 30-40weight pounds. He said it's fat, people have different genetics that cause them to gain weight in certain areas and when I gained this extra weight I blew up everywhere including that area.
Yeah I'm 110 lbs and this is def not fat. I've gotten it twice and the swelling is completely gone within 48 hours. I jut worry that's its being caused by some underlying condition??
Maybe you have something different. Mine never come and go. Might vary in size but never go. I have necklaces I can't wear now because of them. Pretty rubbish huh. Is one side bigger? Can you keep a diary (just a general one) to see if you can pinpoint it to something you ate, or a place you went, or an activity you did - if it happens again you might be able to pick a common denominator.Maybe it was in response to being ill?
so I wake this morning and it's there, but as pronounced. I flex and that swell gets firm, I relax and it's squishy. Being the person I am, I keep rubbing and fixating on that little bean like thing I can move on my collar bone. Again, ct scan says no mass or legion, so maybe I need to chill out. I am feeling the burning sensation in my wrist like carpel.
It's lymphedema. The lymph system it's clearing us like it should so the gel(fat) pads can change size according to how good or poorly the lymph system is doing it's work properly or not. My physical therapist has me doing special exercises & she does a lymph massage. She says it won't entirely go away & can flare up or calm down.