Guest you have to be joking...
We are not taking illicit drugs...we are suffering.
I am presently in one of these states at present burning at the back of both eyes like there is a fire there. I have often had the scalding up the nostril, or two nostrils, eye pain from hell, ditto ear pain.
As if we are so dumb to be trashing our systems with illicit drugs!!!
I eat healthily, no gluten, careful with foods, no additives, I am allergic to house dust/ mites, to grass seeds & pollents etc. etc.. It is a nightmare when these issues arise.
I would like to be apart of this group.
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I don't want to give anyone false hope, but I would like to share what worked for me.
Since I was a teenager (I'm 42 now) I've had sinusitis a handful of times. While few and far between, these have been intensely painful experiences for which I have fantasized about cutting out the part of my head that feels like it is on fire. My first case of sinusitis was misdiagnosed by a pharmacist (hooray!) and I suffered in agony for days and days. Since my bouts of sinusitis were diagnosed by a real doctor, however, a course of antibiotics has always cleared it up.
That was, until recently. I could feel a weird pseudo-painful pressure on the top-left inside of my nose. I recognised it immediately as the onset of sinusitis, but it never kicked over. Then I caught a cold. Just as I was pulling out of that, the sinusitis exploded.
The unusual thing about this bout was that while it was never quite as painful as my head-slicing bouts in the past, it never looked like leaving. I took a course of antibiotics, but after my last tablet I could still feel it in there. Less intense, for sure, but merely in the background ready to re-launch.
And it did. I was at work in a meeting when it decided to inflame. I took a couple of headache pills but to no avail. In desperation I started to massage the top-left outside of my nose with my left thumb... Boom. The pain vanished.
Now I don't know if I soothed a nerve or pushed out a piece of debris, but the pain hasn't returned. Even today (about a week later) I continue to massage my nose with a firm swirl of my thumb in the hope that the pain doesn't return, and so far it hasn't.
As I said at the start of this post, I don't want to give anyone false hope. I am sharing what worked for me on the slight chance it works for you too.
I see people come and go on this forum, so I made a community on Facebook so we can gather and talk to each other about investigations etc. on this same issue we face. We do need to keep in touch, guys!!
Search on Facebook "Nose Pain Community" It's only me in the group right now but I've put my CTs, MRIs in there, and my experience with this in the past years, maybe there's something helpful for you too.
I think if we gather at least 3-4 people in there we can go a lot further with this.
which is a form of shingles that lacks any visual signifiers.
After reading this thread I believe many of these people have Zoster Sine, a
form of shingles.